CDE Detailed Report | NINDS Common Data Elements

Disease: Spinal Cord Injury
Subdomain Name: Hospital/Care Management
CRF: content

Displaying 1 - 18 of 18

CDE ID	CDE Name	Variable Name	Definition	Short Description	Question Text	Permissible Values	Description	Data Type	Disease Specific Instructions	Disease Specific Reference	Population	Classification (e.g., Core)	Version Number	Version Date	CRF Name (CRF Module / Guidance)	Subdomain Name	Domain Name	Size	Input Restrictions
C04807	Vital status	VitStatus	Status of participant/subject as alive or dead	Status of participant/subject as alive or dead	Vital status on discharge	Alive;Dead	Alive;Dead	Alphanumeric	Choose one.	No references available	Adult;Pediatric	Supplemental	3.00	2013-07-20 10:21:25.65	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Single Pre-Defined Value Selected
C19162	Acute care unit admission date	AcuteCareUnitAdmissionDate	The date at which participant was admitted to acute care unit	The date at which participant was admitted to acute care unit	Date of admission to acute care unit			Date or Date & Time	Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home/html). The date/time should be recorded to the level of the granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). (e.g. ICU, step-down, acute. Do not include Post-Anaesthetic Recovery (PAR). If more than one transfer, choose first date. Note: If Unknown, please document date of first clinical assessment on acute care unit [any type of assessment, e.g., RN, physician, etc.])		Adult;Pediatric	Supplemental	1.00	2014-05-29 12:14:49.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Free-Form Entry
C06002	Inpatient treatment total day number	InpatTreatmtTotlDyNum	Total number of days spent in the hospital from the date of injury until discharge from the last inpatient treatment phase (the date of inpatient discharge)	Total number of days spent in the hospital from the date of injury until discharge from the last inpatient treatment phase (the date of inpatient discharge	Total Days Hospitalized for Acute Care and Rehabilitation			Numeric Values	Do not count days when the patient is temporarily discharged pending readmission (between injury and final in participant rehabilitation discharge). If the patient is transferred to rehabilitation then this data element would be completed on the Rehab Admission/Discharge form (i.e. only needs to filled one time). Because patients may be discharged home between phases of care, or their initial care may have been delayed, it may not be possible to subtract the final date of discharge from the initial admission date to determine overall hospital length of stay. Therefore, the length of stay should be recorded separately by adding together the number of days spent in each hospital. This information should be obtained by examining the admission and discharge forms from each hospital.	DeVivo M, Biering-SØrensen F, Charlifue S, Noonan V, Post M, Stripling T, Wing P. International Spinal Cord Injury Core Data Set. Spinal Cord 2006 Sep;44(9):535-40.	Adult;Pediatric	Supplemental	3.00	2013-07-17 09:26:36.973	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Free-Form Entry
C19163	Acute care unit admission time	AcuteCareUnitAdmissionTime	The time at which participant was admitted to acute care unit	The time at which participant was admitted to acute care unit	Time of admission to acute care unit			Date or Date & Time	Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home/html). The date/time should be recorded to the level of the granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). (e.g., ICU, step-down, acute. Do not include Post-Anaesthetic Recovery (PAR) room. If more than one transfer, choose first time. Note: If Unknown, please document time of first clinical assessment on acute care unit [any type of assessment, e.g., RN, physician, etc.])		Adult;Pediatric	Supplemental	1.00	2014-05-29 12:24:55.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Free-Form Entry
C18153	Data unknown text	DataUnknwnTxt	The free-text field to Mark an "X" in to record if data are unknown or not available	The free-text field to Mark an "X" in to record if data are unknown or not availabl	Unknown			Alphanumeric			Adult;Pediatric	Supplemental	3.00	2013-07-17 09:26:36.973	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations	20	Free-Form Entry
C19166	Special care unit admittance indicator	SCUAddmittanceInd	Indicator for the admittance of participant to special care unit, including any Intensive Care or Step-Down Unit	Indicator for the admittance of participant to special care unit, including any Intensive Care or Step-Down Unit	Was the participant admitted to a Special Care Unit at any time during their stay? (including any Intensive Care or Step-Down Unit)	No;Yes	No;Yes	Alphanumeric	Including any Intensive Care or Step-Down Unit		Adult;Pediatric	Supplemental	1.00	2014-05-29 13:03:57.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Single Pre-Defined Value Selected
C19127	Facility name	FacilityName	Name of facility	Name of facility	Facility Name			Alphanumeric			Adult;Pediatric	Supplemental	1.00	2014-05-28 16:05:31.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations	4000	Free-Form Entry
C19167	Special care unit type	SCUTyp	Type of special care unit	Type of special care unit	Type of SCU	Intensive Care Unit;Step-Down Unit	Intensive Care Unit (ICU);Step-Down Unit (SDU)	Alphanumeric	Choose one.		Adult;Pediatric	Supplemental	1.00	2014-05-29 14:04:21.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Single Pre-Defined Value Selected
C19128	Facility arrival date	FacilityArrivalDate	Date when patient arrived at facility	Date when patient arrived at facility	Facility Arrival Date			Date or Date & Time	Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home/html). The date/time should be recorded to the level of the granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).		Adult;Pediatric	Supplemental	1.00	2014-05-28 16:06:44.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Free-Form Entry
C19168	Special care unit admission date	SCUAdmissionDate	Date at which participant was admitted to special care unit	Date at which participant was admitted to special care unit	Admission Date			Date or Date & Time	Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home/html). The date/time should be recorded to the level of the granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).		Adult;Pediatric	Supplemental	1.00	2014-05-29 14:15:25.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Free-Form Entry
C19129	Facility arrival time	FacilityArrivalTime	Time at which patient arrived at facility	Time at which patient arrived at facility	Facility Arrival Time			Date or Date & Time	Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home/html). The date/time should be recorded to the level of the granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). Record the earliest documented time. If participant transferred from acute at the same facility, please enter time of transfer to rehab.		Adult;Pediatric	Supplemental	1.00	2014-05-28 16:09:22.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Free-Form Entry
C19169	Special care unit discharge date	SCUDischargeDate	Date at which participant was discharged from special care unit	Date at which participant was discharged from special care unit	Discharge date			Date or Date & Time	Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home/html). The date/time should be recorded to the level of the granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).		Adult;Pediatric	Supplemental	1.00	2014-05-29 14:17:40.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Free-Form Entry
C19130	Facility discharge date	FacilityDischargeDate	Date when patient was discharged from facility	Date when the patient was discharged from the facility	Facility Discharge Date			Date or Date & Time	Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home/html). The date/time should be recorded to the level of the granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).		Adult;Pediatric	Supplemental	1.00	2014-05-28 16:11:26.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Free-Form Entry
C21632	Intensive care unit type	ICUTyp	Type of intensive care unit the participant/subject is in	Type of intensive care unit the participant/subject is i	ICU:	Adult ICU;ICU, unspecified;Pediatric ICU	Adult Intensive Care Unit (ICU);Intensive Care Unit (ICU), unspecified;Pediatric Intensive Care Unit (ICU)	Alphanumeric			Adult;Pediatric	Supplemental	3.00	2013-07-20 10:21:25.65	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Multiple Pre-Defined Values Selected
C19131	Facility discharge time	FacilityDischargeTime	The time at which the patient was discharged from the facility	The time at which the patient was discharged from the facility	Facility discharge time			Date or Date & Time	Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home/html). The date/time should be recorded to the level of the granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).		Adult;Pediatric	Supplemental	1.00	2014-05-28 16:13:42.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Free-Form Entry
C19132	Ventilator assistance utilization indicator	VentilatorAssistanceUtilznInd	Indicator for the utilization of ventilator assistance on discharge	Indicator for the utilization of ventilator assistance on discharge	Utilization of ventilator assistance on discharge	No;Unknown;Yes, 24 hours per day at discharge;Yes, less than 24 hours per day at discharge;Yes, unknown number of hours per day at discharge	No;Unknown;Yes, 24 hours per day at discharge;Yes, less than 24 hours per day at discharge;Yes, unknown number of hours per day at discharge	Alphanumeric	Ventilatory assistance includes but is not limited to mechanical ventilators, phrenic nerve stimulators, external negative pressure devices, and BiPAP. Do not include routine administration of oxygen, periodic IPPB administration, or CPAP.	Biering-SØrensen F, DeVivo MJ, Charlifue S, Chen Y, New PW, Noonan V, Post MWM, Vogel L. International Spinal Cord Injury Core Data Set (version 2.0)-including standardization of reporting. Spinal Cord. 2017;55(8):759-764.	Adult;Pediatric	Supplemental	1.00	2014-05-28 16:15:11.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Single Pre-Defined Value Selected
C19159	Care provision level	CareProvisionLevel	The level of care provided to participant by health care facility	The level fo care provided to participant by health care facility	Level of Care	Acute;Emergency;Emergency & Acute	Acute;Emergency;Emergency & Acute	Alphanumeric	Provided to participant by health care facility		Adult;Pediatric	Supplemental	1.00	2014-05-29 12:08:31.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Single Pre-Defined Value Selected
C19160	Discharge facility type	DischargeFacilityTyp	The type of facility to which the participant was discharged	The type of facility to which the participant was discharged	Place of discharge	Assisted living residence;Correctional institution;Deceased;Group living situation;Homeless;Hospital;Hotel or motel;Nursing home;Other unclassified;Private residence;Rehabilitation hospital;Unknown	Assisted living residence;Correctional institution;Deceased;Group living situation;Homeless;Hospital;Hotel or motel;Nursing home;Other unclassified;Private residence;Rehabilitation hospital;Unknown	Alphanumeric	Private residence: includes house, condominium, mobile home, apartment, or houseboat. Hospital: includes mental hospital or other acute care hospital for management of continuing medical issues after spinal cord injury-related care and/or rehabilitation is completed. Nursing home: includes skilled nursing facilities and institutions providing essentially long-term, custodial, chronic disease care. Assisted living residence: includes residential non-institutional locations in which some level of support for activities of daily living is provided. Group living situation: includes transitional living facility or any residence shared by non-family members. Correctional institution: includes prison, penitentiary, jail, correctional center, etc. Homeless: includes cave, car, tent, etc. Note: If the patient's place of residence does not fit into any of the above classifications, document it as "other, unclassified".	DeVivo M, Biering-SØrensen F, Charlifue S, Noonan V, Post M, Stripling T, Wing P. International Spinal Cord Injury Core Data Set. Spinal Cord 2006 Sep;44(9):535-40.<br /><br />Note: an additional option was added to the ISCOS International SCI Core Data Set (rehabilitation unit) as it may be applicable for SCI studies.	Adult;Pediatric	Supplemental	1.00	2014-05-29 12:12:43.0	Acute Admission/Discharge	Hospital/Care Management	Assessments and Examinations		Single Pre-Defined Value Selected