CDE Detailed Report | NINDS Common Data Elements

Disease: content
Subdomain Name: Demographics
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Displaying 1 - 8 of 8

CDE ID	CDE Name	Variable Name	Definition	Short Description	Question Text	Permissible Values	Description	Data Type	Disease Specific Instructions	Disease Specific Reference	Population	Classification (e.g., Core)	Version Number	Version Date	CRF Name (CRF Module / Guidance)	Subdomain Name	Domain Name	Size	Input Restrictions	External Id caDSR
C00007	Birth date	BirthDate	Date (and time, if applicable and known) the participant was born	Date (and time, if applicable and known) the participant was born	Date of Birth			Date or Date & Time	Record the date of birth to the level of precision known (e.g., month/day/year, year, month/year, etc). The preferred format for recording date is mm/dd/yyyy. 99/99/9999 can be used to indicate an unknown date.	No references available	Adult;Pediatric	Core	3.1	10/16/2024 8:51:14 AM	Demographics	Demographics	Participant Characteristics		Free-Form Entry	793
C00020	Ethnicity USA category	EthnUSACat	Category of ethnicity the participant most closely identifies with	Category of ethnicity the participant most closely identifies with	Ethnicity	Hispanic or Latino;Not Hispanic or Latino;Unknown;Not reported;Other, specify	A person of Cuban, Mexican, Puerto Rican, South or Central American, or other Spanish culture or origin, regardless of race. The term 'Spanish origin' can also be used in addition to 'Hispanic or Latino.';A person not meeting the definition for Hispanic or Latino.;Could not be determined or unsure;Not reported;Other, specify	Alphanumeric	Choose only one with which the participant/ subject most closely identifies.	The NIH Guidelines on Inclusion of Women and Minorities as Subjects in Clinical Research: The Office of Management and Budget Directive No. 15 defines the minimum standard of basic racial and ethnic categories. (http://grants.nih.gov/grants/funding/women_min/guidelines_update.htm)	Adult;Pediatric	Core	3.1	10/16/2024 8:51:17 AM	Demographics	Demographics	Participant Characteristics		Single Pre-Defined Value Selected	2192217
C00031	Race expanded category	RaceCat	Category of race(s) or region(s) the participant/subject most closely identifies with	Category of race(s) or region(s) the participant/subject most closely identifies with	Race	American Indian or Alaska Native;Black African;African-North;Black African American;Asian-East;Asian-West;Caucasian;Hawaiian;Other;Unknown	A person having origins in any of the original peoples of North and South America (including Central America), and who maintains tribal affiliation or community attachment.;Black African (for OMB purposes, this value is considered to be part of Black or African-American);African-North;Black African American (for OMB purposes, this value is considered to be part of Black or African-American);Asian-East;Asian-West;Caucasian;Hawaiian (for OMB purposes, this value is considered to be part of Native Hawaiian or Other Pacific Islander);Other;Unknown	Alphanumeric	Choose all those with which the participant/ subject identifies	No references available	Adult;Pediatric	Supplemental-Highly Recommended	3.00	2013-07-22 16:57:17.79	Demographics	Demographics	Participant Characteristics		Multiple Pre-Defined Values Selected
C00035	Gender type	GenderTyp	Self-reported gender of the participant/subject	Self-reported gender of the participant/subjec	Gender			Alphanumeric	Choose one	The NIH Guidelines on Inclusion of Women and Minorities as Subjects in Clinical Research: The Office of Management and Budget Directive No. 15 (http://grants.nih.gov/grants/funding/women_min/guidelines_update.htm)	Adult;Pediatric	Core	3.00	2013-08-28 16:08:00.453	Demographics	Demographics	Participant Characteristics		Single Pre-Defined Value Selected	2200604
C10675	Country origin maternal name	CntryOriginMaternalName	Mother's country or countries of origin	Mother's country or countries of origin	Mother's country of birth			Alphanumeric	List one or more countries based on the mother's self-report. Country data should be coded using the ISO 3166-1 alpha-2 codes prior to aggregation or sharing.	No references available	Adult;Pediatric	Supplemental	3.10	2023-03-15 16:59:46.0	Demographics	Demographics	Participant Characteristics	255	Free-Form Entry
C11136	Country origin paternal name	CntryOriginPaternalName	Father's country or countries of origin	Father's country or countries of origin	Father's country of birth			Alphanumeric	List one or more countries based on the father's self-report. Country data should be coded using the ISO 3166-1 alpha-2 codes prior to aggregation or sharing.	No references available	Adult;Pediatric	Supplemental	3.10	2023-03-15 17:00:22.0	Demographics	Demographics	Participant Characteristics	255	Free-Form Entry
C11138	Country of origin paternal ISO code	CntryOfOriginPaternalISOCode	The ISO 3166-1 alpha-2 code for the participant's father's country of origin	The ISO 3166-1 alpha-2 code for the participant's father's country of origi	Father's country of birth			Alphanumeric	See ISO 3166-1 alpha-2 codes (http://www.iso.org/iso/iso_3166_code_lists)	See ISO 3166-1 alpha-2 codes (http://www.iso.org/iso/iso_3166_code_lists)	Adult;Pediatric	Supplemental	3.00	2013-07-25 08:54:08.2	Demographics	Demographics	Participant Characteristics	255	Free-Form Entry
C11139	Country of origin maternal ISO code	CntryOfOriginMaternalISOCode	The ISO 3166-1 alpha-2 code for the participant's mother's country of origin	The ISO 3166-1 alpha-2 code for the participant's mother's country of origi	Mother's country of birth			Alphanumeric	See ISO 3166-1 alpha-2 codes (http://www.iso.org/iso/iso_3166_code_lists)	See ISO 3166-1 alpha-2 codes (http://www.iso.org/iso/iso_3166_code_lists)	Adult;Pediatric	Supplemental	3.00	2013-07-25 08:54:08.2	Demographics	Demographics	Participant Characteristics	255	Free-Form Entry