CDE Detailed Report
Disease: content
Subdomain Name: The International SCI Data Sets
CRF: welcome
Displaying 1 - 32 of 32
Subdomain Name: The International SCI Data Sets
CRF: welcome
Displaying 1 - 32 of 32
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C58645 | Oral laxative drops liquid type other text | OrlLaxtvDrpLqdTypOthrTxt | Text field for specifying other types of liquid oral laxatives | Text field for specifying other types of liquid oral laxative | Yes, other, specify: | Alphanumeric | Adult | Supplemental | 1.00 | 2019-11-05 10:20:05.0 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
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| C58644 | Diaper pad plug use past three month frequency category | DiaprPadPlgUsPst3MoFrqCat | Category of the frequency over the past three months that the subject/participant has had to use a diaper, pad, or plug for incontinence | Category of the frequency over the past three months that the subject/participant has had to use a diaper, pad, or plug for incontinenc | Need to wear pad or plug (within the last three months): | Daily use;Not every day but at least once per week;Not every week but at least once per month;Less than once per month;Never;Unknown | Daily use;Not every day but at least once per week;Not every week but at least once per month;Less than once per month;Never;Unknown | Alphanumeric |
Choose one. The need to wear a pad only for urinary incontinence should not be included. |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 1.00 | 2019-11-04 16:01:18.0 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C18786 | Defecation method bowel care procedure used past four week main other text | DefctnMthdBwlProcedUseMainOTH | The free-text field related to 'Defecation method bowel care procedure used past four week main type' specifying other text. Type of main defecation method and bowel care procedures used within the last four weeks | The free-text field related to 'Defecation method bowel care procedure used past four week main type' specifying other text. Type of main defecation method and bowel care procedures used within the last four week | Other, specify | Alphanumeric |
Choose one main method |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 4000 |
Free-Form Entry |
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| C06192 | Fecal incontinence past three month average frequency | FclInctPstThrMoAvgFreq | Average frequency of incontinence to solid or liquid stools within the last three months. Fecal incontinence is defined as involuntary passage of stools | Average frequency of incontinence to solid or liquid stools within the last three months. Fecal incontinence is defined as involuntary passage of stool | Frequency of fecal incontinence within the last three months | Never;Not applicable;Less than once per month;Not every day but at least once per week;Not every week but at least once per month;Once every month;One episode per day;Two or more episodes per day;Unknown | Never;Not applicable;Less than once per month;Not every day but at least once per week;Not every week but at least once per month;Once every month;One episode per day;Two or more episodes per day;Unknown | Alphanumeric |
Choose one. This element does not distinguish between incontinence to solid or liquid stools. In subjects with ileo- or colostomy leakage is considered as fecal incontinence. |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C18787 | Defecation method bowel care procedure used past four week supplementary other text | DefctnMthdBwlProcedUseSuppOTH | The free-text field related to 'Defecation method bowel care procedure used past four week supplementary type' specifying other text. Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every week | The free-text field related to 'Defecation method bowel care procedure used past four week supplementary type' specifying other text. Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every wee | Other, specify | Alphanumeric |
Choose all that apply as more than one supplementary method can be used |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 4000 |
Free-Form Entry |
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| C05106 | Surgical therapeutic procedure start date and time | SurgTherapuProcStartDateTime | Date (and time, if applicable and known) on which the surgical or therapeutic procedure started | Date (and time, if applicable and known) on which the surgical or therapeutic procedure started | Date performed | Date or Date & Time |
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult;Pediatric | Supplemental | 3.20 | 2022-08-18 17:27:56.0 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Free-Form Entry |
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| C06194 | Bowel function medication constipating agent type | BwlFUncMedConstAgtTyp | Type of medication affecting bowel function / constipating agents | Type of medication affecting bowel function / constipating agents | If yes, specify medication affecting bowel function / constipating agents | Anticholinergics;Narcotics;Other,specify | Anticholinergics;Narcotics;Other, specify | Alphanumeric |
For each medication type indicate if it was used. This element does not only include orally taken agents, patches, suppositories, injections, or laxatives. |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
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| C18790 | Perianal problem other text | PerianlProbOTH | The free-text field related to Perianal problem type' specifying other text. Type of problem with the anus found in the perianal space | The free-text field related to Perianal problem type' specifying other text. Type of problem with the anus found in the perianal space | Other, specify | Alphanumeric |
For each perianal problem indicate if it was experienced. Perianal problems may change with time and only those present within the last year should be noted. |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 4000 |
Free-Form Entry |
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| C05108 | Surgical or therapeutic procedure type | SurgTherapProcedurTyp | Type of surgical or therapeutic procedure received by the participant/subject | Type of surgical or therapeutic procedure received by the participant/subject | Surgical procedures on the gastrointestinal tract | Appendicectomy;Cholecystectomy;Colostomy;Ileostomy;Feeding tube placement;Fundoplication;Scoliosis surgery;Tendon release;Tympanostomy tubes;Tracheostomy;Airway surgery;Other surgery, specify;Unknown;Diagnostic;Anterior temporal lobectomy (ATL);Anterior temporal lobectomy plus (ATL+);Amygdalohippocampectomy;Lesionectomy;Lesionectomy plus (Lesionectomy +);Extratemporal resection (Topectomy);Multi-lobar resection;Hemispherectomy;Vagus nerve stimulation (VNS) surgery;Corpus callosotomy;Multiple subpial transection;Radiosurgery;Therapeutic brain stimulation;Other, specify;Appendicostomy;Appendectomy;Neurological surgery;Bony orthopedic surgery | Appendicectomy;Cholecystectomy;Colostomy;Ileostomy;Feeding tube placement;Fundoplication;Scoliosis surgery;Tendon release;Tympanostomy tubes;Tracheostomy;Airway surgery;Other surgery, specify;Unknown;Diagnostic surgery;Anterior temporal lobectomy (ATL);Anterior temporal lobectomy plus (ATL+);Amygdalohippocampectomy;Lesionectomy;Lesionectomy plus (Lesionectomy +);Extratemporal resection (Topectomy);Multi-lobar resection;Hemispherectomy;Vagus nerve stimulation (VNS) surgery;Corpus callosotomy;Multiple subpial transection;Radiosurgery;Therapeutic brain stimulation;Other, specify;Appendicostomy (antegrade colonic anema);Appendectomy;Neurological surgery;Bony orthopedic surgery | Alphanumeric |
For each type of surgical procedure on the gastrointestinal tract indicate if it was performed |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
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| C06195 | Constipating agent fecal incontinence drug last four week indicator | ConAgFeclInconLstFourWkInd | Indicator related to whether a constipating agent or drugs against fecal incontinence were used in the last four weeks | Indicator related to whether a constipating agent or drugs against fecal incontinence were used in the last four weeks | Medication affecting bowel function constipating agents within the last four weeks | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric |
For each medication type indicate if it was used within the last four weeks |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C19187 | Medication affecting bowel function constipating agent other text | MedAffBowlFxnConstAgntOTH | The free-text field related to 'Bowel function medication indicator' specifying other text. Indicator for medication affecting bowel function/constipating agents (within the last four weeks) | The free-text field related to 'Bowel function medication indicator' specifying other text. Indicator for medication affecting bowel function/constipating agents (within the last four weeks) | Other, specify | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2014-06-02 11:24:00.0 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 4000 |
Free-Form Entry |
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| C06000 | Site identifier number | SiteIDNum | Unique identification number given to the study site to distinguish the location where data is recorded | Unique identification number given to the study site to distinguish the location where data is recorde | Site | Alphanumeric |
The site identifiers or IDs should be assigned by the study. |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
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| C06196 | Oral laxative drops liquid type | OrlLaxDropsLiquidTyp | Type of drops or liquid oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation taken within the last four weeks | Type of drops or liquid oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation taken within the last four week | If yes, indicate which type of medication | Other, specify;Osmotic laxatives (drops);Irritant | Other, specify;Osmotic laxatives (drops);Irritant | Alphanumeric |
For each oral laxative type indicate if it was used. |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
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| C19188 | Oral laxative medication indicator | OralLaxativeMedicationInd | Indicator for oral laxative medication use (within the last four weeks) | Indicator for oral laxative medication use (within the last four weeks) | Oral laxatives (within the last four weeks) | No;Yes;Unknown | No;Yes;Unknown | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2014-06-02 11:39:57.0 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C06005 | Data collected date and time | DataCollDateTime | Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed | Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performe | Date Performed | Date or Date & Time |
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 21:00:23.88 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Free-Form Entry |
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| C06198 | Perianal problem type | PerianlProbTyp | Type of problem with the anus found in the perianal space | Type of problem with the anus found in the perianal space | Perianal problems within the last year | Hemorrhoids;Perianal sores;Fissures;Other, specify;Unknown;Rectal prolapse;None | Hemorrhoids;Perianal sores;Fissures;Other, specify;Unknown;Rectal prolapse;None | Alphanumeric |
For each perianal problem indicate if it was experienced. Perianal problems may change with time and only those present within the last year should be noted. |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
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| C19189 | Oral laxative tablets capsules granulates other text | OralLaxTabCapGrnlOTH | The free-text field related to 'Oral laxative tablets capsules granulates type' specifying other text | The free-text field related to 'Oral laxative tablets capsules granulates type' specifying other tex | Other, specify | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2014-06-02 13:19:50.0 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 4000 |
Free-Form Entry |
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| C06025 | Surgical or therapeutic procedure performed indicator | SurgTherProcedurPerfInd | Indicator whether the participant/subject has undergone the selected surgical procedure | Indicator whether the participant/subject has undergone the selected surgical procedure | Surgical procedures on the gastrointestinal tract | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric |
For each type of surgical procedure on the gastrointestinal tract indicate if it was ever performed |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C06199 | Perianal problem experienced last year indicator | PerianlProbExpLastYrInd | Indicator of whether the perianal problem was experienced within the last year | Indicator of whether the perianal problem was experienced within the last year | Perianal problems within the last year | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric |
Choose one. For each perianal problem indicate if it was experienced within the last year. |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C19247 | Subject ID | SubIDNam | Subject identification ID | Subject identification ID | Subject | Alphanumeric |
The participant or subject identifiers or IDs should be assigned by the study. |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult;Pediatric | Supplemental | 1.00 | 2014-06-05 13:10:49.0 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
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| C06173 | Gastrointestinal anal sphincter dysfunction unrelate SCI indicator | GasAnlSphDysfncUnrelSClInd | Indicator of any gastrointestinal or anal sphincter dysfunction unrelated to SCI. This is gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI | Indicator of any gastrointestinal or anal sphincter dysfunction unrelated to SCI. This is gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SC | Gastrointestinal or anal sphincter dysfunction unrelated to the spinal cord lesion | Yes, specify;No;Unknown | Yes, specify;No;Unknown | Alphanumeric |
Choose one |
Jones R, Lydeard S. Irritable bowel syndrome in the general population. Br Med J 1992; 304: 87-90. Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C18140 | Surgical or therapeutic gastrointestinal procedure other text | SurgTherGIProcedurOthTxt | Text to describe another surgical procedure on the gastrointestinal tract that was performed | Indicator if other surgical procedure on the gastrointestinal tract is unknown | Other surgery, specify | Alphanumeric | No references available | Adult;Pediatric | Supplemental | 3.10 | 2018-07-26 12:13:12.0 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
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| C21668 | ICD-10-CM code | SurgTherapuProcICD10CMCode | Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure | Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure | Surgical procedures on the gastrointestinal tract | Other, specify | Other specify | Alphanumeric |
If the data will be shared, code the surgical procedure using ICD-10-CM |
http://www.cdc.gov/nchs/icd/icd10cm.htm#icd2016 | Adult;Pediatric | Supplemental | 1.00 | 2013-08-28 16:08:00.453 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
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| C06187 | Defecation method bowel care procedure used past four week main type | DefctnMthdBwlProcedUseMainTyp | Type of main defecation method and bowel care procedures used within the last four weeks | Type of main defecation method and bowel care procedures used within the last four week | Main | Normal defecation;Straining/bearing down to empty;Digital ano-rectal stimulation;Suppositories;Digital evacuation;Mini enema;Enema;Colostomy;Sacral anterior root stimulation;Other, specify;Unknown | Normal defecation;Straining/bearing down to empty;Digital ano-rectal stimulation;Suppositories;Digital evacuation;Mini enema (Clysma = 150 mL);Enema (> 150 mL);Colostomy;Sacral anterior root stimulation;Other method, specify;Unknown | Alphanumeric |
Choose one main method |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C18141 | Defecation method bowel care procedure other text | DefctnMthdBwlProcedOthTxt | Text describing the other defecation method and bowel care procedure used within the last four weeks | Indicator if other defecation method and bowel care procedure is unknown | Other method, specify | Alphanumeric | No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
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| C21669 | Surgical therapeutic procedure ICD-10-CM other text | SurgTherapuProcICD10CMOthTxt | The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure | The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure | Other, specify | Alphanumeric |
If the data will be shared, code the surgical procedure using ICD-10-CM |
International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for permissible values: http://www.cdc.gov/nchs/icd/icd10cm.htm#icd2016 | Adult;Pediatric | Supplemental | 1.00 | 2014-05-27 13:34:46.0 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 4000 |
Free-Form Entry |
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| C06188 | Defecation method bowel care procedure used past four week supplementary type | DefctnMthdBwlProcedUseSuppTyp | Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every week | Type or types of supplemental defecation methods and bowel care procedures used within the last four weeks. Supplementary methods should be performed at least once every wee | Supplementary | Normal defecation;Straining/bearing down to empty;Digital ano-rectal stimulation;Suppositories;Digital evacuation;Mini enema;Enema;Sacral anterior root stimulation;Other, specify;Unknown | Normal defecation;Straining/bearing down to empty;Digital ano-rectal stimulation;Suppositories;Digital evacuation;Mini enema (Clysma = 150 mL);Enema (> 150 mL);Sacral anterior root stimulation;Other method, specify;Unknown | Alphanumeric |
Choose all that apply as more than one supplementary method can be used |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
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| C18765 | Surgical or therapeutic procedure other text | SurgTherapProcedurOTH | The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject | The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject | Other, specify | Alphanumeric |
For each type of surgical procedure on the gastrointestinal tract indicate if it was performed |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult;Pediatric | Supplemental | 1.00 | 2014-05-27 13:34:46.0 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 4000 |
Free-Form Entry |
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| C53047 | Oral laxative tablet capsule granulate type | OrlLaxTabCapsGrnlTyp | Type of tablets, capsules or granulate oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipation | Type of tablets, capsules or granulate oral laxative, a medicine taken by mouth to encourage bowel movements to relieve constipatio | If yes, indicate which type of medication | Bulking/osmotic;Irritant;Prokinetics/chloride channel activators;Other, specify | Bulking/osmotic;Irritant;Prokinetics/chloride channel activators;Other, specify | Alphanumeric |
For each oral laxative type indicate if it was used. |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Multiple Pre-Defined Values Selected |
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| C06190 | Defecation past four week average duration range | DefctnPstFourWkAvgDurRang | Range for the average time required for each defecation within the last four weeks. The time given is from first transferring to the toilet or commode until end of defecation and transfer to wheel chair or moving from the toilet. If bladder emptying, body washing, shaving etc is also performed while sitting at the toilet time for this is subtracted. For individuals performing bowel management while lying in the bed time required is from beginning to end of bowel management not including time for bladder management, body washing etc | Range for the average time required for each defecation within the last four weeks | Average time required for defecation within the last four weeks | 31-60 minutes;More than 60 minutes;Unknown;0–5 minutes;6–10 minutes;11–20 minutes;21–30 minutes | 31-60 minutes;More than 60 minutes;Unknown;0–5 minutes;6–10 minutes;11–20 minutes;21–30 minutes | Alphanumeric |
Choose one |
Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 Krogh K, Christensen P, Sabroe S, Laurberg S. Neurogenic bowel dysfunction score. Spinal Cord 2006; 44: 62 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C18785 | Gastrointestinal anal sphincter dysfunction unrelate SCI specify text | GasAnlSphDysfncUnrelSClST | The free-text field related to 'Gastrointestinal anal sphincter dysfunction unrelate SCI indicator'. Gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SCI | The free-text field related to 'Gastrointestinal anal sphincter dysfunction unrelate SCI indicator'. Gastrointestinal or anal sphincter dysfunction concomitant and thus unrelated to changes in bowel function due to SC | Yes, specify | Alphanumeric | Jones R, Lydeard S. Irritable bowel syndrome in the general population. Br Med J 1992; 304: 87-90. Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4 | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
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| C06191 | Defecation past four week average frequency | DefctnPstFourWkAvgDurFreq | Average frequency of defecation within the last four weeks | Average frequency of defecation within the last four week | Frequency of defecation within the last four weeks | Three times or more per day;Twice daily;Once daily;Not daily but more than twice every week;Twice every week;Once every week;Less than once every week, but at least once within the last four weeks;No defecation within the last four weeks;Not applicable;Unknown | Three times or more per day;Twice daily;Once daily;Not daily but more than twice every week;Twice every week;Once every week;Less than once every week, but at least once within the last four weeks;No defecation within the last four weeks;Not applicable;Unknown | Alphanumeric |
Choose one. This element does not distinguish between spontaneous or assisted defecation. Not applicable can be used i.e. in subjects with ileo- or colostomy. |
Drossman DA, Sandler RS, McKee DC, Lovitz AJ. Bowel patterns among subjects not seeking health care. Gastroenterology 1982; 83: 529-534. Krogh K, Christensen P, Sabroe S, Laurberg S. Neurogenic bowel dysfunction score. Spinal Cord 2006; 44: 625. Krogh K, Perkash I, Stiens SA, Biering-SØrensen F. International bowel function basic spinal cord injury data set. Spinal Cord. 2009 Mar;47(3):230-4. | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Bowel Function Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
