CDE Detailed Report | NINDS Common Data Elements

Disease: content
Subdomain Name: Sleep
CRF: welcome

Displaying 1 - 8 of 8

CDE ID	CDE Name	Variable Name	Definition	Short Description	Question Text	Permissible Values	Description	Data Type	Disease Specific Instructions	Disease Specific Reference	Population	Classification (e.g., Core)	Version Number	Version Date	CRF Name (CRF Module / Guidance)	Subdomain Name	Domain Name	Input Restrictions
C20816	Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale	PROMISDifficultFallAsleepScale	The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS	In the past 7 days I had difficulty falling asleep.	1;2;3;4;5	Not at all;A little bit;Somewhat;Quite a bit;Very much	Numeric Values	Part of Neuro-QOL Adult Bank - Sleep Disturbance	"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Disturbance Sleep125	Adult	NeuroRehab Supplemental-Highly Recommended	1.00	2015-05-21 08:50:35.0	Neuro-QOL Adult Bank - Sleep Disturbance	Sleep	Outcomes and End Points	Single Pre-Defined Value Selected
C20822	Patient-Reported Outcome Measurement Information System (PROMIS) - Bedtime trouble thought assessment past week scale	PROMISTrblStpThghtBedtimeScale	The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	The scale which represents how often the participant had trouble stopping his/her thoughts at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS	In the past 7 days I had trouble stopping my thoughts at bedtime.	1;2;3;4;5	Not at all;A little bit;Somewhat;Quite a bit;Very much	Numeric Values	Part of Neuro-QOL Adult Bank - Sleep Disturbance	"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Disturbance Sleep139	Adult	NeuroRehab Supplemental-Highly Recommended	1.00	2015-05-21 08:50:35.0	Neuro-QOL Adult Bank - Sleep Disturbance	Sleep	Outcomes and End Points	Single Pre-Defined Value Selected
C20852	Patient-Reported Outcome Measurement Information System (PROMIS) - trouble stay awake during day past week scale	PROMISTrblStayAwakeInDayScale	The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS)	The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS	In the past 7 days I was sleepy during the daytime.	1;2;3;4;5	Not at all;A little bit;Somewhat;Quite a bit;Very much	Numeric Values	Part of Neuro-QOL Adult Bank - Sleep Disturbance	"Copyright 2008-2012 PROMIS Health Organization and PROMIS Cooperative Group" PROMIS Item Bank v 1.0 - Sleep Related Impairment Sleep44	Adult	NeuroRehab Supplemental-Highly Recommended	1.00	2015-05-21 09:54:31.0	Neuro-QOL Adult Bank - Sleep Disturbance	Sleep	Outcomes and End Points	Single Pre-Defined Value Selected
C21288	Quality of Life - Force awake morning past week scale	QoLForceAwakeMorningScl	The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbance	The scale representing how often the participant had to force himself/herself to get up in the morning in the past 7 days, as part of Neuro-QOL Sleep Disturbanc	In the past 7 days I had to force myself to get up in the morning.	5;4;3;2;1	always;Often;Sometimes;Rarely;Never	Numeric Values	Part of Neuro-QOL Adult Bank - Sleep Disturbance		Adult	NeuroRehab Supplemental-Highly Recommended	1.00	2015-07-17 09:23:23.0	Neuro-QOL Adult Bank - Sleep Disturbance	Sleep	Outcomes and End Points	Single Pre-Defined Value Selected
C21289	Quality of Life - Bad dream sleep trouble past week scale	QoLBadDreamSleepTroubleScl	The scale representing how often the participant had trouble sleeping because of dreams in the past 7 days, as part of Neuro-QOL Sleep Disturbance	The scale representing how often the participant had trouble sleeping because of dreams in the past 7 days, as part of Neuro-QOL Sleep Disturbanc	In the past 7 days I had trouble sleeping because of bad dreams.	5;4;3;2;1	always;Often;Sometimes;Rarely;Never	Numeric Values	Part of Neuro-QOL Adult Bank - Sleep Disturbance		Adult	NeuroRehab Supplemental-Highly Recommended	1.00	2015-07-17 09:23:23.0	Neuro-QOL Adult Bank - Sleep Disturbance	Sleep	Outcomes and End Points	Single Pre-Defined Value Selected
C21290	Quality of Life - Awake pain past week scale	QoLAwakePainScl	The scale representing how often pain woke the participant up in the last 7 days, as part of Neuro-QOL Sleep Disturbance	The scale representing how often pain woke the participant up in the last 7 days, as part of Neuro-QOL Sleep Disturbanc	In the past 7 days pain woke me up.	5;4;3;2;1	always;Often;Sometimes;Rarely;Never	Numeric Values	Part of Neuro-QOL Adult Bank - Sleep Disturbance		Adult	NeuroRehab Supplemental-Highly Recommended	1.00	2015-07-17 09:23:23.0	Neuro-QOL Adult Bank - Sleep Disturbance	Sleep	Outcomes and End Points	Single Pre-Defined Value Selected
C21291	Quality of Life - Cancel friend activity bad sleep past week scale	QoLCancelFriendActvtBadSlpScl	The scale representing how often the participant avoided or cancelled activities with their friends because they were tired from having a bad night's sleep in the past 7 days, as part of Neuro-QOL Sleep Disturbance	The scale representing how often the participant avoided or cancelled activities with their friends because they were tired from having a bad night's sleep in the past 7 days, as part of Neuro-QOL Sleep Disturbanc	In the past 7 days I avoided or cancelled activities with my friends because I was tired from having a bad night's sleep.	5;4;3;2;1	always;Often;Sometimes;Rarely;Never	Numeric Values	Part of Neuro-QOL Adult Bank - Sleep Disturbance		Adult	NeuroRehab Supplemental-Highly Recommended	1.00	2015-07-17 09:23:23.0	Neuro-QOL Adult Bank - Sleep Disturbance	Sleep	Outcomes and End Points	Single Pre-Defined Value Selected
C21292	Quality of Life - Middle night physical tension past week scale	QoLMddleNightPhysiclTensionScl	The scale representing how often the participant felt physically tense during the middle of the night or early morning hours in the past 7 days, as part of Neuro-QOL Sleep Disturbance	The scale representing how often the participant felt physically tense during the middle of the night or early morning hours in the past 7 days, as part of Neuro-QOL Sleep Disturbanc	In the past 7 days I felt physically tense during the middle of the night or early morning hours.	5;4;3;2;1	always;Often;Sometimes;Rarely;Never	Numeric Values	Part of Neuro-QOL Adult Bank - Sleep Disturbance		Adult	NeuroRehab Supplemental-Highly Recommended	1.00	2015-07-17 09:23:23.0	Neuro-QOL Adult Bank - Sleep Disturbance	Sleep	Outcomes and End Points	Single Pre-Defined Value Selected