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Childhood Quality of Life in Epilepsy (CHEQOL)
Availability
Please click here for more information: Childhood Quality of Life in Epilepsy (CHEQOL)
Classification
Supplemental: Epilepsy (for pediatric quality of life studies, 8-15 years)
Short Description of Instrument
Children are asked to respond twice to 25 items to how true the statement is for them. There are 5 subscales: Interpersonal/ Social Consequences; Worries and Concerns; Intrapersonal/Emotional; Secrecy and Concealment; and Quest for Normality.
Comments/Special Instructions
There is also a parent proxy scale available.
Rationale/Justification
This instrument is recommended when the investigator desires to obtain ratings of quality of life from children ages 8 to 15 years.
Place disease-specific rationale/justification information here (include Advantage(s) and Limitation(s) if applicable.
Psychometric properties: Chronbach's a showed internal consistencies of 0.7 or above for four subscales in each measure.
Test-retest reliability for children 8 and older was satisfactory.
Face and content validity of the measures were confirmed by the fact that all the items were identified and discussed as HRQL issues by a sample of the population of children with epilepsy and their parents in specifically designed focus groups. (Ronen et al 1999)
References
Ronen GM, Ronen, DL, Streiner, PR, & the Canadian Pediatric Epilepsy Network. Health-related Quality of Life in Children with Epilepsy: Development and Validation of Self-report and Parent Proxy Measures. Epilepsia, 2003;44:598-612.
 
Ronen GM, Rosenbaum P, Law M, Streiner DL. Health-related quality of life in childhood epilepsy: the results of children's participation in identifying the components. Dev Med Child Neurol. 1999;41(8):554-559.

 

Document last updated July 2019
Recommended Instrument for
Epilepsy