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Supplemental: Cerebral Palsy (CP)
Short Description of Instrument

The KIDSCREEN instruments assess children and adolescent subjective health and well-being (health-related quality of life, HRQOL). They were developed as self- report measures applicable for healthy and chronically ill children and adolescents aged from 8 to 18 years.

Comments/Special Instructions
Not specific to children with CP. Limited age range. Does have both proxy/self report versions.

The KIDSCREEN-52 instrument measures 10 HRQoL dimensions: Physical (5 items), Psychological Well-being (6 items), Moods and Emotions (7 items), Self-Perception (5 items), Autonomy (5 items), Parent Relations and Home Life (6 items), Social Support and Peers (6 items), School Environment (6 items), Social Acceptance (Bullying) (3 items), Financial Resources (3 items). Scores can be calculated for each of the ten dimensions, t-values and percentages will be available for each country stratified by age, gender and socio-economic status.

Evaluated in only one study using Rasch analysis with data from children with CP. Evidence does support structural validity, construct validity, some evidence has been found for internal consistency and test-retest reliability.
The KIDSCREEN Group. The KIDSCREEN-52: Child Public Health 2011 [cited 2016 29 June]. Available from:
Davis E, Shelly A, Waters E, Davern M. Measuring the quality of life of children with cerebral palsy: comparing the conceptual differences and psychometric properties of three instruments. Dev Med Child Neurol. 2010;52(2):174-180.
Erhart M, Ravens-Sieberer U, Dickinson HO, Colver A. Rasch measurement properties of the KIDSCREEN quality of life instrument in children with cerebral palsy and differential item functioning between children with and without cerebral palsy. Value Health. 2009;12(5):782-792.


Document last updated July 2019