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Patient Determined Disease Steps
Please visit the NMSS website for more information: Please click here for the ?National MS Society website.
The Patient Determined Disease Steps (PDDS) is also available in the original journal article where it was first published, Hohol, et al (1995).
Supplemental: Multiple Sclerosis (MS)
Short Description of Instrument
Construct measured: Motor function.
Generic vs. disease specific: Disease specific.
Means of administration: Self administered.
Intended respondent: Patient.
# of items: 9.
# of subscales and names of sub-scales: N/A.
# of items per sub-scale: N/A.
Comments/Special Instructions
Scoring: The PPDS was used to categorize participants into three groups according to level of disability: a score of 0-2 indicated mild disability, respresented by sensory symptoms but no limitations in walking; a score of 3 to 5 indicated moderate disability, represented by symptoms that interfered with daily activities, especially walking, and need for a cane; an a score of 6 to 8 indicated severe disability, represented by the need for bilateral support, wheelchair use or being bedridden.
Background: The PDDS is an ordinal clinical rating scale developed by Hohol et al (1995) to provide a straightforward assessment of functional disability in MS primarily based on ambulation. It was designed to aid in determining when to implement therapy and as a way to monitor treatment response. Scores range from 0 (normal) to 6 (essentially confined to wheelchair). There is a separate category for patients who are not classifiable.
Gulick E., Namey, M., Halper, J. Monitoring My Multiple Sclerosis: A Patient-Adminitered Health Assessment Scale. Int J MS Care.
Vollmer TI, Ni W, Stanton S, Hadjimichael O. The NARCOMS patient registry: a resource for investigators. Int J MS Care. 1999;1:12–15.
Kurtzke JF. Neurologic impairment in multiple sclerosis and the Disability Status Scale. Acta Neurol Scand. 1970;46:493–512.
Strengths/Weaknesses: The rating itself is simple and brief. However, the information needed to arrive at a rating generally requires a medical history and both general physical and neurological examinations, including having the patient walk 25 feet.
Psychometric Properties: The Patient-Determined Disease Steps (PDDS) content validity is indicated by consistency of the items with the Expanded Disability Status Scale (EDSS). Construct validity is indicated by a correlation between the PDDS and EDDS scales of 0.96.
Administration: The Patient Determined Disease Steps (PDDS) scale is a self administered Disability assessment for patients with MS. Administration time will vary depending upon the ability of the patient. Total administration time should be approximately 1-5 minutes. Although the PDDS itself can be rated in a few minutes, the medical history and neurological examination that may be needed to make the ratings can take anywhere from 15 minutes to a half-hour.