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Functional Assessment of Multiple Sclerosis (FAMS)

The instrument is freely available here: Please click here for the Functional Assessment in Multiple Sclerosis

Supplemental: Multiple Sclerosis (MS)
Short Description of Instrument
Construct measured: Mobility and quality of life
Generic vs. disease specific: Disease specific
Means of administration: Self administered
Intended respondent: Patient
# of items: 59
# of subscales and names of sub-scales: 6 – mobility, symptoms, emotional well being/depression, general contentment, thinking/fatigue and family/social well being
# of items per sub-scale: Varies
Comments/Special Instructions
Scoring: Unscored items are retained for their clinical and empirical value. A Likert-type 5-point scale (ranging from "not at all" to "very much") produces a score between 0 and 4 for each scored question (44 of the 59 items).
Background: The FAMS is a patient-completed disease specific questionnaire regarding perceptions of mobility and quality of life in people.
Strengths/ Weaknesses: The FAMS was created on an existing measure—the Functional Assessment of Cancer Therapy: General Questionnairre with additional items generated by experts and interviews with patients.
Psychometric Properties: There is good internal consistency reliability for the subscales of the MSQLI, with the lowest alpha being 0.67 (for social functioning on SF-36). Other coefficients range from 0.78 (BWCS) to 0.97 (MSSS). Test- retest reliability on the SF-36 ranges from 0.
Administration: Self-completion by the patient
Cella et al. Validation of the Functional Assessment of Multiple Sclerosis quality of life instrument. Neurology 1996;47: 129-139