CDE Detailed Report

Disease: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Sub-Domain: Activities of Daily Living/Performance
CRF: Physical Functioning and Activities of Daily Living

Displaying 51 - 90 of 90
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C57493 Day per week for activity count DyPrWkFrActCt Count of days per week an activity was completed Count of days per week an activity was completed Days/Week Numeric Values Adult Exploratory 1.00 2018-01-08 13:47:52.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

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1 7 Days per week
C57599 Before illness engage exercise indicator BfrIllnsEngExrcsInd Indicator of whether or not the individual engaged in exercise before his/her illness Indicator of whether or not the individual engaged in exercise before his/her illness Did you engage in exercise? No;Yes No;Yes Alphanumeric Adult Exploratory 1.00 2018-01-09 10:51:44.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57360 Activity affect by fatigue status ActAffByFtgStatus Status of how an individual's activities have been affected by tiredness, weariness or fatigue Status of how an individual's activities have been affected by tiredness, weariness or fatigue Have your activities (personal, at home, social, educational, and/or occupational) been affected by this tiredness, weariness or fatigue? Not at all;A little, but I can usually still do everything or most things normally;I have needed to substantially reduce at least some activities;I can no longer do at least some of the activities I used to do;I can no longer do most of the activities I used to do Not at all;A little, but I can usually still do everything or most things normally;I have needed to substantially reduce at least some activities;I can no longer do at least some of the activities I used to do;I can no longer do most of the activities I used to do Alphanumeric Adult Exploratory 1.00 2018-01-05 12:43:09.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57545 Spent bed hour day 4 before test duration SpntBdHrDy4BfrTstDur Duration of test time spent (in hours) in bed on day 4 before recording date start Duration of test time spent (in hours) in bed on day 4 before recording date start How many hours did you spend in bed: Day 4 before Numeric Values Adult Exploratory 1.00 2018-01-08 14:19:14.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

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0 24 hours
C57291 Health problem interfere eating bad day scale HlthPrbIntEatBdDyScl Scale related to how much an individual's health problems interfere with his/her eating on a bad day Scale related to how much an individual's health problems interfere with his/her eating on a bad day Eating (On bad days): 1;2;3;4;5 Not at all;a little;Some;A lot;completely Numeric Values Adult Exploratory 1.00 2018-01-05 10:06:58.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57462 Daily activity light bad day duration DlyActLgtBdDyDur Duration of how long an individual spends doing light activities (example, use computer at desk, microwave a meal, pay bills) (in hours) on a bad day Duration of how long an individual spends doing light activities (example, use computer at desk, microwave a meal, pay bills) (in hours) on a bad day light activity (example, use computer at desk, microwave a meal, pay bills): Bad Day Numeric Values Adult Exploratory 1.00 2018-01-08 10:20:44.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

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Hours
C57556 Spent upright activity hours day 3 before test duration SpntUprgActHrDy3BfrTstDur Duration of test time spent in upright activities (in chair or standing) (in hours) on day 3 before recording date start Duration of test time spent in upright activities (in chair or standing) (in hours) on day 3 before recording date start How many hours did you spend in upright activities (in chair or standing)?: Day 3: Numeric Values Adult Exploratory 1.00 2018-01-08 14:19:14.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

0 24 hours
C57324 Health problem interfere exercising good day scale HlthPrbIntExrGdDyScl Scale related to how much an individual's health problems interfere with his/her exercising on a good day Scale related to how much an individual's health problems interfere with his/her exercising on a good day Exercising (On good days): 1;2;3;4;5 Not at all;a little;Some;A lot;completely Numeric Values Adult Exploratory 1.00 2018-01-05 10:06:58.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57501 Actual recording start date ActlRcrdngStrtDate Date in which actual recording started Date in which actual recording started Survey of Activity Level Before and After Two-Day Cardiopulmonary Exercise Tests- Actual date recording started: Date or Date & Time Adult Exploratory 1.00 2018-01-08 14:07:07.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

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C57600 Before illness exercise type text BfrIllnssExcrsTypTxt Text field related to the type of exercise the individual engaged in prior to his/her illness Text field related to the type of exercise the individual engaged in prior to his/her illness If yes, what type? Alphanumeric Adult Exploratory 1.00 2018-01-09 09:59:21.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points 255

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C57368 Course of illness status CrseOfIllnStatus Status of how the individual would describe the status of his/her illness Status of how the individual would describe the status of his/her illness How would you describe the course of your illness? Constantly getting worse;Constantly improving;No change;Relapsing and remitting;Fluctuating;No symptoms, I am not ill or have recovered completely Constantly getting worse;Constantly improving;No change;Relapsing and remitting (good periods with no or few symptoms, and bad periods);Fluctuating (symptoms vary a lot but never disappear);No symptoms, I am not ill or have recovered completely Alphanumeric Adult Exploratory 1.00 2018-01-05 13:05:34.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57546 Spent bed sleep hours day 5 before test duration SpntBdSlpHrDy5BfrTstDur Duration of test time spent sleeping (in hours) in bed on day 5 before recording date start Duration of test time spent sleeping (in hours) in bed on day 5 before recording date start Of hours in bed, how many were sleeping?: Day 5: Numeric Values Adult Exploratory 1.00 2018-01-08 14:19:14.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

0 24 hours
C57295 Health problem interfere working average scale HlthPrbIntWrkAvgScl Scale related to how much an individual's health problems interfere with his/her working on average Scale related to how much an individual's health problems interfere with his/her working on average Working (On average): 1;2;3;4;5 Not at all;a little;Some;A lot;completely Numeric Values Adult Exploratory 1.00 2018-01-05 10:06:58.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57463 Daily activity moderate good day duration DlyActMdGdDyDur Duration of how long an individual spends doing moderate activities (example, shopping) (in hours) on a good day Duration of how long an individual spends doing moderate activities (example, shopping) (in hours) on a good day moderate activity (example, shopping): Good Day Numeric Values Adult Exploratory 1.00 2018-01-08 10:20:44.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

Hours
C57557 Spent upright activity hours day 2 before test duration SpntUprgActHrDy2BfrTstDur Duration of test time spent in upright activities (in chair or standing) (in hours) on day 2 before recording date start Duration of test time spent in upright activities (in chair or standing) (in hours) on day 2 before recording date start How many hours did you spend in upright activities (in chair or standing)?: Day 2: Numeric Values Adult Exploratory 1.00 2018-01-08 14:19:14.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

0 24 hours
C57326 Health problem interfere exercising bad day scale HlthPrbIntExrBdDyScl Scale related to how much an individual's health problems interfere with his/her exercising on a bad day Scale related to how much an individual's health problems interfere with his/her exercising on a bad day Exercising (On bad days): 1;2;3;4;5 Not at all;a little;Some;A lot;completely Numeric Values Adult Exploratory 1.00 2018-01-05 10:06:58.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57517 Spent bed hour day 7 before test duration SpntBdHrDy7BfrTstDur Duration of test time spent (in hours) in bed on day 7 before recording date start Duration of test time spent (in hours) in bed on day 7 before recording date start How many hours did you spend in bed: Day 7 before Numeric Values Adult Exploratory 1.00 2018-01-08 14:19:14.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

0 24 hours
C57628 Prior to illness exercise intensity type PrrToIllnsExrcsIntnsTyp Type of intensity of the exercise the individual has engaged in prior to illness Type of intensity of the exercise the individual has engaged in prior to illness How intense? light;moderate;hard light (e.g., light weights, yoga, regular walking);moderate (e.g., vigorous walking or light jogging, moderate cycling);hard (e.g., running, fast-paced sports, heavy weight lifting) Alphanumeric Adult Exploratory 1.00 2018-01-09 10:04:33.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57369 Live with help indicator LvWthHlpInd Indicator of whether the individual lives with someone who can take care of him/her Indicator of whether the individual lives with someone who can take care of him/her Do you live with someone who can take care of you? No;Yes No;Yes Alphanumeric Adult Exploratory 1.00 2018-01-05 13:15:27.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57547 Spent bed sleep hours day 4 before test duration SpntBdSlpHrDy4BfrTstDur Duration of test time spent sleeping (in hours) in bed on day 4 before recording date start Duration of test time spent sleeping (in hours) in bed on day 4 before recording date start Of hours in bed, how many were sleeping?: Day 4: Numeric Values Adult Exploratory 1.00 2018-01-08 14:19:14.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

0 24 hours
C57298 Health problem interfere working good day scale HlthPrbIntWrkGdDyScl Scale related to how much an individual's health problems interfere with his/her working on a good day Scale related to how much an individual's health problems interfere with his/her working on a good day Working (On good days): 1;2;3;4;5 Not at all;a little;Some;A lot;completely Numeric Values Adult Exploratory 1.00 2018-01-05 10:06:58.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57464 Daily activity moderate bad day duration DlyActMdBdDyDur Duration of how long an individual spends doing moderate activities (example, shopping) (in hours) on a bad day Duration of how long an individual spends doing moderate activities (example, shopping) (in hours) on a bad day moderate activity (example, shopping): Bad Day Numeric Values Adult Exploratory 1.00 2018-01-08 10:20:44.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

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Hours
C57558 Spent awake engage activity mental clarity 3 day before test duration SpntAwkEngActMnClr3DyBfTstDur Duration of test time spent by an individual while awake engaging in activities that required mental clarity on day 3 before recording date start Duration of test time spent by an individual while awake engaging in activities that required mental clarity on day 3 before recording date start How many hours that you were awake did you engage in activities that required mental clarity?: Day 3: Numeric Values Adult Exploratory 1.00 2018-01-08 14:19:14.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

0 24 hours
C57329 Health problem interfere socializing average scale HlthPrbIntSocAvgScl Scale related to how much an individual's health problems interfere with his/her socializing on average Scale related to how much an individual's health problems interfere with his/her socializing on average Socializing (On average): 1;2;3;4;5 Not at all;a little;Some;A lot;completely Numeric Values Adult Exploratory 1.00 2018-01-05 10:06:58.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57519 Spent bed hours day 6 before test duration SpntBdHrDy6BfrTstDur Duration of test time spent (in hours) in bed on day 6 before recording date start Duration of test time spent (in hours) in bed on day 6 before recording date start How many hours did you spend in bed: Day 6 before Numeric Values Adult Exploratory 1.00 2018-01-08 14:19:14.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

0 24 hours
C57629 Prior exercise frequency PrrExrcsFreq Frequency of the prior exercise the individual has engaged in (days/week on average) Frequency of the prior exercise the individual has engaged in (days/week on average) How often? (days/week on average) Numeric Values Adult Exploratory 1.00 2018-01-09 10:25:21.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

minutes
C57370 Tired year duration TrdYrDur Duration of how long and individual has been tired (in years) Duration of how long and individual has been tired (in years) How long have you been tired (years): Numeric Values Adult Exploratory 1.00 2018-01-05 13:20:29.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

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C57548 Spent upright activity hours day 5 before test duration SpntUprgActHrDy5BfrTstDur Duration of test time spent in upright activities (in chair or standing) (in hours) on day 5 before recording date start Duration of test time spent in upright activities (in chair or standing) (in hours) on day 5 before recording date start How many hours did you spend in upright activities (in chair or standing)?: Day 5: Numeric Values Adult Exploratory 1.00 2018-01-08 14:19:14.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

0 24 hours
C57299 Health problem interfere working bad day scale HlthPrbIntWrkBdDyScl Scale related to how much an individual's health problems interfere with his/her working on a bad day Scale related to how much an individual's health problems interfere with his/her working on a bad day Working (On bad days): 1;2;3;4;5 Not at all;a little;Some;A lot;completely Numeric Values Adult Exploratory 1.00 2018-01-05 10:06:58.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57465 Daily activity exercise good day duration DlyActExcrsGdDyDur Duration of how long an individual spends exercising (in hours) on a good day Duration of how long an individual spends exercising (in hours) on a good day Exercise: Good Day Numeric Values Adult Exploratory 1.00 2018-01-08 10:20:44.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

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Hours
C57559 Spent awake engage activity mental clarity 2 day before test duration SpntAwkEngActMnClr2DyBfTstDur Duration of test time spent by an individual while awake engaging in activities that required mental clarity on day 2 before recording date start Duration of test time spent by an individual while awake engaging in activities that required mental clarity on day 2 before recording date start How many hours that you were awake did you engage in activities that required mental clarity?: Day 2: Numeric Values Adult Exploratory 1.00 2018-01-08 14:19:14.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

0 24 hours
C57331 Health problem interfere socializing good day scale HlthPrbIntSocGdDyScl Scale related to how much an individual's health problems interfere with his/her socializing on a good day Scale related to how much an individual's health problems interfere with his/her socializing on a good day Socializing (On good days): 1;2;3;4;5 Not at all;a little;Some;A lot;completely Numeric Values Adult Exploratory 1.00 2018-01-05 10:06:58.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57525 Spent bed sleep hours day 7 before test duration SpntBdSlpHrDy7BfrTstDur Duration of test time spent sleeping (in hours) in bed on day 7 before recording date start Duration of test time spent sleeping (in hours) in bed on day 7 before recording date start Of hours in bed, how many were sleeping?: Day 7: Numeric Values Adult Exploratory 1.00 2018-01-08 14:19:14.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

0 24 hours
C57630 Prior exercise minute average value PrrExrcsMnAvgVal Value of how many minutes of prior exercises was completed on average by the individual Value of how many minutes of prior exercises was completed on average by the individual How many minutes of exercise do you get on average (on days that you exercise)? Numeric Values Adult Exploratory 1.00 2018-01-09 10:35:06.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

minutes
C57371 Tired month duration TrdMnthDur Duration of how long and individual has been tired (in months) Duration of how long and individual has been tired (in months) How long have you been tired (months): Numeric Values Adult Exploratory 1.00 2018-01-05 13:20:29.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

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C57549 Spent upright activity hours day 4 before test duration SpntUprgActHrDy4BfrTstDur Duration of test time spent in upright activities (in chair or standing) (in hours) on day 4 before recording date start Duration of test time spent in upright activities (in chair or standing) (in hours) on day 4 before recording date start How many hours did you spend in upright activities (in chair or standing)?: Day 4: Numeric Values Adult Exploratory 1.00 2018-01-08 14:19:14.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Free-Form Entry

0 24 hours
C17402 Site name SiteName The name of the site for the study The name of the site for the study Site Name Alphanumeric Adult Exploratory 3.00 2013-06-21 00:00:00.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points 255

Free-Form Entry

C57302 Health problem interfere household task average scale HlthPrbIntHshTsAvgScl Scale related to how much an individual's health problems interfere with his/her doing household tasks (making beds, vacuuming) on average Scale related to how much an individual's health problems interfere with his/her doing household tasks (making beds, vacuuming) on average Doing household tasks (On average): 1;2;3;4;5 Not at all;a little;Some;A lot;completely Numeric Values Adult Exploratory 1.00 2018-01-05 10:06:58.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

C57466 Daily activity exercise bad day duration DlyActExcrsBdDyDur Duration of how long an individual spends exercising (in hours) on a bad day Duration of how long an individual spends exercising (in hours) on a bad day Exercise: Bad Day Numeric Values Adult Exploratory 1.00 2018-01-08 10:20:44.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

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Hours
C57592 Current engage exercise indicator CrrntEnggExrcsInd Indicator of an individual's current engagement in any exercise Indicator of an individual's current engagement in any exercise Do you currently engage in any exercise? No;Yes No;Yes Alphanumeric Adult Exploratory 1.00 2018-01-09 09:51:56.0 Physical Functioning and Activities of Daily Living Activities of Daily Living/Performance Outcomes and End Points

Single Pre-Defined Value Selected

CSV