CDE Detailed Report

Disease: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Sub-Domain: Quality of Life/Patient Reported Outcomes
CRF: Bell CFIDS Disability Scale

Displaying 1 - 4 of 4
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C00007 Birth date BirthDate Date (and time, if applicable and known) the participant/subject was born Date (and time, if applicable and known) the participant/subject was born D.O.B. Date or Date & Time Adult Exploratory 3.00 2013-07-25 08:54:08.2 Bell CFIDS Disability Scale Quality of Life/Patient Reported Outcomes Outcomes and End Points

Free-Form Entry

793
C15910 Assessment date and time AssessDateTime The date of participant's injury The date of participant's injury Date Date or Date & Time Adult Exploratory 3.00 2013-07-16 14:01:43.01 Bell CFIDS Disability Scale Quality of Life/Patient Reported Outcomes Outcomes and End Points

Free-Form Entry

C21117 Subject name SubjectName Name of subject/participant. Name of subject/participant. Name Alphanumeric Adult Exploratory 1.00 2015-06-12 15:16:39.0 Bell CFIDS Disability Scale Quality of Life/Patient Reported Outcomes Outcomes and End Points 255

Free-Form Entry

C57260 Bell fatigue scale BllFtgScl Scale used within the Bell Fatigue Scale Scale used within the Bell Fatigue Scale Please circle the number of the statement that best describes your level of physical function 100;90;80;70;60;50;40;30;20;10;0 No fatigue symptoms at rest, no symptoms with exercise, normal overall activity level, able to work full-time without difficulty;No symptoms at rest, mild symptoms with activity, normal overall activity level, able to work full-time without difficulty;Mild symptoms at rest, symptoms worsened by exertion, minimal activity restriction noted for activities requiring exertion only, able to work full-time with difficulty in jobs requiring exertion;Mild symptoms at rest, some daily activity limitation clearly noted. Overall functioning close to 90% of expected except for activities requiring exertion. Able to work full-time with difficulty;Mild to moderate symptoms at rest, daily activity limitation clearly noted. Overall functioning 70%-90%. Unable to work full-time in jobs requiring physical labor, but able to work full-time in light activity if hours flexible;Moderate symptoms at rest. Moderate to severe symptoms with exercise or activity, overall activity level reduced to 70% of expected. Unable to perform strenuous duties, but able to perform light duty or desk work 4-5 hours a day, but requires rest periods;Moderate symptoms at rest. Moderate to severe symptoms with exercise or activity, overall activity level reduced to 50%-70% of expected. Not confined to house. Unable to perform strenuous duties, able to perform light duty or desk work 3-4 hours a day, but requires rest periods;Moderate to severe symptoms at rest. Severe symptoms with any exercise. Overeall activity level reduced to 50% of expected. Usually confined to house. Unable to perform any strenuous tasks. Able to perform desk work 2-3 hours a day, but requires rest periods;Moderate to severe symptoms at rest. Unable to perform strenuous activity, overall activity 30-50% of expected. Unable to leave house except rarely, confined to bed most of day, unable to concentrate for more than 1 hour a day;Severe symptoms at rest, bedridden the majority of the time. No travel outside of the house. Marked cognitive symptoms preventing concentration;Severe symptoms on a continuous basis, bedridden constantly, unable to care for self Numeric Values Adult Exploratory 1.00 2018-01-04 13:44:11.0 Bell CFIDS Disability Scale Quality of Life/Patient Reported Outcomes Outcomes and End Points

Single Pre-Defined Value Selected

CSV