CDE Detailed Report | NINDS Common Data Elements

Disease: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: Bell CFIDS Disability Scale

Displaying 1 - 4 of 4

CDE ID	CDE Name	Variable Name	Definition	Short Description	Question Text	Permissible Values	Description	Data Type	Population	Classification (e.g., Core)	Version Number	Version Date	CRF Name (CRF Module / Guidance)	Subdomain Name	Domain Name	Size	Input Restrictions	External Id caDSR
C00007	Birth date	BirthDate	Date (and time, if applicable and known) the participant was born	Date (and time, if applicable and known) the participant was born	D.O.B.			Date or Date & Time	Adult	Exploratory	3.1	10/16/2024 8:51:14 AM	Bell CFIDS Disability Scale	Quality of Life/Patient Reported Outcomes	Outcomes and End Points		Free-Form Entry	793
C15910	Assessment date and time	AssessDateTime	The date of participant's injury	The date of participant's injury	Date			Date or Date & Time	Adult	Exploratory	3.00	2013-07-16 14:01:43.01	Bell CFIDS Disability Scale	Quality of Life/Patient Reported Outcomes	Outcomes and End Points		Free-Form Entry
C21117	Subject name	SubjectName	Name of subject/participant	Name of subject/participan	Name			Alphanumeric	Adult	Exploratory	1.00	2015-06-12 15:16:39.0	Bell CFIDS Disability Scale	Quality of Life/Patient Reported Outcomes	Outcomes and End Points	255	Free-Form Entry
C57260	Bell fatigue scale	BllFtgScl	Scale used within the Bell Fatigue Scale	Scale used within the Bell Fatigue Scale	Please circle the number of the statement that best describes your level of physical function	100;90;80;70;60;50;40;30;20;10;0	No fatigue symptoms at rest, no symptoms with exercise, normal overall activity level, able to work full-time without difficulty;No symptoms at rest, mild symptoms with activity, normal overall activity level, able to work full-time without difficulty;Mild symptoms at rest, symptoms worsened by exertion, minimal activity restriction noted for activities requiring exertion only, able to work full-time with difficulty in jobs requiring exertion;Mild symptoms at rest, some daily activity limitation clearly noted. Overall functioning close to 90% of expected except for activities requiring exertion. Able to work full-time with difficulty;Mild to moderate symptoms at rest, daily activity limitation clearly noted. Overall functioning 70%-90%. Unable to work full-time in jobs requiring physical labor, but able to work full-time in light activity if hours flexible;Moderate symptoms at rest. Moderate to severe symptoms with exercise or activity, overall activity level reduced to 70% of expected. Unable to perform strenuous duties, but able to perform light duty or desk work 4-5 hours a day, but requires rest periods;Moderate symptoms at rest. Moderate to severe symptoms with exercise or activity, overall activity level reduced to 50%-70% of expected. Not confined to house. Unable to perform strenuous duties, able to perform light duty or desk work 3-4 hours a day, but requires rest periods;Moderate to severe symptoms at rest. Severe symptoms with any exercise. Overeall activity level reduced to 50% of expected. Usually confined to house. Unable to perform any strenuous tasks. Able to perform desk work 2-3 hours a day, but requires rest periods;Moderate to severe symptoms at rest. Unable to perform strenuous activity, overall activity 30-50% of expected. Unable to leave house except rarely, confined to bed most of day, unable to concentrate for more than 1 hour a day;Severe symptoms at rest, bedridden the majority of the time. No travel outside of the house. Marked cognitive symptoms preventing concentration;Severe symptoms on a continuous basis, bedridden constantly, unable to care for self	Numeric Values	Adult	Exploratory	1.00	2018-01-04 13:44:11.0	Bell CFIDS Disability Scale	Quality of Life/Patient Reported Outcomes	Outcomes and End Points		Single Pre-Defined Value Selected