CDE Detailed Report
Disease: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: Bell CFIDS Disability Scale
Displaying 1 - 4 of 4
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: Bell CFIDS Disability Scale
Displaying 1 - 4 of 4
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
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| C21117 | Subject name | SubjectName | Name of subject/participant | Name of subject/participan | Name | Alphanumeric | Adult | Exploratory | 1.00 | 2015-06-12 15:16:39.0 | Bell CFIDS Disability Scale | Quality of Life/Patient Reported Outcomes | Outcomes and End Points | 255 |
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| C57260 | Bell fatigue scale | BllFtgScl | Scale used within the Bell Fatigue Scale | Scale used within the Bell Fatigue Scale | Please circle the number of the statement that best describes your level of physical function | 100;90;80;70;60;50;40;30;20;10;0 | No fatigue symptoms at rest, no symptoms with exercise, normal overall activity level, able to work full-time without difficulty;No symptoms at rest, mild symptoms with activity, normal overall activity level, able to work full-time without difficulty;Mild symptoms at rest, symptoms worsened by exertion, minimal activity restriction noted for activities requiring exertion only, able to work full-time with difficulty in jobs requiring exertion;Mild symptoms at rest, some daily activity limitation clearly noted. Overall functioning close to 90% of expected except for activities requiring exertion. Able to work full-time with difficulty;Mild to moderate symptoms at rest, daily activity limitation clearly noted. Overall functioning 70%-90%. Unable to work full-time in jobs requiring physical labor, but able to work full-time in light activity if hours flexible;Moderate symptoms at rest. Moderate to severe symptoms with exercise or activity, overall activity level reduced to 70% of expected. Unable to perform strenuous duties, but able to perform light duty or desk work 4-5 hours a day, but requires rest periods;Moderate symptoms at rest. Moderate to severe symptoms with exercise or activity, overall activity level reduced to 50%-70% of expected. Not confined to house. Unable to perform strenuous duties, able to perform light duty or desk work 3-4 hours a day, but requires rest periods;Moderate to severe symptoms at rest. Severe symptoms with any exercise. Overeall activity level reduced to 50% of expected. Usually confined to house. Unable to perform any strenuous tasks. Able to perform desk work 2-3 hours a day, but requires rest periods;Moderate to severe symptoms at rest. Unable to perform strenuous activity, overall activity 30-50% of expected. Unable to leave house except rarely, confined to bed most of day, unable to concentrate for more than 1 hour a day;Severe symptoms at rest, bedridden the majority of the time. No travel outside of the house. Marked cognitive symptoms preventing concentration;Severe symptoms on a continuous basis, bedridden constantly, unable to care for self | Numeric Values | Adult | Exploratory | 1.00 | 2018-01-04 13:44:11.0 | Bell CFIDS Disability Scale | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
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| C00007 | Birth date | BirthDate | Date (and time, if applicable and known) the participant was born | Date (and time, if applicable and known) the participant was born | D.O.B. | Date or Date & Time | Adult | Exploratory | 3.1 | 10/16/2024 8:51:14 AM | Bell CFIDS Disability Scale | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
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| C15910 | Assessment date and time | AssessDateTime | The date of participant's injury | The date of participant's injury | Date | Date or Date & Time | Adult | Exploratory | 3.00 | 2013-07-16 14:01:43.01 | Bell CFIDS Disability Scale | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
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