CDE Detailed Report
Disease: Mitochondrial Disease
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: EuroQoL-5 Dimension Questionnaire (EQ-5D)
Displaying 1 - 6 of 6
Subdomain Name: Quality of Life/Patient Reported Outcomes
CRF: EuroQoL-5 Dimension Questionnaire (EQ-5D)
Displaying 1 - 6 of 6
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C20526 | European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category | EQ5D5LMobilityCat | Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) | Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L | Mobility | I have no problems walking;I have slight problems walking;I have moderate problems walking;I have severe problems in walking;I am unable to walk | I have no problems walking;I have slight problems walking;I have moderate problems walking;I have severe problems in walking;I am unable to walk | Alphanumeric |
Under each heading, please check the ONE box that best describes your health TODAY. |
EuroQol Research Foundation (2009) http://www.euroqol.org/ | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 08:36:26.0 | EuroQoL-5 Dimension Questionnaire (EQ-5D) | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
C102067 | |||||||
| C20527 | European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category | EQ5D5LSelfCareCat | Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) | Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L | Self-care | I have no problems washing or dressing myself;I have slight problems washing or dressing myself;I have moderate problems washing or dressing myself;I have severe problems washing or dressing myself;I am unable to wash or dress myself | I have no problems washing or dressing myself;I have slight problems washing or dressing myself;I have moderate problems washing or dressing myself;I have severe problems washing or dressing myself;I am unable to wash or dress myself | Alphanumeric |
Under each heading, please check the ONE box that best describes your health TODAY. |
EuroQol Research Foundation (2009) http://www.euroqol.org/ | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 08:39:51.0 | EuroQoL-5 Dimension Questionnaire (EQ-5D) | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
C102068 | |||||||
| C20529 | European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category | EQ5D5LUsualActivitiesCat | Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) | Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L | Usual activities | I am unable to do my usual activities;I have no problems doing my usual activities;I have slight problems doing my usual activities;I have moderate problems doing my usual activities;I have severe problems doing my usual activities | I am unable to do my usual activities;I have no problems doing my usual activities;I have slight problems doing my usual activities;I have moderate problems doing my usual activities;I have severe problems doing my usual activities | Alphanumeric |
Under each heading, please check the ONE box that best describes your health TODAY. |
EuroQol Research Foundation (2009) http://www.euroqol.org/ | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 08:41:37.0 | EuroQoL-5 Dimension Questionnaire (EQ-5D) | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
C102069 | |||||||
| C20531 | European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category | EQ5D5LPainDiscomfortCat | Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) | Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L | Pain/Discomfort | I have extreme pain or discomfort;I have no pain or discomfort;I have slight pain or discomfort;I have moderate pain or discomfort;I have severe pain or discomfort | I have extreme pain or discomfort;I have no pain or discomfort;I have slight pain or discomfort;I have moderate pain or discomfort;I have severe pain or discomfort | Alphanumeric |
Under each heading, please check the ONE box that best describes your health TODAY. |
EuroQol Research Foundation (2009) http://www.euroqol.org/ | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 08:43:06.0 | EuroQoL-5 Dimension Questionnaire (EQ-5D) | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
C102070 | |||||||
| C20533 | European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category | EQ5D5LAnxietyDepressionCat | Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) | Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L | Anxiety/Depression | I am extremely anxious or depressed;I am not anxious or depressed;I am slightly anxious or depressed;I am moderately anxious or depressed;I am severely anxious or depressed | I am extremely anxious or depressed;I am not anxious or depressed;I am slightly anxious or depressed;I am moderately anxious or depressed;I am severely anxious or depressed | Alphanumeric |
Under each heading, please check the ONE box that best describes your health TODAY. |
EuroQol Research Foundation (2009) http://www.euroqol.org/ | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 08:44:26.0 | EuroQoL-5 Dimension Questionnaire (EQ-5D) | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Single Pre-Defined Value Selected |
C102071 | |||||||
| C20535 | European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale | EQ5D5LHealthTodayScl | Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) | Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L | YOUR HEALTH TODAY | Numeric Values |
Under each heading, please check the ONE box that best describes your health TODAY. |
EuroQol Research Foundation (2009) http://www.euroqol.org/ | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 08:46:00.0 | EuroQoL-5 Dimension Questionnaire (EQ-5D) | Quality of Life/Patient Reported Outcomes | Outcomes and End Points |
Free-Form Entry |
0 | 100 | C102072 |
