CDE Detailed Report
Disease: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Subdomain Name: Fatigue
CRF: Neuro-QOL Adult Bank - Fatigue
Displaying 1 - 19 of 19
Subdomain Name: Fatigue
CRF: Neuro-QOL Adult Bank - Fatigue
Displaying 1 - 19 of 19
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C20557 | Quality of Life in Neurological Disorders (Neuro-Qol) - Usual activity assistance need fatigue assessment past week scale | NeuroQolUsualActFatigueScale | The scale representing how often the participant needed help doing usual activities because of fatigue in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant needed help doing usual activities because of fatigue in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I needed help doing my usual activities because of my fatigue… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:11:04.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20560 | Quality of Life in Neurological Disorders (Neuro-Qol) - Sleep need during day past week scale | NeuroQolNeedSleepDayScale | The scale representing how often the participant needed to sleep during the day in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant needed to sleep during the day in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I needed to sleep during the day… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:13:32.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20563 | Quality of Life in Neurological Disorders (Neuro-Qol) - Difficulty begin task fatigue assessment past week scale | NeuroQolTroubleStartScale | The scale representing how often the participant had trouble starting things because they were too tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant had trouble starting things because they were too tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I had trouble starting things because I was too tired… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:15:18.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20544 | Quality of Life in Neurological Disorders (Neuro-Qol) - Exhaustion fatigue assessment past week scale | NeuroQolExhaustedScale | The scale representing how often the participant felt exhausted in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant felt exhausted in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I felt exhausted… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 08:55:11.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20566 | Quality of Life in Neurological Disorders (Neuro-Qol) - Difficulty finish task fatigue assessment past week scale | NeuroQolTroubleFinishScale | The scale representing how often the participant had trouble finishing things because they were too tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant had trouble finishing things because they were too tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I had trouble finishing things because I was too tired… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:16:49.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20546 | Quality of Life in Neurological Disorders (Neuro-Qol) - No energy fatigue asssessment past week scale | NeuroQolNoEnergyScale | The scale representing how often the participant felt no energy in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant felt no energy in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I felt that I had no energy… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 08:57:12.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20569 | Quality of Life in Neurological Disorders (Neuro-Qol) - No short walk fatigue assessment past week scale | NeuroQolTiredShortWalkScale | The scale representing how often the participant was too tired to take a short walk in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant was too tired to take a short walk in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I was too tired to take a short walk… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:18:49.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20547 | Quality of Life in Neurological Disorders (Neuro-Qol) - Fatigue assessment past week scale | NeuroQolFatigueScale | The scale representing how often the participant felt fatigued in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant felt fatigued in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I felt fatigued… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:00:48.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20571 | Quality of Life in Neurological Disorders (Neuro-Qol) - Poor appetite fatigue assessment past week scale | NeuroQolTiredEatScale | The scale representing how often the participant was too tired to eat in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant was too tired to eat in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I was too tired to eat… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:20:25.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20548 | Quality of Life in Neurological Disorders (Neuro-Qol) - No household chore fatigue assessment past week scale | NeuroQolTiredChoresScale | The scale representing how often the participant felt too tired to do household chores in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant felt too tired to do household chores in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I was too tired to do my household chores… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:02:14.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20572 | Quality of Life in Neurological Disorders (Neuro-Qol) - Rest during day fatigue assessment past week scale | NeuroQolNeedRestDayScale | The scale representing how often the participant was so tired that they needed rest during the day in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant was so tired that they needed rest during the day in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I was so tired that I needed to rest during the day… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:21:49.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20549 | Quality of Life in Neurological Disorders (Neuro-Qol) - Not leave house fatigue assessment past week scale | NeuroQolTiredLeavehouseScale | The scale representing how often the participant felt too tired to leave the house in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant felt too tired to leave the house in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I was too tired to leave the house… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:03:46.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20573 | Quality of Life in Neurological Disorders (Neuro-Qol) - Overall weakness fatigue assessement past week scale | NeuroQolWeakAllOverScale | The scale representing how often the participant felt weak all over in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant felt weak all over in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I felt weak all over… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:23:25.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20550 | Quality of Life in Neurological Disorders (Neuro-Qol) - Frustration tired for action fatigue assessment past week scale | NeuroQolFrustTiredThingsScale | The scale representing how often the participant felt frustrated by being too tired to do the things they wanted to do in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant felt frustrated by being too tired to do the things they wanted to do in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I was frustrated by being too tired to do the things I wanted to do… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:05:34.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20575 | Quality of Life in Neurological Disorders (Neuro-Qol) - Usual activity help requirement fatigue assessment past week scale | NeuroQolUsualActWeakScale | The scale representing how often the participant needed help during usual activities because of weakness in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant needed help during usual activities because of weakness in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I needed help doing my usual activities because of my weakness… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:24:48.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20552 | Quality of Life in Neurological Disorders (Neuro-Qol) - Tiredness fatigue asssessment past week scale | NeuroQolTiredScale | The scale representing how often the participant felt tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant felt tired in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I felt tired… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:07:55.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20577 | Quality of Life in Neurological Disorders (Neuro-Qol) - Limit social activity physical weakness fatigue asssessment past week scale | NeuroQolLimitSocialWeakScale | The scale representing how often the participant had to limit social activity because of being physically weak in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant had to limit social activity because of being physically weak in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I had to limit my social activity because I was physically weak… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:26:05.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20554 | Quality of Life in Neurological Disorders (Neuro-Qol) - Limit social activity fatigue assessment past week scale | NeuroQolLimitSocialTiredScale | The scale representing how often the participant had to limit social activity because of being tired in the past 7 days, as part of the Quality of Life in Neurological Disorders(Neuro-Qol) | The scale representing how often the participant had to limit social activity because of being tired in the past 7 days, as part of the Quality of Life in Neurological Disorders(Neuro-Qol | In the past 7 days I had to limit my social activity because I was tired… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:09:34.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C20579 | Quality of Life in Neurological Disorders (Neuro-Qol) - Force self action physical weakness fatigue assessment past week scale | NeuroQolForceWakeUpWeakScale | The scale representing how often the participant had to force self to get up and do things because they were physically too weak in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol) | The scale representing how often the participant had to force self to get up and do things because they were physically too weak in the past 7 days, as part of the Quality of Life in Neurological Disorders (Neuro-Qol | In the past 7 days I had to force myself to get up and do things because I was physically too weak… | 5;4;3;2;1 | always;Often;Sometimes;Rarely;Never | Numeric Values |
Please respond to each question or statement by marking one box per row. |
Cella D, Victorson D, Nowinski C, Peterman A, Miller DM.?The Neuro-QOL project: using multiple methods to develop a HRQOL measurement platform to be used in clinical research across neurological conditions.?Qual Life Res?2006;?A14: 1353. http://www.neuroqol.org/Pages/default.aspx | Adult;Pediatric | Exploratory | 1.00 | 2015-05-20 09:27:48.0 | Neuro-QOL Adult Bank - Fatigue | Fatigue | Outcomes and End Points |
Single Pre-Defined Value Selected |
