CDE Detailed Report | NINDS Common Data Elements

Disease: Headache
Subdomain Name: History of Disease/Injury Event
CRF: Medical and Family History of Headache

Displaying 1 - 13 of 13

CDE ID	CDE Name	Variable Name	Definition	Short Description	Question Text	Permissible Values	Description	Data Type	Disease Specific Instructions	Disease Specific Reference	Population	Classification (e.g., Core)	Version Number	Version Date	CRF Name (CRF Module / Guidance)	Subdomain Name	Domain Name	Size	Input Restrictions	External Id caDSR
C16025	Family history second-degree physician diagnosis count	FamHistScndDegPhyscnDiagnsCt	The number of second-degree relatives with the medical condition confirmed by a physician	The number of second-degree relatives with the medical condition confirmed by a physician	Number of second degree relatives number with physician diagnosis.			Numeric Values	If there is a history of this condition in the family, indicate the total number of relatives with a history of the condition, the number of relatives affected (patient reported diagnosis), and if the number of relatives that were diagnosed by a physician.	No references available	Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events		Free-Form Entry
C16207	Family history medical condition first-degree relative type	FamHistMedclCondFrstDegReltTyp	Relationship of the first-degree family member or ancestor with the medical condition or health related event to the participant/subject	Relationship of the first-degree family member or ancestor with the medical condition or health related event to the participant/subject	Relationship of relative(s) to participant/subject	1;2;3;4;5;6;7;8;9;10	Biological Mother;Biological Father;Sibling Male;Sibling Female;Non-identical or dizygotic twin Male;Non-identical or dizygotic twin Female;Identical twin Male;Identical twin Female;Full biologic child Male;Full biologic child Female	Numeric Values	Select the relationship from the options of the family members provided in the "Name of Family Member with Condition" code list. Record more than 1 family member, if applicable. Choose all that apply.	No references available	Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events		Multiple Pre-Defined Values Selected
C16208	Family history medical condition second-degree relative type	FamHistMedclCondScndDegReltTyp	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Relationship of relative(s) to participant/subject	11;12;13;14;15;16;17;18;19;20;21;22;23;24	Half-Sibling Male;Half-Sibling Female;Maternal Grandmother;Maternal Grandfather;Paternal Grandmother;Paternal Grandfather;Maternal Aunt;Maternal Uncle;Paternal Aunt;Paternal Uncle;Grandchild Male;Grandchild Female;Nephew;Niece	Numeric Values	Separate multiple codes with comma	No references available	Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events		Multiple Pre-Defined Values Selected
C17992	Additional comment text	AddtnalCommntTxt	Text describing any additional information about the participant or the participant's family history	Text describing any additional information about the participant or the participant's family history	Additional Comments			Alphanumeric	Record any pertinent information regarding the participant/subject, and/or family in the comments filed.	No references available	Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events	255	Free-Form Entry
C19039	Headache migraine other text	HdchMigranOTH	The free-text field related to 'Headache migraine type' specifying other text. Type of headache or migraine	The free-text field related to 'Headache migraine type' specifying other text. Type of headache or migraine	Other, specify			Alphanumeric		No references available	Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events	4000	Free-Form Entry
C00721	Family history medical condition indicator	FamHistMedclCondInd	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Relative affected (first and second-degree relatives ONLY)?	Yes;No;Unknown	Yes;No;Unknown	Alphanumeric		No references available	Adult;Pediatric	Supplemental	4.00	2024-02-29 15:42:36.0	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events		Single Pre-Defined Value Selected	3165788
C56045	Headache migraine physician diagnosis medical documentation indicator	HdachMgrnPhyscnMdclDcmntatnInd	Indicator of whether the participant/subject has a physician diagnosis or medical documentation of headaches or migraines	Indicator of whether the participant/subject has a physician diagnosis or medical documentation of headaches or migraines	Physician diagnosis or medical documentation supporting diagnosis?	Yes;No;Unknown	Yes;No;Unknown	Alphanumeric		No references available	Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events		Single Pre-Defined Value Selected
C16005	Headache migraine type	HeadachMigranTyp	Type of headache or migraine	Type of headache or migraine	Diagnosis	Migraine with aura;Migraine without aura;Chronic Migraine;Hemiplegic Migraine;Menstrual Headache;Tension Type Headache;Episodic Tension Type;Chronic Tension Type;Trigeminal Autonomic Cephalgias;Cluster Headache;Trigeminal Headache;Other TAC type, specify;Other primary type headache, specify;Other secondary type headache, specify	Migraine with aura;Migraine without aura;Chronic Migraine;Hemiplegic Migraine;Menstrual Headache;Tension Type Headache;Episodic Tension Type;Chronic Tension Type;Trigeminal Autonomic Cephalgias (TACS);Cluster Headache;Trigeminal Headache;Other TAC (Trigeminal Autonomic Cephalgia) type, specify;Other primary type headache, specify;Other secondary type headache, specify	Alphanumeric		No references available	Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events		Single Pre-Defined Value Selected
C56046	Headache migraine participant affected condition indicator	HdachMgrnPrtcpntAffctdCndtnInd	Indicator of whether the participant/subject has been affected by their condition related to headaches or migraines	Indicator of whether the participant/subject has been affected by their condition related to headaches or migraines	Participant affected by condition?	Yes;No;Unknown	Yes;No;Unknown	Alphanumeric		No references available	Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events		Single Pre-Defined Value Selected
C16006	Family history first-degree physician diagnosed count	FamHist1stDegPhyscnDiagnsCt	The number of first-degree relatives with the medical condition confirmed by a physician	The number of first-degree relatives with the medical condition confirmed by a physician	Number of first degree relatives number with physician diagnosis			Numeric Values	If there is a history of this condition in the family, indicate the total number of relatives with a history of the condition, the number of relatives affected (patient reported diagnosis), and if the number of relatives that were diagnosed by a physician.	No references available	Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events		Free-Form Entry
C16010	Headache migraine diagnosis indicator	HeadachMigranDiagnsInd	Indicator of whether the participant/subject has been diagnosed with the type of headache or migraine	Indicator of whether the participant/subject has been diagnosed with the type of headache or migraine	Participant/subject diagnosed?	Yes;No;Unknown	Yes;No;Unknown	Alphanumeric	If the participant/subject has a history of this condition, indicate yes.	No references available	Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events		Single Pre-Defined Value Selected
C16019	Family history relative first-degree affect count	FamHistReltv1stDegAffctCt	The number of first-degree relatives affected with the medical condition	The number of first-degree relatives affected with the medical conditio	Number of first degree relatives number affected			Numeric Values	If there is a history of this condition in the family, indicate the total number of relatives with a history of the condition, the number of relatives affected (patient reported diagnosis), and if the number of relatives that were diagnosed by a physician.	No references available	Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events		Free-Form Entry
C16021	Family history second-degree relative affected count	FamHistScndDegReltvAffctCt	The number of second-degree relatives affected with the medical condition	The number of second-degree relatives affected with the medical conditio	Number of second degree relatives number affected.			Numeric Values	If there is a history of this condition in the family, indicate the total number of relatives with a history of the condition, the number of relatives affected (patient reported diagnosis), and if the number of relatives that were diagnosed by a physician.	No references available	Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	Medical and Family History of Headache/Migraine	History of Disease/Injury Event	Disease/Injury Related Events		Free-Form Entry