CDE Detailed Report | NINDS Common Data Elements

Disease: Chiari I Malformation
Subdomain Name: Imaging Diagnostics
CRF: Chiari I Malformation Imaging

Displaying 1 - 33 of 33

CDE ID	CDE Name	Variable Name	Definition	Short Description	Question Text	Permissible Values	Description	Data Type	Disease Specific Instructions	Disease Specific Reference	Population	Classification (e.g., Core)	Version Number	Version Date	CRF Name (CRF Module / Guidance)	Subdomain Name	Domain Name	Size	Input Restrictions	Min Value	Max Value	Measurement Type
C58514	Empty sella turcica present indicator	EmptySellaTurcicaPresentInd	The indicator related to presence of empty sella turcica	The indicator related to presence of empty sella turcic	Empty Sella turcica present?	No;Yes	No;Yes	Alphanumeric	Pituitary height: I: normal appearance—the superior aspect of the pituitary gland was either convex or flat II: mild (loss of pituitary height h > 2/3 of the sella height H III: moderate (1/3 H IV: severe (hV: empty sella if the sella turcica was enlarged and no pituitary parenchyma was observable (where h denotes the pituitary height and H denotes the height of the sella turcica. Define h as the minimal pituitary height in the mid-sagittal plane Define H as either the maximal depth of the sella turcica in the mid-sagittal plane as measured to the tuberculum sellae OR to the limbus sphenoidale- the latter may be favored due to ease of identification) Pituitary dorsal contour: Convex, Flat, Concave (as viewed from above)		Adult;Pediatric	Exploratory	1.00	2016-06-01 15:29:11.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C21737	Imaging posterior cranial fossa soft tissue clivo-axial angle (CXA) measurement	ImgPosCraFosSofTissCXAMeasr	The measurement as related to soft tissue clivo-axial angle (CXA)	The measurement as related to soft tissue clivo-axial angle (CXA	Soft Tissue Clivo-axial Angle (CXA)			Numeric Values	Draw a line from the spheno-occipital synchondrosis (or mid-point of the clivus if not visible in the adult subject) to the posterior most point on the ventral dura posterior to the odontoid process (inferior half of the clivus). Draw another line from the posterior inferior aspect of C2 to the posterior-most point on the ventral dura. The angle between these lines is the soft tissue CXA. (Best measured on T2 sagittal midline MRI)		Adult;Pediatric	Exploratory	1.00	2016-06-01 15:07:36.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry	0	360	Degrees
C21748	Imaging posterior cranial fossa foramen magnum diameter measurement	ImgPosCraFosForMagDiaMeasr	The measurement as related to distance from basion to opisthion	The measurement as related to distance from basion to opisthion	Foramen Magnum diameter			Numeric Values	Distance from basion to opisthion.		Adult;Pediatric	Supplemental	1.00	2016-06-01 15:17:57.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C58515	Greatest transverse spinal cord diameter measurement	GrtestTransvSpinlCordDiamMeasr	Greatest transverse diameter of spinal cord on T2-WI as measured on MRI in the axial plane (in mm)	Greatest transverse diameter of spinal cord on T2-WI as measured on MRI in the axial plane (in mm	Greatest transverse diameter of the spinal cord			Numeric Values			Adult;Pediatric	Supplemental	1.00	2018-05-08 13:07:26.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			millimeter
C21738	Imaging posterior cranial fossa bone clivo-axial angle (CXA) measurement	ImgPosCraFosBonCXAMeasr	The measurement as related to bone clivo-axial angle (CXA)	The measurement as related to bone clivo-axial angle (CXA	Bone Clivo-axial Angle (CXA)			Numeric Values	Draw a line from the sphenooccipital synchondrosis to the basion (inferior half of the clivus). Draw another line from the posterior inferior aspect of C2 to the posterior-most point on the odontoid process. The angle between these lines is the bony CXA. (best measured on CT)		Adult;Pediatric	Exploratory	1.00	2016-06-01 15:07:36.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry	0	360	Degrees
C21749	Imaging posterior cranial fossa superior posterior fossa length measurement	ImgPosCraFosSupPosFosLenMeasr	The measurement as related to distance from dorsum sella to internal occipital protuberance	The measurement as related to distance from dorsum sella to internal occipital protuberance	Superior Posterior fossa length			Numeric Values	Distance from dorsum sella to internal occipital protuberance.		Adult;Pediatric	Supplemental	1.00	2016-06-01 15:19:21.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C21728	Imaging cerebellar tonsil lowest position measurement	ImgCerTonLowPosMeasr	The measurement related to lowest tonsillar position relative to foramen magnum	The measurement related to lowest tonsillar position relative to foramen magnu	Lowest tonsillar position			Numeric Values	Define foramen magnum using midline image. Draw line from basion to opisthion. Define basion and opisthion as the confluence of cortical bone (most inferior). Ventral most point on opisthion. Measure tonsillar position perpendicular to that line. Tonsillar measurement may be taken parasagittally to assure the largest possible number is recorded. Record negative number for tonsil position above line. Based on T1 sagittal or coronal MRI.	Barkovich AJNR 7(5) 795 1986;Smith JNS 119(3) 812 2013	Adult;Pediatric	Core	1.00	2016-06-01 14:01:44.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C58516	Greatest transverse thecal sac diameter measurement	GrtestTransvThecalSacDiamMeasr	Greatest transverse diameter of thecal sac on T2-WI as measured on MRI in the axial plane (in mm)	Greatest transverse diameter of thecal sac on T2-WI as measured on MRI in the axial plane (in mm	Greatest transverse diameter of the thecal sac			Numeric Values			Adult;Pediatric	Supplemental	1.00	2018-05-08 13:07:26.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			millimeter
C21739	Imaging posterior cranial fossa pB-C2 measurement	ImgPosCraFospBC2Measr	The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra	The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra	pB-C2			Numeric Values	Draw a line from the basion to the posterior inferior most point of C2. Measure the perpendicular distance from the posterior most point on the ventral dura posterior to the odontoid process to the first line (perpendicular).	Grabb and Oakes	Adult;Pediatric	Supplemental	1.00	2016-06-01 15:09:27.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C21750	Imaging posterior cranial fossa tentorial angle measurement	ImgPosCraTenAngMeasr	The measurement as related to the angle between line drawn along the tentorium with line drawn from the internal occipital protuberance to the opisthion; Alternative measurement: angle between line drawn paralell to clivus and line drawn paralell to tentorium, independent of orientation of occipital bone	The measurement as related to the angle between line drawn along the tentorium with line drawn from the internal occipital protuberance to the opisthion; Alternative measurement: angle between line drawn paralell to clivus and line drawn paralell to tento	Tentorial angle			Numeric Values	Decide which measurement, favor to the clival measurement. 0-360°; Angle between line drawn along the tentorium with line drawn from the internal occipital protuberance to the opisthion.		Adult;Pediatric	Supplemental	1.00	2016-06-01 15:20:18.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry	0	360	Degrees
C21729	Imaging cerebellar tonsil right position measurement	ImgCerTonRtPosMeasr	The measurement related to right tonsillar position relative to foramen magnum	The measurement related to right tonsillar position relative to foramen magnu	Position of right cerebellar tonsil			Numeric Values	Define foramen magnum using midline image. Draw line from basion to opisthion. Define basion and opisthion as the confluence of cortical bone (most inferior). Ventral most point on opisthion. Measure tonsillar position perpendicular to that line parasagittally through the tip of the right tonsil. Tonsillar measurement should be taken to assure the largest possible number is recorded. Record negative number for tonsil position above line. Based on T1 sagittal or coronal MRI.	Barkovich AJNR 7(5) 795 1986;Smith JNS 119(3) 812 2013	Adult;Pediatric	Core	1.00	2016-06-01 14:01:44.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C21740	Imaging posterior cranial fossa basion axial interval measurement	ImgPosCraFosBAIntrvlMeasr	The measurement as related to distance from tip of basion to posterior axial line	The measurement as related to distance from tip of basion to posterior axial line	Basion Axial Interval (BAI, Harris Measurement)			Numeric Values	Draw a linge from the psoteriror inferior most point on C2 to the most posterior point of the odontoid process. Extend this lin in a rpstral direction. Measure the perpendicular distance from the basion to the line. (Best measured on bony imaging such as CT)		Adult;Pediatric	Exploratory	1.00	2016-06-01 15:10:37.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C21751	Imaging spine anomaly congenital fusion cervical vertebrae present indicator	ImgSpiAnoConFusCerVerPreInd	The indicator related to the congenital fusion of cervical vertebrate on the imaging spinal anomalies	The indicator related to the congenital fusion of cervical vertebrate on the imaging spinal anomalie	Congenital Fusion of cervical vertebrae	No;Yes	No;Yes	Alphanumeric	Choose Yes / No		Adult;Pediatric	Exploratory	1.00	2016-06-01 15:21:42.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C21730	Imaging cerebellar tonsil left position measurement	ImgCerTonLftPosMeasr	The measurement related to left tonsillar position relative to foramen magnum	The measurement related to left tonsillar position relative to foramen magnu	Position of left cerebellar tonsil			Numeric Values	Define foramen magnum using midline image. Draw line from basion to opisthion. Define basion and opisthion as the confluence of cortical bone. Ventral most point on opisthion. Measure tonsillar position perpendicular to that line parasagittally through the tip of the left tonsil. Tonsillar measurement should be taken to assure the largest possible number is recorded. Record negative number for tonsil position above line. Based on T1 sagittal or coronal MRI.	Barkovich AJNR 7(5) 795 1986;Smith JNS 119(3) 812 2013	Adult;Pediatric	Core	1.00	2016-06-01 14:01:44.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C21741	Imaging posterior cranial fossa basion axial interval extension measurement	ImgPosCraFosBAIntrvlExtMeasr	The measurement as related to distance from tip of basion to posterior axial line while in extension	The measurement as related to distance from tip of basion to posterior axial line while in extension	BAI in extension			Numeric Values			Adult;Pediatric	Exploratory	1.00	2016-06-01 15:10:37.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C21752	Imaging spine anomaly atlas assimilation present indicator	ImgSpiAnoAtlAssPreInd	The indicator related to the atlas assimilation on the imaging spinal anomalies	The indicator related to the atlas assimilation on the imaging spinal anomalie	Atlas assimilation	No;Yes	No;Yes	Alphanumeric	Choose Yes / No		Adult;Pediatric	Exploratory	1.00	2016-06-01 15:21:42.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C21731	Imaging cerebellar tonsil shape type	ImgCerTonShaTyp	The type as related to the relative tonsil shape reported	The type as related to the relative tonsil shape reporte	Shape of cerebellar tonsils	Pegged;Intermediate;Rounded	Pegged;Intermediate;Rounded	Alphanumeric	Choose the relative shape of the cerebellar tonsils as rounded, pegged or intermediate between the two; see diagram for guidance		Adult;Pediatric	Exploratory	1.00	2016-06-01 14:01:44.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C21742	Imaging posterior cranial fossa basion axial interval flexion measurement	ImgPosCraFosBAIntrvlFleMeasr	The measurement as related to distance from tip of basion to posterior axial line while in flexion	The measurement as related to distance from tip of basion to posterior axial line while in flexion	BAI in flexion			Numeric Values			Adult;Pediatric	Exploratory	1.00	2016-06-01 15:10:37.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C21753	Imaging spine anomaly other craniocervical present indicator	ImgSpiAnoOthrCraPreInd	The indicator related to presence of other craniocervical abnormalities on the imaging spinal anomalies	The indicator related to presence of other craniocervical abnormalities on the imaging spinal anomalie	Presence of other craniocervical abnormalities	No;Yes	No;Yes	Alphanumeric	Choose Yes / No		Adult;Pediatric	Exploratory	1.00	2016-06-01 15:21:42.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C21732	Imaging syrinx present indicator	ImgSyrPreInd	The indicator related to presence of syrinx within the spinal cord measuring greater than 3 mm in axial plane T1 imaging	The indicator related to presence of syrinx within the spinal cord measuring greater than 3 mm in axial plane T1 imaging	Syrinx Present	No;Yes	No;Yes	Alphanumeric	Choose Yes/No: 'Yes' if fluid signal (CSF) is present within the spinal cord measuring greater than 3 mm in axial plane imaging		Adult;Pediatric	Supplemental-Highly Recommended	1.00	2016-06-01 14:42:50.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C21743	Imaging posterior cranial fossa basion dens interval measurement	ImgPosCraFosBDIntrvlMeasr	The measurement as related to distance from basion to tip of odontoid	The measurement as related to distance from basion to tip of odontoid	Basion-Dens Interval (BDI)			Numeric Values	Distance from basion to tip of odontoid (best measured on bony imaging such as CT)		Adult;Pediatric	Exploratory	1.00	2016-06-01 15:10:37.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C21754	Imaging spine anomaly tethered cord present indicator	ImgSpiAnoTetCorPreInd	The indicator related to presence of tethered cord on the imaging spinal anomalies	The indicator related to presence of tethered cord on the imaging spinal anomalies	Tethered cord present	No;Yes	No;Yes	Alphanumeric	Choose Yes / No		Adult;Pediatric	Exploratory	1.00	2016-06-01 15:21:42.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C21733	Imaging syrinx length spinal segment count	ImgSyrLenSpiSegCou	The number of spinal segments for length of syrinx as measure on sagittal MRI scan	The number of spinal segments for length of syrinx as measure on sagittal MRI scan	Length of hydrosyringomyelia			Numeric Values	Length of syrinx as measured on sagittal MRI scan; reported in number of spinal segments (1 to 29). e.g. – a syrinx extending from C2 to T5 will measure 11 segments. Record 11. [The minimal value of this field when fluid is present in the spinal cord (i.e. #5 is yes) is set to "1." A "segment" is defined as equal to or greater than the half the height of the corpus of the adjoining vertebral bodies at the mid-sagittal plane. Example: hydrosyringomyelia extending from just caudal to the mid-point of the C3 vertebral body to just rostral to the mid-point of the C5 vertebral body would be assigned a value of "2."]		Adult;Pediatric	Supplemental	1.00	2016-06-01 14:59:35.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry	1	29
C21744	Imaging posterior cranial fossa basion dens interval extension measurement	ImgPosCraFosBDIntrvlExtMeasr	The measurement as related to distance from basion to tip of odontoid in extension	The measurement as related to distance from basion to tip of odontoid in extension	BDI in extension			Numeric Values			Adult;Pediatric	Exploratory	1.00	2016-06-01 15:10:37.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C21755	Imaging spine anomaly spinal dysraphism present indicator	ImgSpiAnoSpiDysPreInd	In this context, we define spina bifida occulta as non-fusion of the posterior spinal elements without evidence of any other abnormality of the spinal cord or dura	In this context, we define spina bifida occulta as non-fusion of the posterior spinal elements without evidence of any other abnormality of the spinal cord or dura	Spinal Dysraphism present? (excluding spina bifida occulta)	No;Yes	No;Yes	Alphanumeric	Choose Yes / No		Adult;Pediatric	Exploratory	1.00	2016-06-01 15:21:42.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C21734	Imaging syrinx highest level spinal segment number	ImgSyrLenSpiSegNum	The number as related to the highest level of syrinx, reported in terms of most superior spinal segment along syrinx	The number as related to the highest level of syrinx, reported in terms of most superior spinal segment along syrinx	Highest level of syrinx			Alphanumeric	Identify location of single segment most superior e.g., C2. Reported in number of spinal segments.		Adult;Pediatric	Supplemental	1.00	2016-06-01 14:59:35.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations	255	Free-Form Entry
C21745	Imaging posterior cranial basion dens axial interval flexion measurement	ImgPosCraFosBDIntrvlFleMeasr	The measurement as related to distance from basion to tip of odontoid in flexion	The measurement as related to distance from basion to tip of odontoid in flexion	BDI in flexion			Numeric Values			Adult;Pediatric	Exploratory	1.00	2016-06-01 15:10:37.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C21756	Imaging other incidental finding text	ImgOthrIncFindTxt	The free-text field related to report of any additional incidental findings (e.g.- Meniongioma, arachnoid cyst, tumor, stroke)	The free-text field related to report of any additional incidental findings (e.g.- Meniongioma, arachnoid cyst, tumor, stroke	Incidental imaging findings			Alphanumeric			Adult;Pediatric	Exploratory	1.00	2016-06-01 15:28:08.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations	4000	Free-Form Entry
C21735	Imaging syrinx lowest level spinal segment number	ImgSyrLowLvlSpiSegNum	The number as related to the lowest level of syrinx, reported in terms of most inferior spinal segment along syrinx	The number as related to the lowest level of syrinx, reported in terms of most inferior spinal segment along syrinx	Lowest level of syrinx			Alphanumeric	Identify location of single segment most inferior e.g., T5. Reported in number of spinal segments		Adult;Pediatric	Supplemental	1.00	2016-06-01 15:04:38.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations	255	Free-Form Entry
C21746	Imaging posterior cranial fossa clivus length measurement	ImgPosCraFosCliLenMeasr	The measurement as related to distance from dorsum sella to basion on midsagittal MRI	The measurement as related to distance from dorsum sella to basion on midsagittal MRI	Clivus Length			Numeric Values	Distance from dorsum sella to basion on midsagittal image.	Alperin et al Neurosurg 75(5) 515 2014	Adult;Pediatric	Supplemental	1.00	2016-06-01 15:16:13.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C21757	Imaging hydrocephalus ventriculomegaly finding indicator	ImgHydVenFindInd	The indicator related to presence of hydrocephalus/ventriculomegaly	The indicator related to presence of hydrocephalus/ventriculomegal	Hydrocephalus/Ventriculomegaly	No;Yes	No;Yes	Alphanumeric	Choose Yes / No		Adult;Pediatric	Exploratory	1.00	2016-06-01 15:29:11.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C21736	Imaging syrinx width measurement	ImgSyrWidMeasr	Greatest transverse diameter of hydrosyringomyelia on T2-WI as measured on MRI in the axial plane (in mm)	Greatest transverse diameter of hydrosyringomyelia on T2-WI as measured on MRI in the axial plane (in mm	Maximum transverse diameter of hydrosyringomyelia			Numeric Values	Greatest transverse diameter of hydrosyringomyelia on T1-WI as measured on MRI in the axial plane (in mm).		Adult;Pediatric	Supplemental	1.00	2016-06-01 15:06:23.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters
C21747	Imaging posterior cranial fossa supraoccipital length measurement	ImgPosCraFosCliSupLenMeasr	The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI	The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI	Supraoccipital Length			Numeric Values	Distance from opisthion to the most anterior aspect of the internal occipital protuberance on midsagittal image.	Alperin et al Neurosurg 75(5) 515 2014	Adult;Pediatric	Supplemental	1.00	2016-06-01 15:16:13.0	Chiari I Malformation Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry			Millimeters