CDE Detailed Report | NINDS Common Data Elements

Disease: Traumatic Brain Injury
Subdomain Name: Demographics
CRF: FITBIR Demographics Form

Displaying 101 - 123 of 123

CDE ID	CDE Name	Variable Name	Definition	Short Description	Question Text	Permissible Values	Description	Data Type	Disease Specific Instructions	Disease Specific Reference	Population	Classification (e.g., Core)	Version Number	Version Date	CRF Name (CRF Module / Guidance)	Subdomain Name	Domain Name	Size	Input Restrictions	Min Value	Max Value	Measurement Type	External Id caDSR
C21798	Living situation juvenile patient other text	SesPrimChildOTH	Living situation of juvenile patient other text	Living situation of juvenile patient other text	Other, specify			Alphanumeric			Adult;Pediatric	Supplemental	1.00	2016-06-03 08:49:58.0	FITBIR Demographics Form	Demographics	Participant Characteristics	4000	Free-Form Entry
C21981	Sport college primary participation other text	SportCollegePrimarPartOTH	Other sports the participant/subject played in college. A complimentary CDE for Primary college sport played by the participant/subject	Other sports the participant/subject played in college. A complimentary CDE for Primary college sport played by the participant/subjec	Other, specify			Alphanumeric			Adult;Pediatric	Supplemental	1.00	2016-06-06 18:26:32.0	FITBIR Demographics Form	Demographics	Participant Characteristics	4000	Free-Form Entry
C00222	Job classification category	JobclassCat	Category that classifies work performed by participant/subject	Category that classifies work performed by participant/subjec	What is the subject's current job classification?	Agricultural or fishery worker;Armed forces occupation;Clerk;Craft and related trades workers;Elementary occupations;Legislator, or senior official, or manager;Plant and machine operators and assemblers;Professional;Professional referral;Service or sales worker;Technicians and associate professionals;Not applicable;Unknown;Other, specify	Agricultural or fishery worker;Armed forces occupation (officers, service personnel);Clerk;Craft and related trades workers (e.g. motor mechanic, printer, tool and die makers, electrician);Elementary occupations (laborer, porter, unskilled workers);Legislator, or senior official, or manager;Plant and machine operators and assemblers;Professional;Professional referral;Service or sales worker;Technicians and associate professionals (typically requiring a Bachelor degree or equivilent);Not applicable;Unknown;Other, specify	Alphanumeric	For detailed definitions go to: http://www.who.int/healthinfo/survey/whsshortversionguide.pdf		Adult;Pediatric	Supplemental	3.00	2013-07-20 10:21:25.65	FITBIR Demographics Form	Demographics	Participant Characteristics		Single Pre-Defined Value Selected
C15994	Dependent children living in household number	DpndntChildLvngHshldNum	Number of dependent children living in household	Number of dependent children living in household	What is the number of dependent children living in the subject's household?			Numeric Values			Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	FITBIR Demographics Form	Demographics	Participant Characteristics		Free-Form Entry
C21809	Military deployment location	MilDeploy	Region or country to where participant/subject was deployed	Region or country to where participant/subject was deployed	Where was the subject deployed?	Iraq;Afghanistan;Africa;Germany;None;Other, specify	Iraq;Afghanistan;Africa;Germany;None;Other, specify	Alphanumeric	Region or country the military patient was deployed		Adult;Pediatric	Supplemental	1.00	2016-06-03 11:24:57.0	FITBIR Demographics Form	Demographics	Participant Characteristics		Multiple Pre-Defined Values Selected
C00008	Age value	AgeVal	Value for participant's age, calculated as elapsed time since the birth of the participant	Value for participant's age, calculated as elapsed time since the birth of the participant	Subject's age (recorded in years)			Numeric Values	The subject's age is typically recorded to the nearest full year completed, e.g., 11 years and 6 months should be recorded as 11 years. For subject's which are under 1 year old, use decimal points and use the following convention: record 1 month as 0.083 (1/12), 2 months as 0.166 (2/12), 3 months as 0.25 (3/12), 4 months as 0.333 (4/12), 5 months as 0.416 (5/12), 6 months as 0.5 (6/12), 7 months as 0.583 (7/12), 8 months as 0.666 (8/12), 9 months as 0.75 (9/12), 10 months as 0.833 (10/12), 11 months as 0.916 (11/12) and 12 months as 1 year.		Adult;Pediatric	Supplemental	3.10	2024-02-29 15:47:28.0	FITBIR Demographics Form	Demographics	Participant Characteristics		Free-Form Entry	0	1800	month
C21992	Sport professional primary participation other text	SportProfessionalPartOTH	Other sports the participant played professionally. A complimentary element for Primary professional sport played by the participant	Other sports the participant played professionally. A complimentary element for Primary professional sport played by the participan	Other, specify			Alphanumeric			Adult;Pediatric	Supplemental	1.00	2016-06-06 18:38:26.0	FITBIR Demographics Form	Demographics	Participant Characteristics	4000	Free-Form Entry
C18821	School placement other text	SchoolPlacementOTH	The free-text field related to 'School placement type' specifying other text. The description of the type of education the participant/subject receives with details of being with or without assistance	The free-text field related to 'School placement type' specifying other text. The description of the type of education the participant/subject receives with details of being with or without assistanc	Other, specify			Alphanumeric			Adult;Pediatric	Supplemental	3.00	2013-07-11 15:03:49.2	FITBIR Demographics Form	Demographics	Participant Characteristics	4000	Free-Form Entry
C21821	Sport junior high other participation text	JuniorHighSportOtherplayedTxt	The free-text field to specify which other sports participant/subject played in junior high school	The free-text field to specify which other sports participant/subject played in junior high school	Which other sports did the subject play in junior high school?			Alphanumeric	The free-text field to specify which other sports subject played in junior high school		Adult;Pediatric	Supplemental	1.00	2016-06-03 12:51:28.0	FITBIR Demographics Form	Demographics	Participant Characteristics	4000	Free-Form Entry
C00030	Race USA category	RaceUSACat	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categori	What is the subject's racial background (as defined by OMB)?	American Indian or Alaska Native;Asian;Black or African-American;Native Hawaiian or Other Pacific Islander;White;Unknown;Not Reported	A person having origins in any of the original peoples of North and South America (including Central America) , and who maintains tribal affiliation or community attachment.;A person having origins in any of the original peoples of the Far East, Southeast Asia, or the Indian subcontinent including, for example, Cambodia, China, India, Japan, Korea, Malaysia, Pakistan, the Philippine Islands, Thailand, and Vietnam.;A person having origins in any of the black racial groups of Africa. Terms such as "Haitian" can be used in addition to "Black or African American.";A person having origins in any of the original peoples of Hawaii, Guam, Samoa, or other Pacific Islands.;A person having origins in any of the original peoples of Europe, the Middle East, or North Africa.;Could not be determined or unsure;Not provided or unavailable	Alphanumeric	Choose all that apply. Response is obtained by report of the participant/subject or caretaker. Collecting information on race may not be allowed in some countries for concerns related to discrimination. In other countries, however, these concerns are considered a reason for recording race in order to guarantee equal access to care. Investigators receiving funding from the US National Institutes of Health (NIH) are required to report the number of subjects enrolled on an annual basis using the racial categories listed. The NIH Guidelines on Inclusion of Women and Minorities as Subjects in Clinical Research: The Office of Management and Budget (OMB) Directive No. 15 defines the minimum standard of basic racial and ethnic categories. (http://grants.nih.gov/grants/funding/women_min/guidelines_update.htm)	The NIH Guidelines on Inclusion of Women and Minorities as Subjects in Clinical Research: The Office of Management and Budget (OMB) Directive No. 15 defines the minimum standard of basic racial and ethnic categories. (http://grants.nih.gov/grants/funding/women_min/guidelines_update.htm) Collection of Race and Ethnicity Data in Clinical Trials (FDA, September 2005 - http://www.fda.gov/RegulatoryInformation/Guidances/ucm126340.htm) Jorde LB and Wooding SP. Genetic variation, classification and "race". Nature Genetics. 2004;36(11):S28-S33. Bhopal R and Donaldson L. White, European, Western, Caucasian, or What? Inappropriate labeling in Research on Race, Ethnicity, and Health. Amer J of Publ Health. 1998;88:1303-1307.	Adult;Pediatric	Core	3.00	2013-07-25 08:54:08.2	FITBIR Demographics Form	Demographics	Participant Characteristics		Multiple Pre-Defined Values Selected				2192199
C22692	Parent birth country name	ParentBirthCntryName	Name for country where the parent, guardian, or caregiver was born	Name for country where the parent, guardian, or caregiver was born	What is the parent's, guardian's, or caregiver's birth country name?			Alphanumeric	Choose one. It may be easier to record the full name of the country and code the data later using the ISO 3166-1 alpha-2 codes. Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born		Adult;Pediatric	Supplemental	3.00	2013-07-24 21:00:23.88	FITBIR Demographics Form	Demographics	Participant Characteristics	255	Free-Form Entry
C22707	Education level USA type other text	EduLvlUSATypOTH	The free-text field related to Education level USA type specifying other text. The highest level of education the participant/subject received	The free-text field related to Education level USA type specifying other text. The highest level of education the participant/subject receive	Other, specify			Alphanumeric			Adult;Pediatric	Supplemental	1.00	2016-08-22 10:51:20.0	FITBIR Demographics Form	Demographics	Participant Characteristics	255	Free-Form Entry
C21799	Living situation before injury type	LivingSituationPreInjTyp	Living situation of the participant/subject before injury	Living situation of the participant/subject before injur	What was the subject's living situation before injury?	Homeless/lives in shelter;Lives alone;Lives in group home/assisted living;Lives with friend(s) or roommate(s) or cohabiting;Lives with spouse and/or other family member(s);Data Missing/Refused/Unknown;Other, specify	Homeless/lives in shelter;Lives alone;Lives in group home/assisted living;Lives with friend(s) or roommate(s) or cohabiting;Lives with spouse and/or other family member(s);Data Missing/Refused/Unknown;Other, specify	Alphanumeric	Living situation of the participant/subject before injury.		Adult;Pediatric	Supplemental	1.00	2016-06-03 10:34:36.0	FITBIR Demographics Form	Demographics	Participant Characteristics		Single Pre-Defined Value Selected
C21982	Sport college other participation text	SportCollegeOtherPlaydTxt	College sports played other than primary sport	College sports played other than primary sport	Which other sports did the subject play in college?			Alphanumeric			Adult;Pediatric	Supplemental	1.00	2016-06-06 18:28:08.0	FITBIR Demographics Form	Demographics	Participant Characteristics	4000	Free-Form Entry
C04814	Residence type	ResdncTyp	Type of residence where the participant/subject is currently living	Type of residence where the participant/subject is currently living	What type of residence does the subject currently live in?	Hospital;Nursing home;Home;N/A - patient died;Other, specify;Unknown;Rehabilitation center	Hospital;Nursing home;Home;N/A - patient died;Other, specify;Unknown;Rehabilitation center	Alphanumeric			Adult;Pediatric	Supplemental	3.00	2013-07-20 10:21:25.65	FITBIR Demographics Form	Demographics	Participant Characteristics		Single Pre-Defined Value Selected
C15995	Household wage earners number	HshldWgeEarnNum	Number of wage earners in household	Number of wage earners in household	How many wage earners live in the subject's household?			Numeric Values	Refer to Household and Income.		Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	FITBIR Demographics Form	Demographics	Participant Characteristics		Free-Form Entry
C21810	Military deployment location other text	MilDeployOTH	Region or country to where participant/subject was deployed other text	Region or country to where participant/subject was deployed other text	Other, specify			Alphanumeric			Adult;Pediatric	Supplemental	1.00	2016-06-03 11:26:09.0	FITBIR Demographics Form	Demographics	Participant Characteristics	4000	Free-Form Entry
C00012	Education level USA type	EduLvlUSATyp	Highest grade or level of school participant/subject has completed or the highest degree received	Highest grade or level of school participant/subject has completed or the highest degree received	What best describes the highest level the subject completed in school?	Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown	Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown	Alphanumeric	Choose the highest level attained by the participant/subject.	National Health and Nutrition Examination Survey (NHANES); National Health Interview Survey (NHIS); PhenX Toolkit Current Educational Attainment #011001 (https: //www.phenxtoolkit.org)	Adult;Pediatric	Supplemental	3.00	2013-07-25 08:54:08.2	FITBIR Demographics Form	Demographics	Participant Characteristics		Single Pre-Defined Value Selected				3134878
C21993	Sport professional other participation text	SportProfessionlOtherPartTxt	Professional sports played other than primary sport	Professional sports played other than primary sport	Which other professional sports did the subject play?			Alphanumeric			Adult;Pediatric	Supplemental	1.00	2016-06-06 18:39:11.0	FITBIR Demographics Form	Demographics	Participant Characteristics	4000	Free-Form Entry
C19036	Education other text	EduOTH	The free-text field related to 'Education type' specifying other text. The type of education the participant/subject received	The free-text field related to 'Education type' specifying other text. The type of education the participant/subject receive	Other, specify			Alphanumeric			Adult;Pediatric	Supplemental	3.00	2013-07-16 14:01:43.01	FITBIR Demographics Form	Demographics	Participant Characteristics	4000	Free-Form Entry
C21822	Sport junior high other participation year count	JuniorHighSportOtherYrsCt	Total combined number of years participant/subject played sport(s) junior high school	Total combined number of years participant/subject played sport(s) junior high school	How many total combined years did the subject play other sports in junior high school?			Numeric Values	Total combined number of years subject played sport(s) junior high school		Adult;Pediatric	Supplemental	1.00	2016-06-03 12:52:39.0	FITBIR Demographics Form	Demographics	Participant Characteristics		Free-Form Entry	0	100
C00031	Race expanded category	RaceCat	Category of race(s) or region(s) the participant/subject most closely identifies with	Category of race(s) or region(s) the participant/subject most closely identifies with	What is the subject's racial background (expanded categories)?	Not reported;Other;Unknown;Black African American;Black African;Black Afro Caribbean;South/Central American Indian;North American Indian;Alaskan Native;Inuit;South Asian;Far Eastern Asian;Western Asian;White North American;White South American;White European;White Middle Eastern;White African;White Australian;Hawaiian;Pacific Islander;American Indian or Alaska Native;Caucasian;Asian-West;Asian-East;African-North	Not reported;Other;Unknown;Black African American (for OMB purposes, this value is considered to be part of Black or African-American);Black African (for OMB purposes, this value is considered to be part of Black or African-American);Black Afro Caribbean (for OMB purposes, this value is considered to be part of Black or African-American);South/Central American Indian (for OMB purposes, this value is considered to be part of American Indian or Alaska Native);North American Indian (for OMB purposes, this value is considered to be part of American Indian or Alaska Native);Alaskan Native (for OMB purposes, this value is considered to be part of American Indian or Alaska Native);Inuit (for OMB purposes, this value is considered to be part of American Indian or Alaska Native);South Asian (Indian subcontinent) (for OMB purposes, this value is considered to be part of Asian);Far Eastern Asian (e.g., China, Japan, Korea, etc.) (for OMB purposes, this value is considered to be part of Asian);Western Asian (e.g., Pakistan, Iraq, Iran) (for OMB purposes, this value is considered to be part of Asian);White North American (for OMB purposes, this value is considered to be part of White);White South American (for OMB purposes, this value is considered to be part of White);White European (for OMB purposes, this value is considered to be part of White);White Middle Eastern (for OMB purposes, this value is considered to be part of White);White African (for OMB purposes, this value is considered to be part of White);White Australian (for OMB purposes, this value is considered to be part of White);Hawaiian (for OMB purposes, this value is considered to be part of Native Hawaiian or Other Pacific Islander);Pacific Islander (for OMB purposes, this value is considered to be part of Native Hawaiian or Other Pacific Islander);A person having origins in any of the original peoples of North and South America (including Central America) , and who maintains tribal affiliation or community attachment.;Caucasian;Asian-West;Asian-East;African-North	Alphanumeric	Choose all that apply. Response is obtained by report of the participant/subject or caretaker. Collecting information on race may not be allowed in some countries for concerns related to discrimination. In other countries, however, these concerns are considered a reason for recording race in order to guarantee equal access to care. Investigators receiving funding from the US National Institutes of Health (NIH) are required to report the number of subject's enrolled on an annual basis using the racial categories listed.	The NIH Guidelines on Inclusion of Women and Minorities as Subjects in Clinical Research: The Office of Management and Budget (OMB) Directive No. 15 defines the minimum standard of basic racial and ethnic categories. (http: //grants.nih.gov/grants/funding/women_min/guidelines_update.htm) Collection of Race and Ethnicity Data in Clinical Trials (FDA, September 2005 - http: //www.fda.gov/RegulatoryInformation/Guidances/ucm126340.htm) <br />Jorde LB and Wooding SP. Genetic variation, classification and race . Nature Genetics. 2004;36(11): S28-S33. Bhopal R and Donaldson L. White, European, Western, Caucasian, or What? Inappropriate labeling in Research on Race, Ethnicity, and Health. Amer J of Publ Health. 1998;88: 1303-1307.	Adult;Pediatric	Core	3.00	2013-07-22 16:57:17.79	FITBIR Demographics Form	Demographics	Participant Characteristics		Multiple Pre-Defined Values Selected
C22693	Parent marital or partner status	ParentMartlPartnerStatus	Status of participant's/subject's parent, guardian, or caregiver's current domestic relationship, whether marital or partnered	Status of participant's/subject's parent, guardian, or caregiver's current domestic relationship, whether marital or partnered	What is the parent's, guardian's, or caregiver's marital status?	Never married;Married;Domestic partnership;Divorced;Separated;Widowed	Never married;Married;Domestic partnership;Divorced;Separated;Widowed	Alphanumeric	STROKE: Johnson NJ, Backlund E, Sorlie PD, Loveless CA. Marital status and mortality: the national longitudinal mortality study. Ann Epidemiol. 2000;10:224-238. NCI CDE Browser Public ID = 2188083 Status of participant/subjects current domestic relationship, whether marital or partnered	Johnson NJ, Backlund E, Sorlie PD, Loveless CA. Marital status and mortality: the national longitudinal mortality study. Ann Epidemiol. 2000;10: 224-238.	Adult;Pediatric	Supplemental	3.00	2013-07-25 08:54:08.2	FITBIR Demographics Form	Demographics	Participant Characteristics		Single Pre-Defined Value Selected				2188083