CDE Detailed Report

Disease: Chiari I Malformation
Sub-Domain: Classification
CRF: Chiari List of 10

Displaying 1 - 10 of 10
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C21694 Chiari I malformation unsteady stand walk symptom indicator CMUnstdyStndWlkSympInd The indicator related to feelings of unsteadiness when standing or walking in defining signs and symptoms for Chiari I malformation. The indicator related to feelings of unsteadiness when standing or walking in defining signs and symptoms for Chiari I malformation. Feelings of unsteadiness when standing or walking? Yes;No Yes;No Alphanumeric

Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.

Adult;Pediatric Exploratory 1.00 2016-05-27 08:55:33.0 Chiari List of 10 Classification Disease/Injury Related Events

Single Pre-Defined Value Selected

C21695 Chiari I malformation headache pressure eye ear light sensitive symptom indicator CMHdchPrsEyeEarLghtSnsSympInd The indicator related to any feeling of pressure in your eyes/ears or sensitivity to light in defining signs and symptoms for Chiari I malformation. The indicator related to any feeling of pressure in your eyes/ears or sensitivity to light in defining signs and symptoms for Chiari I malformation. Headache associated with any feeling of pressure in your eyes/ears or sensitivity to light? Yes;No Yes;No Alphanumeric

Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.

Adult;Pediatric Exploratory 1.00 2016-05-27 09:01:06.0 Chiari List of 10 Classification Disease/Injury Related Events

Single Pre-Defined Value Selected

C21696 Chiari I malformation headache strain activity worsen symptom indicator CMHdcheStnActWrsnSympInd The indicator related to headache worsened by straining activities in defining signs and symptoms for Chiari I malformation. The indicator related to headache worsened by straining activities in defining signs and symptoms for Chiari I malformation. Headache worsened by straining activities such as: coughing, sneezing, shouting, laughing, crying, bowel movements, sexual activity, or lifting? Yes;No Yes;No Alphanumeric

Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.

Adult;Pediatric Supplemental-Highly Recommended 1.00 2016-05-27 09:11:23.0 Chiari List of 10 Classification Disease/Injury Related Events

Single Pre-Defined Value Selected

C21697 Chiari I malformation chronic fatigue short-term memory loss irritable symptom indicator CMChrFtgShtTrmMemLssIrSympInd The indicator related to complaints of chronic fatigue, short-term memory loss or irritability in defining signs and symptoms for Chiari I malformation. The indicator related to complaints of chronic fatigue, short-term memory loss or irritability in defining signs and symptoms for Chiari I malformation. Complaints of chronic fatigue, short-term memory loss, or irritability? Yes;No Yes;No Alphanumeric

Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.

Adult;Pediatric Exploratory 1.00 2016-05-27 09:15:12.0 Chiari List of 10 Classification Disease/Injury Related Events

Single Pre-Defined Value Selected

C21698 Chiari I malformation generalize weakness stiff arm leg symptom indicator CMGnWkStfArmLgSympInd The indicator related to generalized weakness/stiffness of your arms and legs in defining signs and symptoms for Chiari I malformation. The indicator related to generalized weakness/stiffness of your arms and legs in defining signs and symptoms for Chiari I malformation. Generalized weakness/stiffness of your arms and legs? Yes;No Yes;No Alphanumeric

Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.

Adult;Pediatric Exploratory 1.00 2016-05-27 09:20:19.0 Chiari List of 10 Classification Disease/Injury Related Events

Single Pre-Defined Value Selected

C21699 Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator CMShBrBlVsRnErUrnUrgHrPlSymInd The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation. The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation. Complaints of shortness of breath, blurred vision, ringing in your ears, urinary urgency, or heart palpitations? Yes;No Yes;No Alphanumeric

Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.

Adult;Pediatric Exploratory 1.00 2016-05-27 09:24:40.0 Chiari List of 10 Classification Disease/Injury Related Events

Single Pre-Defined Value Selected

C21690 Chiari I malformation headache pressure daily occurrence indicator CMHdPrDlOcInd Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation. Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation. Headache pain/pressure at the back or base of your head, which is almost a daily occurrence? Yes;No Yes;No Alphanumeric

Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.

Adult;Pediatric Supplemental 1.00 2016-05-26 16:11:50.0 Chiari List of 10 Classification Disease/Injury Related Events

Single Pre-Defined Value Selected

C21691 Chiari I malformation neck pain stiff radiate shoulder symptom indicator CMNckPnSfRdShSympInd The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation. The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation. General neck pain/stiffness that may radiate to your shoulders? Yes;No Yes;No Alphanumeric

Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.

Adult;Pediatric Exploratory 1.00 2016-05-26 17:53:02.0 Chiari List of 10 Classification Disease/Injury Related Events

Single Pre-Defined Value Selected

C21692 Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator CMPrkTngNmbArmLgFrqOcSymInd The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation. The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation. Frequent prickling, tingling, or numbness in your arms/legs? Yes;No Yes;No Alphanumeric

Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.

Adult;Pediatric Supplemental 1.00 2016-05-26 17:58:16.0 Chiari List of 10 Classification Disease/Injury Related Events

Single Pre-Defined Value Selected

C21693 Chiari I malformation position change dizzy symptom indicator CMPosChngDzySympInd The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation. The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation. Dizziness with position changes? Yes;No Yes;No Alphanumeric

Symptom list in descending order of frequency from 82 to 51% among a population of 850 patients evaluated for Chiari I malformation at The Chiari Institute from 1/1/07 to 12/20/08.
The data analysis was provided by Dr. Yosef Dlugacz and his group at the Krasnoff Quality Management Institute.

Adult;Pediatric Supplemental 1.00 2016-05-27 08:49:49.0 Chiari List of 10 Classification Disease/Injury Related Events

Single Pre-Defined Value Selected

CSV