CDE Detailed Report

Disease: General (For all diseases)
Sub-Domain: NIH Resources
CRF: Neuro-QOL Adult Bank - Ability to Participate in SRA

Displaying 1 - 45 of 45
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C21157 Quality of Life - Family activity expectation complete past week scale QoLFamActvtyExpctatnCompletScl The scale representing how often the participant was able to do all of the family activities that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the family activities that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I am able to do all of the family activities that people expect me to do. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21189 Quality of Life - Work limit complete past week scale QoLWorkLimitCompleteScl The scale representing how often the participant was limited in doing their work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was limited in doing their work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was limited in doing their work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21168 Quality of Life - Hobby activity complete past week scale QoLHobbyActivityCompleteScl The scale representing how often the participant was able to do their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21147 Quality of Life - Family responsibility maintain past week scale QoLFamlyResponsbltyMaintainScl The scale representing how often the participant could keep up with their family responsibilities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant could keep up with their family responsibilities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I can keep up with my family responsibilities. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21179 Quality of Life - No difficulty errand complete past week scale QoLNoDiffcultyErrndCompleteScl The scale representing how often the participant was able to run errands without difficulty in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to run errands without difficulty in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to run errands without difficulty in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21158 Quality of Life - Family activity want complete past week scale QoLFamilyActivtyWantComplScl The scale representing how often the participant was able to do all of the family activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the family activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I am able to do all of the family activities that I want to do. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21190 Quality of Life - Work satisfactory complete past week scale QoLWorkSatisfactoryCompleteScl The scale representing how often the participant was able to do all of the work that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the work that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the work that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21169 Quality of Life - Community activity want complete past week scale QoLCommActivityWantCompletScl The scale representing how often the participant was able to do all of the community activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the community activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the community activities that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21148 Quality of Life - Regular family activity ability past week scale QoLRegulrFamilyActvityAbltyScl The scale representing how often the participant was able to do all of their regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of their regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I am able to do all of my regular family activities. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21180 Quality of Life - Work usual abililty complete past week scale QoLWorkUsualAbilityCompleteScl The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of their usual work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21159 Quality of Life - Friendship maintain past week scale QoLFriendshipMaintainScl The scale representing how often the participant was able to maintain friendships as much as they would like in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to maintain friendships as much as they would like in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I am able to maintain my friendships as much as I would like. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21191 Quality of Life - Work shorter time period past week scale QoLWorkShorterTimePeriodScl The scale representing how often the participant had to do their work for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to do their work for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to do their work for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21170 Quality of Life - Leisure activity satisfactory complete past week scale QoLExpLeisrActvStsfctCmpltScl The scale representing how often the participant was able to do all of the leisure activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the leisure activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the leisure activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21149 Quality of Life - Social interaction friend ability past week scale QoLSocialInterctnFrndAbltyScl The scale representing how often the participant was able to socialize with their friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to socialize with their friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I am able to socialize with my friends. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21181 Quality of Life - Work usual complete past week scale QoLWorkUsualCompleteScl The scale representing how often the participant was accomplishing as much as usual at work for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was accomplishing as much as usual at work for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was accomplishing as much as usual at work for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21160 Quality of Life - Friend need satisfactory complete past week scale QoLFriendNeedSatsfctryCmpltScl The scale representing how often the participant could do everything for their friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant could do everything for their friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant could do everything for their friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21171 Quality of Life - Hobby leisure activity decrease time period past week scale QoLHbbyLeisrActvtyDecrseTmeScl The scale representing how often the participant had to do their hobbies or leisure activities for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to do their hobbies or leisure activities for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to do their hobbies or leisure activities for shorter periods of time than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21150 Quality of Life - Regular friend activity ability complete past week scale QoLRegFrndActvtyAbltyCmplteScl The scale representing how often the participant was able to do all of their regular activities with friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of their regular activities with friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I am able to do all of my regular activities with friends. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21182 Quality of Life - Good work ability complete past week scale QoLGoodWorkAbilityCompleteScl The scale representing how often the participant's ability to do their work was as good as it could be (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant's ability to do their work was as good as it could be (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant's ability to do their work was as good as it could be (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21161 Quality of Life - Friend satisfy expectation activity ability past week scale QoLFriendSatisfExpecAbilityScl The scale representing how often the participant was able to do all of the activities with friends that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the activities with friends that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the activities with friends that people expected them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21172 Quality of Life - Social activity outside home limit complete past week scale QoLSocAcvtyOutsdHmeLmtCmpltScl The scale representing how often the participant had to limit activities outside of their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to limit activities outside of their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to limit activities outside of their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21151 Quality of Life - Social commitment maintain past week scale QoLSocialCommitmentMaintainScl The scale representing how often the participant was able to keep up with their social commitments in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to keep up with their social commitments in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I can keep up with my social commitments. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21183 Quality of Life - Work everything ability past week scale QoLWorkEverythingAbilityScl The scale representing how often the participant could do everything for work that they wanted do (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant could do everything for work that they wanted do (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant could do everything for work that they wanted do (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21162 Quality of Life - Friend visit limit ability past week scale QoLFriendVisitLimtAbilityScl The scale representing how often the participant felt limited in their ability to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant felt limited in their ability to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant felt limited in their ability to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21173 Quality of Life - Social communication maintanence trouble past week scale QoLSocCommnctnMaintnceTrblScl The scale representing how often the participant had trouble keeping in touch with others in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had trouble keeping in touch with others in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had trouble keeping in touch with others in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21152 Quality of Life - Activity leisure participate past week scale QoLActvtyLeisurPartcptScl The scale representing how often the participant was able to participate in leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to participate in leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I am able to participate in leisure activities. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21184 Quality of Life - Regular chore trouble complete past week scale QoLReglrChoreTrbleCompleteScl The scale representing how often the participant had trouble doing their regular chores or tasks in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had trouble doing their regular chores or tasks in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had trouble doing their regular chores or tasks in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21163 Quality of Life - Friend activity satisfactory past week scale QoLFriendActivitySatisfactScl The scale representing how often the participant was able to do all of the activities with friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the activities with friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the activities with friends that they wanted to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21174 Quality of Life - Participant leisure activity satisfactory complete past week scale QoLLeisrActvtyStsfctryCmpltScl The scale representing how often the participant could do all of the leisure activities that they wanted in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant could do all of the leisure activities that they wanted in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant could do all of the leisure activities that they wanted in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21153 Quality of Life - Daily routine perform past week scale QoLDailyRoutnPerformScl The scale representing how often the participant was able to perform their daily routines in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to perform their daily routines in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I am able to perform my daily routines. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21185 Quality of Life - All work satisfactory complete past week scale QoLAllWorkSatsfactryCmpletScl The scale representing how often the participant was able to do all of the work that people expected of them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the work that people expected of them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the work that people expected of them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21164 Quality of Life - Friend visit limit time past week scale QoLFriendVisitLimitTimeScl The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant felt limited in the amount of time they had to visit friends in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21175 Quality of Life - Community activity ability complete past week scale QoLCommActivityAbilityComplScl The scale representing how often the participant was able to do all of the community activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the community activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of the community activities that people expect them to do in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21154 Quality of Life - Work responsibility maintain ability past week scale QoLWrkRspnsbltyMaintnAbltyScl The scale representing how often the participant could keep up with their work responsibilities (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant could keep up with their work responsibilities (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I can keep up with my work responsibilities (include work at home). 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21186 Quality of Life - Work home limit complete past week scale QoLWorkHomeLimitCompleteScl The scale representing how often the participant was limited in doing their work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was limited in doing their work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was limited in doing their work (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21165 Quality of Life - Home fun limit activity past week scale QoLHomeFunLimitActivityScl The scale representing how often the participant had to limit the things they do for fun at home (like reading, listening to music, etc) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to limit the things they do for fun at home (like reading, listening to music, etc) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to limit the things they do for fun at home (like reading, listening to music, etc) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21176 Quality of Life - Outside home entertainment want satisfication past week scale QoLOutsdeEntrtnmntWntStfctnScl The scale representing how often the participant was able to go out for entertainment as much as I want in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to go out for entertainment as much as I want in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to go out for entertainment as much as I want in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21155 Quality of Life - Family need satisfaction problem past week scale QoLFamNeedSatisfactnProblemScl The scale representing how often the participant had trouble meeting the needs of their family in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had trouble meeting the needs of their family in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I have trouble meeting the needs of my family. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21187 Quality of Life - Work home decrease time period ability past week scale QoLWrkHmeDecreasTmeAbltyScl The scale representing how often the participant had to do their work for shorter periods of time than usual for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to do their work for shorter periods of time than usual for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to do their work for shorter periods of time than usual for them (include work at home) in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21166 Quality of Life - Regular leisure activity ability complete past week scale QoLRegLesurActvtyAbltyCmpltScl The scale representing how often the participant was able to do all of their regular leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of their regular leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of their regular leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21177 Quality of Life - Outside home entertainment limit ability past week scale QoLOutsdeHmEntrtnmtLmtAbltyScl The scale representing how often the participant had to limit the things they do for fun outside their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to limit the things they do for fun outside their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to limit the things they do for fun outside their home in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21156 Quality of Life - Regular family activity limit ability past week scale QoLRegFamActivtyLimitAblityScl The scale representing how often the participant had to limit regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to limit regular family activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. In the past 7 days I have to limit my regular family activities. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21188 Quality of Life - Work usual ability past week scale QoLWorkUsualAbilityScl The scale representing how often the participant was able to do all of their usual work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of their usual work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant was able to do all of their usual work in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;4;3;2;1 always;Often;Sometimes;Rarely;Never Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21167 Quality of Life - Hobby leisure activity limit complete past week scale QoLHobbyLeisrActvtyLmtCmpltScl The scale representing how often the participant had to limit their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to limit their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant had to limit their hobbies or leisure activities in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

C21178 Quality of Life - Group social activity decrease complete past week scale QoLGrpSocActvtyDecrsCompltScl The scale representing how often the participant did fewer social activities with groups of people than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant did fewer social activities with groups of people than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. The scale representing how often the participant did fewer social activities with groups of people than usual for them in the past 7 days, as part of Neuro-QOL Ability to Participate in SRA. 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values

Part of Neuro-QOL Adult Bank - Ability to Participate in SRA

Adult;Pediatric Supplemental 1.00 2015-07-15 16:11:38.0 Neuro-QOL Adult Bank - Ability to Participate in SRA NIH Resources NIH Resources

Single Pre-Defined Value Selected

CSV