CDE Detailed Report | NINDS Common Data Elements

Disease: Congenital Muscular Dystrophy
Subdomain Name: Imaging Diagnostics
CRF: Muscle Imaging

Displaying 1 - 11 of 11

CDE ID	CDE Name	Variable Name	Definition	Short Description	Question Text	Permissible Values	Description	Data Type	Disease Specific Instructions	Disease Specific Reference	Population	Classification (e.g., Core)	Version Number	Version Date	CRF Name (CRF Module / Guidance)	Subdomain Name	Domain Name	Size	Input Restrictions
C19702	Imaging muscle MRI ultrasound pattern congenital muscular disease not consistent text	ImgMusMRIUltPattrnCMDNotConTxt	The free-text field related to pattern identified not being consistent with a pattern described in a CMD subtype and 'Pattern Consistent with CMD Subtype Indicator'	The free-text field related to pattern identified not being consistent with a pattern described in a CMD subtype and 'Pattern Consistent with CMD Subtype Indicator	If No, specify			Alphanumeric		No references available	Adult;Pediatric	Supplemental	1.00	2015-01-30 11:33:22.0	Muscle Imaging	Imaging Diagnostics	Assessments and Examinations	4000	Free-Form Entry
C06005	Data collected date and time	DataCollDateTime	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performe	Date Performed			Date or Date & Time	The preferred format for recording date is MM/YYYY. 99/9999 can be used to indicate an unknown date.	No references available	Adult;Pediatric	Supplemental	3.00	2013-07-24 21:00:23.88	Muscle Imaging	Imaging Diagnostics	Assessments and Examinations		Free-Form Entry
C19679	Imaging muscle MRI ultrasound performed type	ImgMuscMRIUltrsndPerfType	Type of muscle magnetic resonance imaging or ultrasound performed	Type of muscle magnetic resonance imaging or ultrasound performed	Test	Muscle MRI;Ultrasound	Muscle MRI;Ultrasound	Alphanumeric	Record whether a Muscle MRI or Ultrasound was performed.	No specific references	Adult;Pediatric	Supplemental	1.00	2015-01-29 12:19:32.0	Muscle Imaging	Imaging Diagnostics	Assessments and Examinations		Multiple Pre-Defined Values Selected
C19680	Imaging thigh muscle anatomic site	ImagThghMuscAntmicSite	The name of the thigh muscles that were tested	The name of the thigh muscles that were tested	Thigh Muscles Tested	Vastus Intermedius;Vastus Lateralis;Vastus Medialis;Adductor Longus;Adductor Magnus;Biceps Femoris;Semimembranosus;Semitendinosus;Gracilis;Sartorius;Rectus Femoris	Vastus Intermedius;Vastus Lateralis;Vastus Medialis;Adductor Longus;Adductor Magnus;Biceps Femoris;Semimembranosus;Semitendinosus;Gracilis;Sartorius;Rectus Femoris	Alphanumeric	Choose all that apply. Record the names of the thigh muscles that were tested.	No references available	Adult;Pediatric	Supplemental	1.00	2015-01-29 12:51:11.0	Muscle Imaging	Imaging Diagnostics	Assessments and Examinations		Multiple Pre-Defined Values Selected
C19681	Imaging MRI muscle level of involvement status	ImgMRIMuscLvlInvlvStatus	The level of involvement status for the muscle tested on the muscle MRI	The level of involvement status for the muscle tested on the muscle MRI	Level of Involvement on MRI	No;Yes-severe;Yes-mild/moderate	No;Yes-severe;Yes-mild/moderate	Alphanumeric	Choose only one. Record the level of involvement of the muscle tested on the MRI	No references available	Adult;Pediatric	Supplemental	1.00	2015-01-29 13:17:45.0	Muscle Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C19682	Imaging ultrasound muscle level of involvement status	ImgUltrsndMuscLvlInvlvStatus	The level of involvement status for the muscle tested on the ultrasound	The level of involvement status for the muscle tested on the ultrasound	Level of Involvement on Ultrasound	No;Yes-severe;Yes-mild/moderate	No;Yes-severe;Yes-mild/moderate	Alphanumeric	Choose only one. Record the level of involvement of the muscle tested on the ultrasound.	No references available	Adult;Pediatric	Supplemental	1.00	2015-01-29 13:23:53.0	Muscle Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C19683	Imaging ultrasound muscle pattern type	ImgUltrsndMuscPattrnTyp	The type of muscle pattern displayed on the ultrasound	The type of muscle pattern displayed on the ultrasound	Pattern on Ultrasound	Mixed;Streak-like;Granular	Mixed;Streak-like;Granular	Alphanumeric	Choose only one. Record the type of pattern found on the ultrasound.	No references available	Adult;Pediatric	Supplemental	1.00	2015-01-29 13:29:20.0	Muscle Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C19684	Imaging calf muscle location anatomic site	ImgCalfMuscLocAntmicSite	The name of the calf muscles that were tested	The name of the calf muscles that were teste	Calf Muscles Tested	Extensor Digitorum Longus;Extensor Digitorium Brevis;Peroneus Longus;Gastrocnemius: Medial;Gastronemius: Lateral;Tibialis anterior;Tibialis posterior;Soleus	Extensor Digitorum Longus;Extensor Digitorium Brevis;Peroneus Longus;Gastrocnemius: Medial;Gastronemius: Lateral;Tibialis anterior;Tibialis posterior;Soleus	Alphanumeric	Choose all that apply. Record the names of the calf muscles that were tested.	No references available	Adult;Pediatric	Supplemental	1.00	2015-01-29 13:36:39.0	Muscle Imaging	Imaging Diagnostics	Assessments and Examinations		Multiple Pre-Defined Values Selected
C19685	Imaging MRI ultrasound location text	ImgMRIUltrsndLoc	Location of Muscle MRI or Ultrasound performed	Location of Muscle MRI or Ultrasound performed	Where Preformed?			Alphanumeric	Record the location of the test that was performed.	No references available	Adult;Pediatric	Supplemental	1.00	2015-01-29 13:57:14.0	Muscle Imaging	Imaging Diagnostics	Assessments and Examinations	4000	Free-Form Entry
C19686	Imaging muscle MRI ultrasound pattern indicator	ImgMusMRIUltPattrnInd	Indicator for pattern seen in muscle MRI or ultrasound performed	Indicator for pattern seen in muscle MRI or ultrasound performed	Is a pattern seen?	No;Yes	No;Yes	Alphanumeric	Indicate whether a pattern was seen on the muscle MRI or ultrasound.	No references available	Adult;Pediatric	Supplemental	1.00	2015-01-29 17:17:47.0	Muscle Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected
C19701	Imaging muscle MRI ultrasound pattern congenital muscular disease consistent indicator	ImgMusMRIUltPattrnCMDConInd	Indicator of the pattern identified is consistent with a pattern described in a CMD subtype	Indicator of the pattern identified is consistent with a pattern described in a CMD subtype	If yes, is this pattern consistent with one described in a CMD subtype?	Yes;No, specify	Yes;No, specify	Alphanumeric	If a pattern was seen, Indicate whether it is consistent with a pattern found in a CMD subtype	No references available	Adult;Pediatric	Supplemental	1.00	2015-01-30 11:17:35.0	Muscle Imaging	Imaging Diagnostics	Assessments and Examinations		Single Pre-Defined Value Selected