CDE Detailed Report

Disease: Facioscapulohumeral Muscular Dystrophy
Sub-Domain: Social Status
CRF: Social Status

Displaying 1 - 9 of 9
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C00015 Education year count EduYrCt Number of years of education completed (age 5 and beyond) Number of years of education completed (age 5 and beyond) Years of Education (0–30) Numeric Values

Number of years of education completed (age 5 and beyond)

Adult;Pediatric Supplemental 3.00 2013-07-22 16:57:17.79 Social Status Social Status Participant Characteristics

Free-Form Entry

0 30 year 3134878
C00202 Education school participation status EduSchoolParticipStatus Status of participant/subject's current attendance at school Status of participant/subject's current attendance at school School status Going to school;On vacation from school (between grades);Neither;Unknown Going to school;On vacation from school (between grades);Neither;Unknown Alphanumeric

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National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm) Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 Social Status Social Status Participant Characteristics

Single Pre-Defined Value Selected

C00204 Employment current status EmplmtStatu Status of participant/subject's current employment Status of participant/subject's current employment Employment status Working Now;Only temporarily laid off, sick leave, or maternity leave;Looking for work, unemployed;Retired;Other, specify;Disabled, permanently or temporarily;Keeping house;Student;Unknown Working Now;Only temporarily laid off, sick leave, or maternity leave;Looking for work, unemployed;Retired;Other, specify;Disabled, permanently or temporarily;Keeping house;Student;Unknown Alphanumeric

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National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm) Adult;Pediatric Supplemental 3.00 2013-08-28 16:08:00.453 Social Status Social Status Participant Characteristics

Single Pre-Defined Value Selected

C00207 Marital or partner status MartlPartnerStatus Status of participant/subject's current domestic relationship, whether marital or partnered Status of participant/subject's current domestic relationship, whether marital or partnered Marital/partner status Never married;Married;Domestic partnership;Divorced;Separated;Widowed Never married;Married;Domestic partnership;Divorced;Separated;Widowed Alphanumeric

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Johnson NJ, Backlund E, Sorlie PD, Loveless CA. Marital status and mortality: the national longitudinal mortality study. Ann Epidemiol. 2000;10:224-238. Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 Social Status Social Status Participant Characteristics

Single Pre-Defined Value Selected

2188083
C10678 Employment full-time status EmplymtFullTimeStatus Status of participant/subject's current full-time employment Status of participant/subject's current full-time employment Full time employment status Yes;No;Hours vary;Unknown Yes;No;Hours vary;Unknown Alphanumeric

Works 35 hours or more per week

No references available Adult;Pediatric Supplemental 3.00 2013-08-28 16:08:00.453 Social Status Social Status Participant Characteristics

Single Pre-Defined Value Selected

C12819 Disability benefit indicator DisabltyBenefitInd Indicator of whether participant/subject receives disability benefit payments Indicator of whether participant/subject receives disability benefit payments Disability benefits Yes;No;Unknown Yes;No;Unknown Alphanumeric

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No references available Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Social Status Social Status Participant Characteristics

Single Pre-Defined Value Selected

C18677 Employment other text EmplmtOTH The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment Other, specify Alphanumeric National Health and Nutrition Examination Survey (http://www.cdc.gov/nchs/nhanes.htm) Adult;Pediatric Supplemental 1.00 2014-05-27 13:34:46.0 Social Status Social Status Participant Characteristics 4000

Free-Form Entry

C19287 Income basic needs status IncomeBasicNeedsStatus The status of how the household currently manages to meet basic needs as defined by food, shelter and clothing. The status of how the household currently manages to meet basic needs as defined by food, shelter and clothing. How do you get along with your current household income? Very well;Very poorly;Unknown;Refused to answer;Rather well;Rather poorly;Adequately (neither well nor poorly) Very well;Very poorly;Unknown;Refused to answer;Rather well;Rather poorly;Adequately (neither well nor poorly) Alphanumeric

Choose one. The status of how the household currently manages to meet basic needs as defined by food, shelter and clothing.

Adult;Pediatric Supplemental 1.00 2014-06-06 11:03:24.0 Social Status Social Status Participant Characteristics

Single Pre-Defined Value Selected

C19503 Caregiver primary indicator CaregvrPrimryInd Indicator of whether participant/subject has a primary caregiver Indicator of whether participant/subject has a primary caregiver Primary caregiver for the participant/ subject No;Yes;Unknown No;Yes;Unknown Alphanumeric

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Adult;Pediatric Supplemental 1.00 2014-06-24 10:31:16.0 Social Status Social Status Participant Characteristics

Single Pre-Defined Value Selected

CSV