CDE Detailed Report

Identifies whether the anatomic site and laterality type describes the fracture, heterotopic ossification, contracture, or degenerative change/overuse

Within the last four weeks, choose one. The need to wear a pad only for urinary incontinence should not be included.

Choose one. When querying individuals about reflex arousal it is recommended that the interviewer focus on the woman's awareness of vaginal lubrication as opposed to clitoral engorgement.

Choose one

Choose one for each neuro-musculoskeletal condition (fracture, heterotopic ossification, contracture, or degenerative change/overuse)

For each medication type indicate if it was used. This element does not only include orally taken agents, patches, suppositories, injections, or laxatives.
A number of drugs affect gastrointestinal motility. The most commonly used among individuals with SCI are probably anticholinergics and narcotics. Other common examples are: calcium antagonists, diuretics, serotonin reuptake inhibitors, and spasmolytics. Many drugs affect gastrointestinal function and it is impractical to give an exact list of them all. It does not only include orally taken agents but also patches, suppositories and injections. It does not include laxatives.
Constipating agents, especially loperamide, taken by a minority of individuals with SCI against fecal incontinence should also be listed here.

Choose one
Normal refers to reports by individuals that there is no change in their ability to achieve orgasm or sensations or orgasm subsequent to their spinal cord lesion.
Reduced/altered, orgasm occurs after spinal cord lesion even if itis reported to take longer to occur and/or the feelings associated with orgasm are different, i.e. may be possible, though partially impaired.
Absent refers to inability to achieve orgasm after spinalcord lesion despite trying to achieve orgasm on multiple occasions.
Unknown refers to reports by individuals that they have not been sexually active thus they do not know if they are able to achieve orgasm after spinal cord lesion.

Choose one

Choose one
Hyperthermia, usually defined as rectal temperature above 38.4 C, as well as hypothermia, defined as rectal temperature below 35 C may be caused by an infection. Hyper and hypothermia may also be caused by non infectious reasons as exercise or by increased or decreased environmental temperature; the individual with spinal cord lesion is prone tobe poikilothermic. Hyperhidrosis is defined as excessive sweating above or below level of injury in the absence of increased ambient temperature. Hyperhidrosis may be a sign of an ongoing pathological process such as syringomyelia, autonomic dysreflexia, or dyspepsia or may accompany micturition and defecation. Hyperhidrosis may also be present without any known cause. Hypohidrosis is defined as a loss of ability to sweat and is normally seen below the level of injury due to disruption of sympathetic outflow. Hypohidrosis may be total or partial. Other thermoregulatory (for example subjective feeling of coldness) and sudomotor findings may be present and should be specified.

Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).

(within the last four weeks)

Choose one
Normal refers to no change in duration, frequency or quantity of menstrual flow and no change in subjective experience or symptoms of menstruation after the spinal cord lesion.
Reduced/altered, i.e. menstruation has been initiated, though partially impaired or changed. This refers to a change in theduration, frequency or amount of menstrual blood flow after spinal cord lesion. It can also refer to a change in the quality of sensations or other autonomic phenomena associated with menses.
Unknown means the impact of the spinal cord lesion on menstruation is unknown.
Not applicable means the woman was not menstruating at the time of spinal cord lesion, thus there is not an impact on menstruation.

For each perianal problem indicate if it was experienced. Perianal problems may change with time and only those present within the last year should be noted.

Choose one. If yes than specify the condition.

Choose one

The presence of spasticity / spasms in the upper and lower extremities is captured using the modified Ashworth scale (MAS), i.e. greater than 1 on the MAS, or observation of spasms.

For each perianal problem indicate if it was experienced. Perianal problems may change with time and only those present within the last year should be noted.
Due to staining and assisted defecation haemorrhoids, fissures, and rectal prolapse are more common among individuals with SCI than in the general population. Anal soiling may contribute to perianal sores. In the present data set perianal sores are located within the crena ani or the perineum and not on the buttocks or lower back. For practical purposes no distinction is made in the present data set between rectal mucosal prolapse and full-wall rectal prolapse.

Choose one
In able-bodied men erections are usually a combination of psychogenic and reflex; however, in men with spinal cord lesions, varying types of erectile function may be preserved (Courtois, 1993, 1995; Giuliano 1995).
Psychogenic erection potential may be based on degree of preservation of sensory function in T11-L2 dermatomes.

For each bowel care position indicate if it was used within the last three months

Choose one
A pressure ulcer could be present at any time post spinal cord injury. This variable documents the presence of pressure ulcer(s) at the time of investigation. An ulcer is usually seen on prominent body structures and caused by pressure on the region. The location of the pressure ulcer should be documented including right/left side of the body when applicable.

Record any assistance device utilized at the time of evaluation to augment ventilation. For each device indicate if it was utilized at the time of evaluation.
Respiratory insufficiency is common following spinal cord lesions. Ventilatory assistance devices include, but are not limited to: mechanical ventilators, phrenic nerve stimulators, diaphragmatic pacers, external
negative pressure devices, and bi-level positive airway pressure (BiPAP). These devices do not include routine administration of oxygen, intermittent positive pressure breathing (IPPB), or continuous positive airway pressure (CPAP). Wording of this variable reflects the International Spinal Cord Injury Core Data Set for the type of ventilatory assistance used to sustain respiration at discharge after the initial rehabilitation period following the spinal lesion (DeVivo et al. 2006). As the situation may have changed since discharge from the initial inpatient period the question is asked.