CDE Detailed Report

Note: The scale presented here is not based on the original article. It has become common practice in clinical trial administration to use this modified version that places the scores in reverse order (i.e., "good recovery" = 1, "moderate disability" =2, etc.).

If No, register Vegetative State (VS) and skip to end of form and record GOS-E Peds Score = 7.

An individual who shows the ability to obey even simple commands or utter any word or communicate specifically in any other way is no longer considered to be in a vegetative state. Eye movements are not reliable evidence of meaningful responsiveness; corroborate with nursing staff and the child's parents when possible. Confirmation of VS requires full assessment as in the Royal College of Physician Guidelines. However, for infants, actively following the movement of a parent or people/object with eyes, grasping for objects, making faces, etc. are interactions; breast feeding and crying continuously can be reflexes.

If Yes, go to 2b. If No, skip to 3.

For an older child, complete independence and a 'no' answer should mean that the person can get washed, put on clean clothes without prompting, prepare food for themselves, deal with callers, and handle minor domestic crises. The person should be able to carry out activities without needing prompting or reminding, and should be capable of being left alone for an age appropriate period. Young children should be able to accomplish age appropriate developmental milestones without assistance (see Vineland Daily Living Skills). If a child compensates for physical disability to the point where developmental milestones are only mildly compromised, question parents to determine the level of independence (i.e., a child with a hemiparesis who is still able to complete tasks that other children of that age can be rated as independent).

If child sometimes functions at an age appropriate level, then answer Yes. If Yes, register Lower Severe Disability and skip to end of form and record GOS-E Peds Score = 6. If No, register Upper Severe Disability and skip to end of form and record GOS-E Peds Score = 5.

For an older child, complete independence and a 'no' answer should mean that the person can get washed, put on clean clothes without prompting, prepare food for themselves, deal with callers, and handle minor domestic crises. The person should be able to carry out activities without needing prompting or reminding, and should be capable of being left alone for an age appropriate period. Young children should be able to accomplish age appropriate developmental milestones without assistance (see Vineland Daily Living Skills). If a child compensates for physical disability to the point where developmental milestones are only mildly compromised, question parents to determine the level of independence (i.e., a child with a hemiparesis who is still able to complete tasks that other children of that age can be rated as independent).

If yes, skip to 4. If No, register Upper Severe Disability and skip to end of form and record GOS-E Peds Score = 5.

This item considers activities such as shopping and traveling, always in the context of age appropriate behaviors. This includes being able to plan what to buy, take care of money, and behave appropriately in public. The individual need not normally shop, but must be able to do so. A younger child must behave age appropriately in public. An older child may drive or use public transit to get around. Ability to use a taxi is sufficient, provided the person can phone for it themselves and give instruction the driver. Older children who sometimes were allowed to travel independently before the injury should be able to walk to a neighbor's house, take a school bus, ride a bike, or take public transportation.

If Yes, register Lower Moderate Disability and skip to end of form and record GOS-E Peds Score = 4. If No, go to 4bii.

If an adolescent was working before the injury, then his or her current capacity for work should be at the same level. If the individual was seeking work before, then the injury should not have adversely affected chances of obtaining work or the level of work for which he or she is eligible. If the patient was in preschool or a student before the injury, then capacity for school work and school activities should not be adversely affected.

If yes, skip to 6. If No, go to 5b.

The individual may not have resumed all previous leisure activities, but should not be prevented from doing so by physical or mental impairment. If he or she has stopped the majority of activities because of loss of interest or motivation, then this is considered a disability. For younger children, social and leisure activities can include games and toys played with caretakers, siblings or other children as well as the ability to interact in a playful manner with others.

Module: What is the extent of restrictions on social and leisure activities?

If Yes, register Lower Moderate Disability and skip to end of form and record GOS-E Peds Score = 4. If No, go to 5bii.