CDE Detailed Report | NINDS Common Data Elements

Disease: Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Subdomain Name: General Health History
CRF: Surgical History

Displaying 1 - 8 of 8

CDE ID	CDE Name	Variable Name	Definition	Short Description	Question Text	Permissible Values	Description	Data Type	Disease Specific Instructions	Disease Specific Reference	Population	Classification (e.g., Core)	Version Number	Version Date	CRF Name (CRF Module / Guidance)	Subdomain Name	Domain Name	Size	Input Restrictions	Min Value	Max Value
C21668	ICD-10-CM code	SurgTherapuProcICD10CMCode	Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Procedure	MB;C;T;S;G;Other, specify	Muscle biopsy;Contracture Release;Tracheostomy;Scoliosis;Gastrostomy;Other specify	Alphanumeric	Record a reason for each surgery. If the data will be shared, code each surgical procedure using ICD-10-CM.	International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM): http://www.cdc.gov/nchs/icd/icd10cm.htm#icd2016	Adult;Pediatric	Supplemental	1.00	2013-08-28 16:08:00.453	Surgical History	General Health History	Participant History and Family History		Multiple Pre-Defined Values Selected
C21669	Surgical therapeutic procedure ICD-10-CM other text	SurgTherapuProcICD10CMOthTxt	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Other, specify			Alphanumeric	Record a reason for each surgery. If the data will be shared, code each surgical procedure using ICD-9-CM.	International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM): http://www.cdc.gov/nchs/icd/icd9cm.htm	Adult;Pediatric	Supplemental	1.00	2014-05-27 13:34:46.0	Surgical History	General Health History	Participant History and Family History	4000	Free-Form Entry
C05105	Surgical or therapeutic procedure end date and time	SurgTherapuProcEndDateTime	Date on which the surgical or therapeutic procedure ended	Date on which the surgical or therapeutic procedure ended	Discharge Date			Date or Date & Time	Record the start date or admission date for the surgical procedure. If the start date is not known the approximate age of the participant/subject at the time of the surgery can be recorded. Record the date/time according to the ISO 8601, the INternational Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). If age at admission is used instead of date, age can be captured in years or months.	No references available	Adult;Pediatric	Supplemental	3.00	2013-07-24 21:00:23.88	Surgical History	General Health History	Participant History and Family History		Free-Form Entry
C05106	Surgical therapeutic procedure start date and time	SurgTherapuProcStartDateTime	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Date (and time, if applicable and known) on which the surgical or therapeutic procedure started	Date of Procedure			Date or Date & Time	Record the start date or admission date for the surgical procedure. If the start date is not known the approximate age of the participant/subject at the time of the surgery can be recorded. Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). If age at admission is used instead of date, age can be captured in years or months.	No references available	Adult;Pediatric	Supplemental	3.20	2022-08-18 17:27:56.0	Surgical History	General Health History	Participant History and Family History		Free-Form Entry
C05108	Surgical or therapeutic procedure type	SurgTherapProcedurTyp	Type of surgical or therapeutic procedure received by the participant/subject	Type of surgical or therapeutic procedure received by the participant/subject	Procedure	Appendicectomy;Cholecystectomy;Colostomy;Ileostomy;Feeding tube placement;Fundoplication;Scoliosis surgery;Tendon release;Tympanostomy tubes;Tracheostomy;Airway surgery;Other surgery, specify;Unknown;Diagnostic;Anterior temporal lobectomy (ATL);Anterior temporal lobectomy plus (ATL+);Amygdalohippocampectomy;Lesionectomy;Lesionectomy plus (Lesionectomy +);Extratemporal resection (Topectomy);Multi-lobar resection;Hemispherectomy;Vagus nerve stimulation (VNS) surgery;Corpus callosotomy;Multiple subpial transection;Radiosurgery;Therapeutic brain stimulation;Other, specify;Appendicostomy;Appendectomy;Neurological surgery;Bony orthopedic surgery	Appendicectomy;Cholecystectomy;Colostomy;Ileostomy;Feeding tube placement;Fundoplication;Scoliosis surgery;Tendon release;Tympanostomy tubes;Tracheostomy;Airway surgery;Other surgery, specify;Unknown;Diagnostic surgery;Anterior temporal lobectomy (ATL);Anterior temporal lobectomy plus (ATL+);Amygdalohippocampectomy;Lesionectomy;Lesionectomy plus (Lesionectomy +);Extratemporal resection (Topectomy);Multi-lobar resection;Hemispherectomy;Vagus nerve stimulation (VNS) surgery;Corpus callosotomy;Multiple subpial transection;Radiosurgery;Therapeutic brain stimulation;Other, specify;Appendicostomy (antegrade colonic anema);Appendectomy;Neurological surgery;Bony orthopedic surgery	Alphanumeric		International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM): http://www.cdc.gov/nchs/icd/icd9cm.htm	Adult;Pediatric	Supplemental	3.00	2013-07-25 08:54:08.2	Surgical History	General Health History	Participant History and Family History		Multiple Pre-Defined Values Selected
C08018	Surgery age value	SurgAgeVal	Age of the participant/subject at the time of the selected surgical procedure	Age of the participant/subject at the time of the selected surgical procedure	Age (approximate)			Numeric Values		No references available	Adult;Pediatric	Supplemental	3.00	2013-07-24 11:38:01.2	Surgical History	General Health History	Participant History and Family History		Free-Form Entry	0	99
C18363	Past surgical history identification number	PastSurgHistIdNum	The number on a list to identify past surgical history	The number on a list to identify past surgical histor	Surgery #			Numeric Values		No references available	Adult;Pediatric	Supplemental	3.00	2013-07-21 12:11:21.037	Surgical History	General Health History	Participant History and Family History		Free-Form Entry
C18765	Surgical or therapeutic procedure other text	SurgTherapProcedurOTH	The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject	The free-text field related to 'Surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject	Other, specify			Alphanumeric		International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM): http://www.cdc.gov/nchs/icd/icd9cm.htm	Adult;Pediatric	Supplemental	1.00	2014-05-27 13:34:46.0	Surgical History	General Health History	Participant History and Family History	4000	Free-Form Entry