CDE Detailed Report
Disease: Huntington's Disease
Subdomain Name: Epidemiology/Environmental History
CRF: History of Early Exposure to Huntington's Disease
Displaying 1 - 23 of 23
Subdomain Name: Epidemiology/Environmental History
CRF: History of Early Exposure to Huntington's Disease
Displaying 1 - 23 of 23
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C08084 | Sibling gender type | SiblingGenderTyp | Reported gender of the sibling. Gender is the socially constructed identity of sex | Reported gender of the sibling. Gender is the socially constructed identity of sex | Sex | Female;Male;Unknown;Unspecified | Female;Male;Unknown;Undifferentiated/Indeterminant/Intersex | Alphanumeric |
Answer for both eldest and second eldest sibling |
No references available | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Single Pre-Defined Value Selected |
2200604 | |||||||
| C08110 | Preschool end date | PreschlEndDate | Date participant/subject ended preschool | Date (and time if applicable and known) participant/subject ended preschool | If "Yes," in what year did the child begin and end the first (next) attendance? | Date or Date & Time |
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). |
ISO 8601 - http://www.iso.org/iso/iso_catalogue.htm | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Free-Form Entry |
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| C08085 | Sibling alive indicator | SiblingAliveInd | Indicator of whether the participant's/subject's sibling is still living | Indicator of whether the participant's/subject's sibling is still living | Is this brother/sister still living? | Yes;No;Unknown;Respondent | Yes;No;Unknown;Respondent | Alphanumeric |
Answer for both eldest and second eldest sibling |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Single Pre-Defined Value Selected |
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| C08111 | Preschool hour per week value | PreschoolHourPerWkVal | Approximate hours per week the participant/subject attended preschool as a child | Approximate hours per week the participant/subject attended preschool as a child | About how many hours per week does child attend? | Numeric Values |
Answer in hours |
No references available | Adult | Supplemental | 3.10 | 2022-07-27 10:24:56.0 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Free-Form Entry |
hour | |||||||||
| C08086 | Sibling current age value | SiblingCurntAgeVal | Current age of the living sibling | Current age of the living sibling | If "Yes," please identify how old this brother/sister is now? | Numeric Values |
If Yes is answered for previous question, answer for both eldest and second eldest sibling. |
No references available | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Free-Form Entry |
year | |||||||||
| C08112 | Birth weight category | BirthWgtCat | Categorization of the participant's/subject's birth weight | Categorization of the participant's/subject's birth weight | What best describes your weight at birth? | Underweight;Average weight;Overweight;Unknown | Underweight;Average weight;Overweight;Unknown | Alphanumeric |
No additional instructions |
No references available | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Single Pre-Defined Value Selected |
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| C08076 | Breastfed indicator | BreastfedInd | Indicator of whether the participant/subject was breastfed by his/her mother | Indicator of whether the participant/subject was breastfed by his/her mother | Did your mother breastfeed you? | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric |
If No is answered, skip to Sibship/Birth Order section |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Single Pre-Defined Value Selected |
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| C08087 | Sibling death age value | SiblingDeathAgeVal | Age of sibling when he/she died | Age of sibling when he/she died | If "No," please identify how old this brother/sister was when s/he died? | Numeric Values |
If No is answered for previous question, answer for both eldest and second eldest sibling. |
No references available | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Free-Form Entry |
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| C08113 | Born prematurely indicator | BornPrematurInd | Indicator of whether the participant was informed by a physician or family member that they were born prematurely | Indicator of whether the participant was informed by a physician or family member that they were born prematurely | Were you told by a doctor or one of your family (e.g., parents, siblings, uncles, aunts) that you were born premature? | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric |
No additional instructions |
No references available | Adult | Supplemental | 4.2 | 2024-01-08 14:51:28.0 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Single Pre-Defined Value Selected |
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| C08077 | Full birth sibling indicator | FullBirthSiblingInd | Indicator of whether the participant/subject has any full birth brothers and/or sisters. Full brothers and/or sisters are defined as those with whom a birth mother and father is shared | Indicator of whether the participant/subject has any full birth brothers and/or sisters. Full brothers and/or sisters are defined as those with whom a birth mother and father is shared | Do you have any full brothers and/or sisters, that is, those with whom you share both birth mother and father? | Yes;No;Unknown | Yes;No (Skip to Preschool Attendance);Unknown | Alphanumeric |
Please include brothers and sisters who are living or deceased, but do not include adopted, foster, half, or step brothers or sisters |
No references available | Adult | Supplemental | 4.00 | 2022-07-26 16:44:00.0 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Single Pre-Defined Value Selected |
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| C08088 | Age value unit of measure | AgeValUoM | Unit of measure used to initially record the age value | Unit of measure used to initially record the age value | If "No," please identify how old this brother/sister was when s/he died? | Days;Weeks;Months;years | Days;Weeks;Months;years | Alphanumeric |
Answer only if oldest brother/sister is dead and age at death was recorded. Choose one unit. |
No references available | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Single Pre-Defined Value Selected |
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| C08078 | Full biological sisters count | FullBioSistersCt | Count of full biological sisters the participant/subject has | Count of full biological sisters the participant/subject has | How many full sisters do you have? | Numeric Values |
Answer only if previous question was answered Yes and sisters is applicable |
No references available | Adult | Supplemental | 4.00 | 2022-07-27 09:41:24.0 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Free-Form Entry |
2192217 | |||||||||
| C08104 | Day care attendance indicator | DayCareAttendanceInd | Indicator of whether the participant/subject attended day care outside of the home as a child | Indicator of whether the participant/subject attended day care outside of the home as a chil | As a child, did you attend day care outside of your home? | Yes;No | Yes;No (Skip to Question 2) | Alphanumeric |
If No is answered, skip to question #2 - As a child, did you attend preschool? |
No references available | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Single Pre-Defined Value Selected |
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| C08079 | Full biological brothers count | FullBioBrothersCt | Count of full biological brothers the participant/subject has | Count of full biological brothers the participant/subject has | How many full brothers do you have? | Numeric Values |
Answer only if previous question was answered Yes and brothers is applicable |
No references available | Adult | Supplemental | 4.00 | 2022-07-27 09:42:53.0 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Free-Form Entry |
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| C08105 | Day care start date | DayCareStrtDate | Date participant/subject first started day care outside of home | Date (and time if applicable and known) participant/subject first started day care outside of home | If "Yes," in what year did the child begin and end the first (next) attendance? | Date or Date & Time |
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). |
ISO 8601 - http://www.iso.org/iso/iso_catalogue.htm | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Free-Form Entry |
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| C08080 | Twin sibling indicator | TwinSiblingInd | Indicator of whether the participant/subject has a twin brother or sister | Indicator of whether the participant/subject has a twin brother or sister | Do you have a twin brother or sister? | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric |
If No is answered, skip to question #3 - Including yourself, please identify who is the oldest of your siblings? |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Single Pre-Defined Value Selected |
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| C08106 | Day care end date | DayCareEndDate | Date participant/subject ended day care outside of home | Date (and time if applicable and known) participant/subject ended day care outside of home | If "Yes," in what year did the child begin and end the first (next) attendance? | Date or Date & Time |
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). |
ISO 8601 - http://www.iso.org/iso/iso_catalogue.htm | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Free-Form Entry |
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| C08081 | Twin sibling type | TwinSiblingTyp | Type of twin the participant/subject has | Type of twin the participant/subject has | Are you and your twin identical or not identical? | Identical;Not identical (fraternal);Unknown | Identical;Not identical (fraternal);Unknown | Alphanumeric |
No additional instructions |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Single Pre-Defined Value Selected |
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| C08107 | Day care hour per week value | DayCareHourPerWkVal | Approximate hours per week the participant/subject attended day care as a child | Approximate hours per week the participant/subject attended day care as a child | About how many hours per week does child attend? | Numeric Values |
Answer in hours |
No references available | Adult | Supplemental | 3.10 | 2022-07-27 10:19:25.0 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Free-Form Entry |
hour | |||||||||
| C08082 | Sibling rank type | SiblingRankTyp | Sibling rank order to identify who is the eldest sibling and the second eldest sibling | Sibling rank order to identify who is the eldest sibling and the second eldest sibling | Including yourself, please identify who is the oldest of your siblings? | Eldest;Second Eldest | Eldest;Second Eldest | Alphanumeric |
Choose one response |
No references available | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Single Pre-Defined Value Selected |
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| C08108 | Preschool attendance indicator | PreschoolAttendanceInd | Indicator of whether the participant/subject attended preschool as a child | Indicator of whether the participant/subject attended preschool as a child | As a child, did you attend preschool? | Yes;No | Yes;No | Alphanumeric |
If No is answered, End Questionnaire |
No references available | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Single Pre-Defined Value Selected |
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| C08083 | Sibling name | SiblingName | Name of the sibling | Name of the sibling | Eldest Name; 2nd Eldest Name | Alphanumeric |
Answer for both eldest and second eldest sibling |
No references available | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History | 255 |
Free-Form Entry |
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| C08109 | Preschool start date | PreschlStrtDate | Date participant/subject first started preschool | Date (and time if applicable and known) participant/subject first started preschool | If "Yes," in what year did the child begin and end the first (next) attendance? | Date or Date & Time |
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). |
ISO 8601 - http://www.iso.org/iso/iso_catalogue.htm | Adult | Supplemental | 3.00 | 2013-07-22 09:34:41.527 | History of Early Exposure to Huntington's Disease | Epidemiology/Environmental History | Participant History and Family History |
Free-Form Entry |
