CDE Detailed Report
Disease: Spinal Muscular Atrophy
Subdomain Name: End Points
CRF: Death Report
Displaying 1 - 5 of 5
Subdomain Name: End Points
CRF: Death Report
Displaying 1 - 5 of 5
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C04800 | Death cause text | DeathCauseTxt | Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate | Text describing the primary reason or cause of the participant's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate | Cause of Death (List primary cause first) | Alphanumeric |
Record what the death certificate lists as the official cause of death |
No references available | Adult;Pediatric | Supplemental | 3.1 | 10/16/2024 8:50:25 AM | Death Report | End Points | Outcomes and End Points | 255 |
Free-Form Entry |
3142852 | ||||||||
| C04802 | Death date and time | DeathDateTime | Date (and time, if known) of participant's death | Date (and time, if known) of participant's death | Date and Time of Death | Date or Date & Time |
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). |
No references available | Adult;Pediatric | Supplemental | 3.1 | 10/16/2024 8:50:24 AM | Death Report | End Points | Outcomes and End Points |
Free-Form Entry |
2004152 | |||||||||
| C12610 | Death location type | DeathLoctnTyp | Type of location where the participant/subject died | Type of location where the participant/subject died | Death Location | Home;Home with hospice;Inpatient hospice care;Nursing home;Hospital - inpatient stay;Hospital - emergency room;Other, specify | Home;Home with hospice;Inpatient hospice care;Nursing home;Hospital - inpatient stay;Hospital - emergency room;Other, specify | Alphanumeric |
Choose one |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Death Report | End Points | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C18862 | Death location other text | DeathLoctnOTH | The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died | The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died | Other, specify | Alphanumeric |
Choose one |
No references available | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Death Report | End Points | Outcomes and End Points | 4000 |
Free-Form Entry |
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| C21665 | Death cause ICD-10-CM code | DeathCauseICD10CMCode | ICD-10-CM code that describes the cause of participant's death | ICD-10-CM code that describes the cause of participant's death | ICD-10-CM Code | Alphanumeric | Adult;Pediatric | Supplemental | 3.1 | 10/16/2024 8:50:26 AM | Death Report | End Points | Outcomes and End Points | 255 |
Free-Form Entry |
