CDE Detailed Report

Disease: Myotonic Muscular Dystrophy
Subdomain Name: Therapies
CRF: Respiratory Interventions

Displaying 101 - 107 of 107
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guidance) Subdomain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C18850 Respiratory tracheostomy tube timing other text RespTrachTubeTimingOTH The free-text field related to 'Respiratory tracheostomy tube timing type' specifying other text. Type of inflation/deflation timing settings for cuffed tubes The free-text field related to 'Respiratory tracheostomy tube timing type' specifying other text. Type of inflation/deflation timing settings for cuffed tubes Other, specify Alphanumeric

Respiratory Support/Assisted Ventilation Devices

 No references available Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Respiratory Interventions Therapies Treatment%2FIntervention Data 4000

Free-Form Entry
C12368 Respiratory airway clearance medication delivery method type RespAirClearMedctDelMethdTyp Type of drug delivery method the participant/subject uses for the airway clearance medication Type of drug delivery method the participant/subject uses for the airway clearance medication Method of Delivery Aerosol;MDI w/spacer;MDI w/o spacer;Trach collar Aerosol;MDI w/spacer;MDI w/o spacer;Trach collar Alphanumeric No references available Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Respiratory Interventions Therapies Treatment%2FIntervention Data

Single Pre-Defined Value Selected
C12402 Respiratory oxygen use frequency RespO2UseFreq Frequency of use of supplemental oxygen Frequency of use of supplemental oxygen Frequency of Use Daily;As needed Daily (continuously or intermittent);As needed Alphanumeric

Respiratory Support/Assisted Ventilation Devices – Oxygen

 No references available Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Respiratory Interventions Therapies Treatment%2FIntervention Data

Single Pre-Defined Value Selected
C12336 Respiratory postural drainage use daily frequency RespPstrlDrainUseDailyFreq Frequency of postural drainage use if it is used daily Frequency of postural drainage use if it is used daily If Daily, times per day (on average) <1 time/day;1-2 times/day;3 or more times/day less then once per day;one or two times per day;three or more times per day Alphanumeric No references available Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Respiratory Interventions Therapies Treatment%2FIntervention Data

Single Pre-Defined Value Selected
C12381 Respiratory tracheostomy date RespTrchstmyDate Date of the participant's/subject's tracheostomy Date of the participant's/subject's tracheostomy Date of Tracheostomy Date or Date & Time

Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.).

 No references available Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Respiratory Interventions Therapies Treatment%2FIntervention Data

Free-Form Entry
C18840 Respiratory lung volume recruitment use other text RespLngVolRecrtmntUseOTH The free-text field related to 'Respiratory lung volume recruitment use frequency' specifying other text. Frequency of lung volume recruitment use The free-text field related to 'Respiratory lung volume recruitment use frequency' specifying other text. Frequency of lung volume recruitment use Other, specify Alphanumeric No references available Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Respiratory Interventions Therapies Treatment%2FIntervention Data 4000

Free-Form Entry
C12347 Respiratory high frequency chest wall oscillation system brand name RespHighFreqChWallOsSysBrndNm Name of the brand of thee high frequency chest wall oscillation system brand of device used Name of the brand of thee high frequency chest wall oscillation system brand of device used Brand of Equipment Alphanumeric No references available Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Respiratory Interventions Therapies Treatment%2FIntervention Data 255

Free-Form Entry
CSV