CDE Detailed Report

Disease: Amyotrophic Lateral Sclerosis
Sub-Domain: Cognitive
CRF: Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C)

Displaying 1 - 36 of 36
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C11718 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode under control ELQRCCryEpiUnderCtrlSco Score representing the proportion of episodes of the participant was able to control, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of the participant was able to control, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Of these episodes, what proportion was he/she able to control? 0;1;2;3 Almost all of them;The majority;The minority;None Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11729 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode duration score ELQRCSmiEpiDurScore Score representing the duration of episodes of smiling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the duration of episodes of smiling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) On average, how long did the episodes last? 0;1;2;3 Very brief;Short (a few seconds);Moderate (less than 30 seconds);Prolonged (more than 30 seconds) Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11708 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh expect score ELQRCLaughExpectScore Score representing the number of cases the laughter was greater than expected given how happy or amused the participant was feeling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the number of cases the laughter was greater than expected given how happy or amused the participant was feeling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) In how many cases was the laughter greater than you would expect given how happy or amused he/she was feeling? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11719 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode sad score ELQRCCryEpiSadScore Score representing the number of episodes of crying that occurred as a result of sadness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the number of episodes of crying that occurred as a result of sadness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) How many of these episodes occurred as a result of sadness? 0;1;2;3 Almost all of them;The majority;The minority;None Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11730 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smiling episodes under control score ELQRCSmiEpiUnderCtrlScore Score representing the proportion of episodes of smiling the participant was able to control, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of smiling the participant was able to control, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Of these episodes, what proportion was he/she able to control? 0;1;2;3 Almost all of them;The majority;The minority;None Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11709 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode sadness score ELQRCLaughEpiSadnessScore Score representing the number of episodes of laughter that occurred with feelings of sadness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the number of episodes of laughter that occurred with feelings of sadness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) In how many of these episodes did the laughter occur with feelings of sadness (either immediately beforehand, or simultaneously)? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11720 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry expect score ELQRCCryExpectScore Score representing how many cases the crying was greater than expected given how upset the participant was feeling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing how many cases the crying was greater than expected given how upset the participant was feeling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) In how many cases was the crying greater than you would expect given how upset he/she was feeling? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11731 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode happy amuse score ELQRCSmiEpiHapAmuseScore Score representing how many of the smiling episodes occurred with feelings of happiness or amusement, either immediately beforehand, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing how many of the smiling episodes occurred with feelings of happiness or amusement, either immediately beforehand, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) How many of these episodes occurred as a result of amusement or happiness? 0;1;2;3 Almost all of them;The majority;The minority;None Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11710 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode other emotions score ELQRCLaughEpiOtherEmotionsScr Score representing the proportion of episodes of laughter that occurred simultaneously or immediately before other emotions, such as nervousness, anger, or fear, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of laughter that occurred simultaneously or immediately before other emotions, such as nervousness, anger, or fear, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) What proportion of these episodes occurred with other emotions, such as nervousness, anger or fear (either immediately before the laughter, or simultaneously)? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11721 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode happy amuse score ELQRCCryEpiHapAmuseScore Score representing how many of the crying episodes occurred with feelings of happiness or amusement, either immediately beforehand, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing how many of the crying episodes occurred with feelings of happiness or amusement, either immediately beforehand, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) In how many of these episodes did the crying occur with feelings of happiness or amusement (either immediately beforehand, or simultaneously)? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11732 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile expectation score ELQRCSmiExpectationScore Score representing the proportion of cases in which the smiling was greater than expected given how upset the participant was feeling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of cases in which the smiling was greater than expected given how upset the participant was feeling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) In how many cases was the smiling greater than you would expect given how happy or amused he/she was feeling? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11711 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode other emotions Text ELQRCLaughEpiOtherEmoTxt Text about the emotions that occurred simultaneously or immediately before the episodes of laughter, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Text about the emotions that occurred simultaneously or immediately before the episodes of laughter, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Specify Alphanumeric

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points 255

Free-Form Entry

C11722 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode other emotion score ELQRCCryEpiOtherEmotScore Score representing the proportion of crying episodes that occurred with other emotions, such as nervousness, anger or fear, either immediately before the episodes, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of crying episodes that occurred with other emotions, such as nervousness, anger or fear, either immediately before the episodes, or simultaneously, as part of the ELQRC What proportion of these episodes occurred with other emotions, such as nervousness, anger or fear (either immediately before the laughter, or simultaneously)? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11733 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode sad score ELQRCSmiEpiSadScore Score representing the number of episodes of smiling that occurred with sadness, either immediately beforehand, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the number of episodes of smiling that occurred with sadness, either immediately beforehand, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) In how many of these episodes did the smiling occur with feelings of sadness (either immediately beforehand, or simultaneously)? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11712 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode social distress embarrassment score ELQRCLaughEpiSocDisEmbScore Score representing the proportion of episodes of laughter that caused the participant any social distress or embarrassment, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of laughter that caused the participant any social distress or embarrassment, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) What proportion of these episodes caused him/her any social distress or embarrassment? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11723 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode other emotion text ELQRCCryEpiOtherEmoTxt Text description of the emotions that occurred simultaneously with or immediately before the episodes of crying, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Text description of the emotions that occurred simultaneously with or immediately before the episodes of crying, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Specify Alphanumeric

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points 255

Free-Form Entry

C11702 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - sudden laugh episode score ELQRCSuddenLaughEpisdScore Score for how often the participant experienced sudden episodes of laughter in the past four weeks, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score for how often the participant experienced sudden episodes of laughter in the past four weeks, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Has he/she experienced sudden episodes of laughter in the past four weeks? How often? 0;1;2;3 Never;Occasionally;Quite often;Frequently Numeric Values

If you scored 0 on ELQ-R&C Q1, then skip to ELQ-R&C Q12. If you scored 1, 2, or 3 on ELQ-R&C Q1, then continue from ELQ-R&C Q2.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11734 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode other emotion score ELQRCSmiEpiOtherEmoScore Score representing the proportion of smiling episodes that occurred with other emotions, such as nervousness, anger or fear, either immediately before the episodes, or simultaneously, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of smiling episodes that occurred with other emotions, such as nervousness, anger or fear, either immediately before the episodes, or simultaneously, as part of the ELQRC What proportion of these episodes occurred with other emotions, such as nervousness, anger or fear (either immediately before the smiling, or simultaneously)? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11713 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode motor neuron disease onset change indicator ELQRCLaughEpiMNDOnsetChangeInd Indicator of whether there was a change in pattern of laughing before the onset of MND (motor neuron disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Indicator of whether there was a change in pattern of laughing before the onset of MND (motor neuron disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Does this pattern of laughing represent a change from that prior to the onset of MND? 0;1 No;Yes Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11724 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode social distress embarrass score ELQRCCryEpiSocDisEmbScore Score representing the proportion of episodes of crying that caused the participant any social distress or embarrassment, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of crying that caused the participant any social distress or embarrassment, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) What proportion of these episodes caused him/her any social distress or embarrassment? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11703 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode without cause physical surroundings proportion score ELQRCLaugEpiWOCausePhysSurrScr Score representing the proportion of episodes of laughter that occurred without any cause in the participant's physical surrounding, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of laughter that occurred without any cause in the participant's physical surrounding, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Of these episodes, what proportion of them occurred without any cause in his/her physical surroundings? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11735 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode other emotion text ELQRCSmiEpiOtherEmoTxt Text description of the emotions that occurred simultaneously with or immediately before the episodes of smiling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Text description of the emotions that occurred simultaneously with or immediately before the episodes of smiling, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Specify Alphanumeric

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points 255

Free-Form Entry

C11714 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - sudden cry episode score ELQRCSuddenCryEpisdScore Score for whether the participant experienced any sudden episodes of crying in the past four weeks, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score for whether the participant experienced any sudden episodes of crying in the past four weeks, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Has he/she experienced any sudden episodes of crying in the past four weeks? How often? 0;1;2;3 Never;Occasionally;Quite often;Frequently Numeric Values

If you have skipped from ELQ-R&C Q1, start here. If you scored 0 on ELQ-R&C Q12, then skip to ELQ-R&C Q23. If you scored 1, 2, or 3 on ELQ-R&C Q1, then continue from ELQ-R&C Q13.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11725 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - crying episode motor neuron disease onset change indicator ELQRCCryEpiMNDOnsetChangeInd Indicator whether there was a change in the pattern of crying before the onset of MND (Motor Neurons Disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Indicator whether there was a change in the pattern of crying before the onset of MND (Motor Neurons Disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Does this pattern of crying represent a change from that prior to the onset of MND? 0;1 No;Yes Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11704 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode inappropriate time place unexpected score ELQRCLaughEpInapprTimPlUnexScr Score representing the proportion of episodes of laughter that occurred at an inappropriate time or place or unexpectedly, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of laughter that occurred at an inappropriate time or place or unexpectedly, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) What proportion of them occurred at an inappropriate time or place, or when you would not usually expect them? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11736 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode social distress embarrass score ELQRCSmiEpiSocDistrssEmbScore Score representing the proportion of episodes of smiling that caused the participant any social distress or embarrassment, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of smiling that caused the participant any social distress or embarrassment, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) What proportion of these episodes caused him/her any social distress or embarrassment? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11715 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode without cause physical surrounding score ELQRCCryEpiWOCaPhysSurrScore Score representing the proportion of episodes of crying that occurred without cause in the participant's physical surroundings, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of crying that occurred without cause in the participant's physical surroundings, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Of these episodes, what proportion of them occurred without any cause in his/her physical surroundings? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

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I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11726 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode score ELQRCSmiEpiScore Score for whether the participant experienced any episodes of smiling in the past four weeks, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score for whether the participant experienced any episodes of smiling in the past four weeks, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Has he/she experienced unusual episodes of smiling in the past four weeks? How often? 0;1;2;3 Never;Occasionally;Quite often;Frequently Numeric Values

If you have skipped from ELQ-R&C Q12, start here. If you scored 0 on ELQ-R&C Q12, then omit the rest of the questions. If you scored 1, 2, or 3 on ELQ-R&C Q23, then continue from ELQ-R&C Q24.

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11705 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode duration score ELQRCLaughEpiDurScore Score representing the duration of episodes of laughter, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the duration of episodes of laughter, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) On average, how long did the episodes last? 0;1;2;3 Very brief;Short (a few seconds);Moderate (less than 30 seconds);Prolonged (more than 30 seconds) Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11737 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode motor neuron disease onset change indicator ELQRCSmiEpiMNDOnsetChangeInd Indicator of whether there was a change in pattern of smiling before the onset of MND (Motor Neuron Disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Indicator of whether there was a change in pattern of smiling before the onset of MND (Motor Neuron Disease), as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Does this pattern of smiling represent a change from that prior to the onset of MND? 0;1 No;Yes Numeric Values

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I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11716 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode inappropriate time place unexpected score ELQRCCryEpiInapprTmPlUnexScore Score representing the proportion of episodes of crying that occurred at an inappropriate time or place or unexpectedly, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of crying that occurred at an inappropriate time or place or unexpectedly, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) What proportion of them occurred at an inappropriate time or place, or when you would not usually expect them? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11727 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode without cause physical surrounding score ELQRCCryEpiWOCausPhysSurrScore Score representing the proportion of episodes of smiling that occurred without cause in the participant's physical surroundings, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of smiling that occurred without cause in the participant's physical surroundings, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Of these episodes, what proportion of them occurred without any cause in his/her physical surroundings? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11706 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode under control score ELQRCLaughEpiUnderCtrlScore Score representing the proportion of episodes of laughter the particpant was able to control, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of laughter the participant was able to control, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Of these episodes, what proportion was he/she able to control? 0;1;2;3 Almost all of them;The majority;The minority;None Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11717 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - cry episode duration score ELQRCCryEpiDurScore Score representing the duration of episodes of crying, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the duration of episodes of crying, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) On average, how long did the episodes last? 0;1;2;3 Very brief;Short (a few seconds);Moderate (less than 30 seconds);Prolonged (more than 30 seconds) Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11728 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - smile episode inappropriate time place unexpected score ELQRCSmiEpiInapprTmPlUnexScore Score representing the proportion of episodes of smiling that occurred unexpectedly or at an inappropriate time or place, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the proportion of episodes of smiling that occurred unexpectedly or at an inappropriate time or place, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) What proportion of them occurred at an inappropriate time or place, or when you would not usually expect them? 0;1;2;3 None;A minority;The majority;Almost all of them Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

C11707 Emotional Lability Questionnaire Relatives and Carers (ELQRC) - laugh episode amuse happy happiness score ELQRCLaughEpiAmuseHappyScore Score representing the number of episodes of laughter that occurred as a result of amusement or happiness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) Score representing the number of episodes of laughter that occurred as a result of amusement or happiness, as part of the Emotional Lability Questionnaire: Relatives and Carers (ELQRC) How many of these episodes occurred as a result of amusement or happiness? 0;1;2;3 Almost all of them;The majority;The minority;None Numeric Values

See instructions on form

I.C. Newsom-Davis, S. Abrahams, L.H. Goldstein and P.N. Leigh; King's College, London, 2000 Newsom-Davis IC, Abrahams S, Goldstein LH, Leigh PN. The emotional lability questionnaire: a new measure of emotional lability in amyotrophic lateral sclerosis. J Neurol Sci. 1999;169(1-2):22-5. Adult Supplemental 3.00 2013-07-22 16:57:17.79 Emotional Lability Questionnaire: Relatives and Carers (ELQ-R and C) Cognitive Outcomes and End Points

Single Pre-Defined Value Selected

CSV