CDE Detailed Report

Disease: Amyotrophic Lateral Sclerosis
Sub-Domain: Functional Outcomes
CRF: Madrid Quantitative Neuromuscular Assessment (MAQUINA)

Displaying 1 - 5 of 5
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C11878 Madrid Quantitative Neuromuscular Assessment (MAQUINA) - arm pedaling time value MAQUINAArmPedalTimeVal Time it took the participant to complete 20 rounds at a table pedalier using his/her arms as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) Time it took the participant to complete 20 rounds at a table pedalier using his/her arms as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) Arm Pedaling Numeric Values

Time to pedal 20 rounds at a table pedalier. Failure scores 30 seconds.

Mora, JS.; Macias, Al.; Avenza M.; Rodriguez-Santos F.; Mongil, E.; Marin, S.; Salas, T. "Validation of a New ALS Clinical Evaluation Tool, the Madrid Quantitative Neuromuscular Assessment, MAQUINA." 22nd International Symposium on ALS/MND, Sydney, New S Adult Exploratory 3.00 2013-07-22 16:57:17.79 Madrid Quantitative Neuromuscular Assessment (MAQUINA) Functional Outcomes Outcomes and End Points

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C11879 Madrid Quantitative Neuromuscular Assessment (MAQUINA) - leg pedaling time value MAQUINALegPedalTimeVal Time it took the participant to complete 20 rounds at a floor pedalier using his/her legs as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) Time it took the participant to complete 20 rounds at a floor pedalier using his/her legs as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) Leg Pedaling Numeric Values

Time to pedal 20 rounds at a floor pedalier. Failure scores 30 seconds

Mora, JS.; Macias, Al.; Avenza M.; Rodriguez-Santos F.; Mongil, E.; Marin, S.; Salas, T. "Validation of a New ALS Clinical Evaluation Tool, the Madrid Quantitative Neuromuscular Assessment, MAQUINA." 22nd International Symposium on ALS/MND, Sydney, New S Adult Exploratory 3.00 2013-07-22 16:57:17.79 Madrid Quantitative Neuromuscular Assessment (MAQUINA) Functional Outcomes Outcomes and End Points

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C11880 Madrid Quantitative Neuromuscular Assessment (MAQUINA) - stand up walk 3 meters time value MAQUINAStandUpWalk3mTimeVal Time it took the participant to stand up and walk 3 meters as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) Time it took the participant to stand up and walk 3 meters as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) Up and 3m Walk Numeric Values

Time to stand up from chair and walk 3 meters. Failure to stand up scores 30 seconds, failure to walk scores 30 seconds

Mora, JS.; Macias, Al.; Avenza M.; Rodriguez-Santos F.; Mongil, E.; Marin, S.; Salas, T. "Validation of a New ALS Clinical Evaluation Tool, the Madrid Quantitative Neuromuscular Assessment, MAQUINA." 22nd International Symposium on ALS/MND, Sydney, New S Adult Exploratory 3.00 2013-07-22 16:57:17.79 Madrid Quantitative Neuromuscular Assessment (MAQUINA) Functional Outcomes Outcomes and End Points

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C11876 Madrid Quantitative Neuromuscular Assessment (MAQUINA) - PaTaKa time value MAQUINAPatakaTimeVal Time it took the participant to repeat PaTaKa 20 times as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) Time it took the participant to repeat PaTaKa 20 times as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) PaTaKa Numeric Values

Time to 20 repeats. Failure scores 30 seconds

Mora, JS.; Macias, Al.; Avenza M.; Rodriguez-Santos F.; Mongil, E.; Marin, S.; Salas, T. "Validation of a New ALS Clinical Evaluation Tool, the Madrid Quantitative Neuromuscular Assessment, MAQUINA." 22nd International Symposium on ALS/MND, Sydney, New S Adult Exploratory 3.00 2013-07-22 16:57:17.79 Madrid Quantitative Neuromuscular Assessment (MAQUINA) Functional Outcomes Outcomes and End Points

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C11877 Madrid Quantitative Neuromuscular Assessment (MAQUINA) - marbles time value MAQUINAMarbTimeVal Time it took the participant to pass 5 marbles from one bowl to another using the right hand followed by the reverse move using the left hand as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) Time it took the participant to pass 5 marbles from one bowl to another using the right hand followed by the reverse move using the left hand as part of the Madrid Quantitative Neuromuscular Assessment (MAQUINA) Marbles Numeric Values

Time to move 5 marbles from one bowl to another with the right hand followed by the reverse move with the left hand. Failure of one arm scores 30 sec

Mora, JS.; Macias, Al.; Avenza M.; Rodriguez-Santos F.; Mongil, E.; Marin, S.; Salas, T. "Validation of a New ALS Clinical Evaluation Tool, the Madrid Quantitative Neuromuscular Assessment, MAQUINA." 22nd International Symposium on ALS/MND, Sydney, New S Adult Exploratory 3.00 2013-07-22 16:57:17.79 Madrid Quantitative Neuromuscular Assessment (MAQUINA) Functional Outcomes Outcomes and End Points

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