CDE Detailed Report

Disease: Friedreich's Ataxia
Sub-Domain: Ataxia and Performance Measures
CRF: Friedreich's Ataxia Impact Scale (FAIS)

Displaying 1 - 50 of 117
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C12097 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning hanging walking scale FAISLowLimbFuncHandWalkScale Scale used to determine how much the patient was bothered by having to hang on to something as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by having to hang on to something as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by having to hang on to something when walking? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12033 Friedreich's Ataxia Impact Scale (FAIS) - body movement balance loss transferring scale FAISBodMoveBalLossTransScale Scale used to determine how much the patient was bothered by loss of balance when transferring as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by loss of balance when transferring as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by loss of balance when transferring? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12129 Friedreich's Ataxia Impact Scale (FAIS) - mood fed up feeling scale FAISMoodFedUpFeelScale Scale used to determine how much the patient was bothered by feeling fed up as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling fed up as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling fed up? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS): MOOD (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12065 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning food cutting scale FAISUpLimbFuncFoodCutScale Scale used to determine how much the patient was limited in his ability to cut up food when eating as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to cut up food when eating as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Cutting up food when eating? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12108 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walk confidence loss scale FAISLowLimbFuncWaConfLosScale Scale used to determine how much the patient was bothered by losing his confidence to walk as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by losing his confidence to walk as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by losing your confidence to walk? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12044 Friedreich's Ataxia Impact Scale (FAIS) - body movement spasms scale FAISBodMoveSpasmsScale Scale used to determine how much the patient was bothered by spasms as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by spasms as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by spasms? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12140 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions on own feeling scale FAISSelfPerOnOwnFeelScale Scale used to determine how much the patient was bothered by feeling like he is on his own as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling like he is on his own as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling like you are on your own? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS):SELF-PERCEPTIONS (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12076 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning computer use scale FAISUpLimbFuncCompUseScale Scale used to determine how much the patient was limited in his ability to use the computer as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to use the computer as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities: Using the computer? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12119 Friedreich's Ataxia Impact Scale (FAIS) - isolation socialization difficulty scale FAISIsoSocialDiffScale Scale used to determine how much the patient was bothered by difficulty socializing as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by difficulty socialising as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by difficulty socialising? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Social Functioning (13 ITEMS): 3.1 ISOLATION (13 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected you in social situations.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12055 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing choking swallowing drinking scale FAISSpSwalChokSwalDrinkScale Scale used to determine how much the patient was bothered by choking when swallowing or drinking as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by choking when swallowing or drinking as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by choking when swallowing or drinking? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symtpoms (31 items) Speech and Swallowing (12 items)- People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12087 Friedreich's Ataxia Impact Scale (FAIS) - ADL car movement scale FAISADLCarMovementScale Scale used to determine how much the patient was limited in his ability to get in or out of a car as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to get in or out of a car as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the FAIS As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities: Getting in and out of a car? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activities (51 items) ADL (16 ITEMS) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12098 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning jerky walk scale FAISLowLimbFuncJerkyWalkScale Scale used to determine how much the patient was bothered by walking jerky as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by walking jerky as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by walking being jerky? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12034 Friedreich's Ataxia Impact Scale (FAIS) - body movement coordination lack scale FAISBodMoveCoordLackScale Scale used to determine how much the patient was bothered by lack of coordination as a result of Friedreich's Ataxia within the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by lack of coordination as a result of Friedreich's Ataxia within the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by lack of coordination? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12130 Friedreich's Ataxia Impact Scale (FAIS) - mood down feeling scale FAISMoodDownFeelScale Scale used to determine how much the patient was bothered by feeling down as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling down as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling down? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS): MOOD (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12066 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning bottle opening scale FAISUpLimbFuncBottleOpenScale Scale used to determine how much the patient was limited in his ability to open a bottle as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to open a bottle as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Opening a bottle? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12109 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walking clumsy scale FAISLowLimbFuncWalkClumsyScale Scale used to determine how much the patient was bothered by being clumsy when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by being clumsy when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by being clumsy when walking? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12045 Friedreich's Ataxia Impact Scale (FAIS) - body movement arm strength lack scale FAISBodMoveArmStrengLackScale Scale used to determine how much the patient was bothered by the lack of strength in arms as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by the lack of strength in arms as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by lack of strength in arms? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12141 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions embarrassed feel scale FAISSelfPerEmbarrassFeelScale Scale used to determine how much the patient was bothered by feeling embarrassed as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling embarrassed as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling embarrassed? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS):SELF-PERCEPTIONS (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12077 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning teeth brushing scale FAISUpLimbFuncTeethBrushScale Scale used to determine how much the patient was limited in his ability to brush his teeth as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to brush his teeth as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Brushing your teeth? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12120 Friedreich's Ataxia Impact Scale (FAIS) - isolation meeting other people inability scale FAISIsoMeetOtherPeopInaScale Scale used to determine how much the patient was bothered by not being able to meet other people as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by not being able to meet other people as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by not being able to meet other people? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Social Functioning (13 ITEMS): 3.1 ISOLATION (13 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected you in social situations.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12056 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing talking effort scale FAISSpSwalTalkingEffortScale Scale used to determine how much the patient was bothered by the effort needed to talk as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by the effort needed to talk as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by effort needed to talk? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symtpoms (31 items) Speech and Swallowing (12 items)- People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12088 Friedreich's Ataxia Impact Scale (FAIS) - ADL toilet movement scale FAISADLToiletMovementScale Scale used to determine how much the patient was limited in his ability to get on or off the toilet seat as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to get on or off the toilet seat as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the FAIS As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities: Getting on or off the toilet seat? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activities (51 items) ADL (16 ITEMS) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12099 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning swaying walking scale FAISLowLimbFuncSwayWalkScale Scale used to determine how much the patient was bothered by swaying when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by swaying when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by swaying when walking? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12035 Friedreich's Ataxia Impact Scale (FAIS) - body movement clumsy scale FAISBodMoveClumsyScale Scale used to determine how much the patient was bothered clumsiness as a result of Friedreich's Ataxia within the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered clumsiness as a result of Friedreich's Ataxia within the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by being clumsy? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12131 Friedreich's Ataxia Impact Scale (FAIS) - mood irritable feeling scale FAISMoodIrritableFeelScale Scale used to determine how much the patient was bothered by feeling irritable as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling irritable as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling irritable? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS): MOOD (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12067 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning pen holding pen scale FAISUpLimbFuncPenHoldPenScale Scale used to determine how much the patient was limited in his ability to hold a pen as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to hold a pen as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Holding a pen? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12110 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning leg movement difficulty scale FAISLowLimbFuncLegMoDiffScale Scale used to determine how much the patient was bothered by difficulty moving legs as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by difficulty moving legs as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by difficulty moving legs? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12046 Friedreich's Ataxia Impact Scale (FAIS) - body movement finger movement lack scale FAISBodMoveFingMoveLackScale Scale used to determine how much the patient was bothered by the lack of finger movements as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by the lack of finger movements as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by lack of movement in your fingers? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12142 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions introvert scale FAISSelfPerIntrovertScale Scale used to determine how much the patient was bothered by being more introverted as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by being more introverted as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by being more introverted? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS):SELF-PERCEPTIONS (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12078 Friedreich's Ataxia Impact Scale (FAIS) - ADL standing scale FAISADLStandingScale Scale used to determine how much the patient was limited in his ability to stand as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to stand as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities: Standing? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activities (51 items) ADL (16 ITEMS) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12089 Friedreich's Ataxia Impact Scale (FAIS) - ADL bed movement scale FAISADLBedMovementScale Scale used to determine how much the patient was limited in his ability to get in or out of bed as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to get in or out of bed as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the FAIS As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities: Getting into or out of bed? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activities (51 items) ADL (16 ITEMS) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12121 Friedreich's Ataxia Impact Scale (FAIS) - isolation places confidence loss scale FAISIsoPlacesConfLossScale Scale used to determine how much the patient was bothered by lost confidence to go places as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by lost confidence to go places as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by lost confidence to go places? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Social Functioning (13 ITEMS): 3.1 ISOLATION (13 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected you in social situations.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12057 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing talking strangers scale FAISSpSwalTalkStranNerScale Scale used to determine how much the patient was bothered by being nervous to talk to strangers as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by being nervous to talk to strangers as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by being nervous talking to strangers? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symtpoms (31 items) Speech and Swallowing (12 items)- People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12100 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning bumping walking scale FAISLowLimbFuncBumpWalkScale Scale used to determine how much the patient was bothered by bumping into things when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by bumping into things when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by bumping into things when walking? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12036 Friedreich's Ataxia Impact Scale (FAIS) - body movement planning more scale FAISBodMovePlanMoreScale Scale used to determine how much the patient was bothered when more planning was needed to do things as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered when more planning was needed to do things as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by requiring more planning to do things? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12132 Friedreich's Ataxia Impact Scale (FAIS) - mood angry feeling scale FAISMoodAngryFeelScale Scale used to determine how much the patient was bothered by feeling angry as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling angry as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling angry? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS): MOOD (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12068 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning holding things scale FAISUpLimbHoldingThingsScale Scale used to determine how much the patient was limited in his ability to hold things as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to hold things as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Holding things? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12111 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walking slow scale FAISLowLimbFuncWalkSlowScale Scale used to determine how much the patient was bothered by being slow when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by being slow when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by being slow when walking? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12047 Friedreich's Ataxia Impact Scale (FAIS) - body movement shaky hands scale FAISBodMoveShakyHandsScale Scale used to determine how much the patient was bothered by shaky hands as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by shaky hands as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by shaky hands? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12143 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions self-esteem scale FAISSelfPerSelfesteemScale Scale used to determine how much the patient was bothered by lack of self-esteem as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by lack of self-esteem as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by lack of self-esteem? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS):SELF-PERCEPTIONS (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12079 Friedreich's Ataxia Impact Scale (FAIS) - ADL chair sitting no back sides scale FAISADLChairSitNoBackSideScale Scale used to determine how much the patient was limited in his ability to sit in a chair without back and sides as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to sit in a chair without back and sides as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the FAIS As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities: Sitting in a chair without back and sides? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activities (51 items) ADL (16 ITEMS) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12090 Friedreich's Ataxia Impact Scale (FAIS) - ADL dress undress scale FAISADLDressUndressScale Scale used to determine how much the patient was limited in his ability to get dressed or undressed as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to get dressed or undressed as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the FAIS As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities: Getting dressed or undressed? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activities (51 items) ADL (16 ITEMS) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12122 Friedreich's Ataxia Impact Scale (FAIS) - isolation new friends making difficulty scale FAISIsoNewFrieMakingDiffScale Scale used to determine how much the patient was bothered by difficulties making new friends as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by difficulties making new friends as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by difficulty making new friends? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Social Functioning (13 ITEMS): 3.1 ISOLATION (13 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected you in social situations.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12058 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing talking avoidance scale FAISSpSwalTalkAvoidanceScale Scale used to determine how much the patient was bothered by not talking as much or avoiding talking where possible as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by avoiding talking where possible as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by not talking as much or avoiding talking where possible? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symtpoms (31 items) Speech and Swallowing (12 items)- People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12101 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walk support scale FAISLowLimbFuncWalkSuprtScale Scale used to determine how much the patient was bothered by needing someone else to walk with as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by needing someone else to walk with as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by needing someone else to walk with you? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12037 Friedreich's Ataxia Impact Scale (FAIS) - body movement muscle weakness scale FAISBodMoveMusWeaknessScale Scale used to determine how much the patient was bothered by muscle weakness as a result of Friedreich's Ataxia within the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by muscle weakness as a result of Friedreich's Ataxia within the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by weakness in muscles? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12133 Friedreich's Ataxia Impact Scale (FAIS) - mood depressed feeling scale FAISMoodDepressedFeelScale Scale used to determine how much the patient was bothered by feeling depressed as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling depressed as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling depressed? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS): MOOD (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12069 Friedreich's Ataxia Impact Scale (FAIS) - upper limb function door open scale FAISUpLimbFuncDoorOpenScale Scale used to determine how much the patient was limited in his ability to open doors as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to open doors as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Opening the door? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12112 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walking unstable scale FAISLowLimbFuncWalkUnstaScale Scale used to determine how much the patient was bothered by his walk not being stable as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by his walk not being stable as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by walking not being stable? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12048 Friedreich's Ataxia Impact Scale (FAIS) - body movement shaky legs scale FAISBodMoveShakyLegsScale Scale used to determine how much the patient was bothered by shaky legs as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by shaky legs as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by shaky legs? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

CSV