CDE Detailed Report

Disease: Friedreich's Ataxia
Sub-Domain: Ataxia and Performance Measures
CRF: Friedreich's Ataxia Impact Scale (FAIS)

Displaying 1 - 50 of 117
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C12103 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning stair difficulty scale FAISLowLimFuncStairDiffScale Scale used to determine how much the patient was bothered by difficulty going up or down stairs as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by difficulty going up or down stairs as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by difficulty going up or down stairs? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12039 Friedreich's Ataxia Impact Scale (FAIS) - body movement concentrate scale FAISBodMoveConcentrateScale Scale used to determine how much the patient was bothered by having to concentrate on doing things as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by having to concentrate on doing things as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by having to concentrate on doing things? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12135 Friedreich's Ataxia Impact Scale (FAIS) - mood frightened scared feeling scale FAISMoodFrightScaredFeelScale Scale used to determine how much the patient was bothered by feeling frightened or scared as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling frightened or scared as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling frightened or scared? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS): MOOD (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12071 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning gripping things scale FAISUpLimFuncGripThingsScale Scale used to determine how much the patient was limited in his ability to grip things as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to grip things as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Gripping things? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12114 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning stiff legs scale FAISLowLimbFuncStiffLegsScale Scale used to determine how much the patient was bothered by stiff legs as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by stiff legs as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by stiff legs? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12050 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing self-conscious voice scale FAISSpSwalSelfConVoiceScale Scale used to determine how much the patient was bothered by being self-conscious about his voice as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by being self-conscious about his voice as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by being self-conscious about your voice? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symtpoms (31 items) Speech and Swallowing (12 items)- People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12146 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions not noticed scale FAISSelfPerNoNoticedScale Scale used to determine how much the patient was bothered by not wanting to be noticed as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by not wanting to be noticed as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by not wanting to be noticed? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS):SELF-PERCEPTIONS (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12082 Friedreich's Ataxia Impact Scale (FAIS) - ADL longer time scale FAISADLLongerTimeScale Scale used to determine how much the patient was limited by the time it took to do things as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited by the time it took to do things as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities: Taking longer to do things? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activities (51 items) ADL (16 ITEMS) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12093 Friedreich's Ataxia Impact Scale (FAIS) - ADL chair back sides scale FAISADLChairBackSidesScale Scale used to determine how much the patient was limited in his ability to sit in a chair with back and sides as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to sit in a chair with back and sides as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the FAIS As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities: Sitting in a chair with back and sides? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activities (51 items) ADL (16 ITEMS) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12125 Friedreich's Ataxia Impact Scale (FAIS) - isolation friend loss scale FAISIsoFreindLossScale Scale used to determine how much the patient was bothered by losing friends as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by losing friends as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by losing friends? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Social Functioning (13 ITEMS): 3.1 ISOLATION (13 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected you in social situations.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12061 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing speaking avoidance scale FAISSPSwalSpeakAvoidScale Scale used to determine how much the patient was bothered by avoiding speaking to others as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by avoiding speaking to others as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by avoiding speaking to others? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symtpoms (31 items) Speech and Swallowing (12 items)- People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12104 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walking long distances inability scale FAISLowLimbFuncWaLoDisInaScale Scale used to determine how much the patient was bothered by being unable to walk long distances as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by being unable to walk long distances as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by being unable to walk long distances? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12040 Friedreich's Ataxia Impact Scale (FAIS) - body movement heavy legs scale FAISBodMoveHeavyLegsScale Scale used to determine how much the patient was bothered by heavy legs as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by heavy legs as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by heavy legs? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12136 Friedreich's Ataxia Impact Scale (FAIS) - mood tearful feeling scale FAISMoodTearfulFeelScale Scale used to determine how much the patient was bothered by feeling tearful as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling tearful as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling tearful? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS): MOOD (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12072 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning food eating scale FAISUpLimbFuncFoodEatScale Scale used to determine how much the patient was limited in his ability to eat food as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to eat food as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Eating food? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12115 Friedreich's Ataxia Impact Scale (FAIS) - isolation going out difficulties scale FAISIsoGoingOutDiffScale Scale used to determine how much the patient was bothered by difficulties going out as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by difficulties going out as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by difficulties going out? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Social Functioning (13 ITEMS): 3.1 ISOLATION (13 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected you in social situations.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12051 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing talk repeat scale FAISSpSwalTalkRepeatScale Scale used to determine how much the patient was bothered by being asked to repeat himself when talking as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by being asked to repeat himself when talking as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by being asked to repeat yourself when talking? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symtpoms (31 items) Speech and Swallowing (12 items)- People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12147 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions shy scale FAISSelfPerShyScale Scale used to determine how much the patient was bothered by being shy as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by being shy as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by being shy? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS):SELF-PERCEPTIONS (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12083 Friedreich's Ataxia Impact Scale (FAIS) - ADL chair movement scale FAISADLChairMovementScale Scale used to determine how much the patient was limited in his ability to get into or out of a chair as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to get into or out of a chair as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the FAIS As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities: Getting into or out of a chair? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activities (51 items) ADL (16 ITEMS) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12094 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning tripping stumbling walking scale FAISLowLimbFuncTripStuWaScale Scale used to determine how much the patient was bothered by tripping over or stumbling when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by tripping over or stumbling when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by tripping over or stumbling when walking? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12126 Friedreich's Ataxia Impact Scale (FAIS) - mood frustrated feeling scale FAISMoodFrustratedFeelScale Scale used to determine how much the patient was bothered by feeling frustrated as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling frustrated as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling frustrated? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS): MOOD (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12062 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning intricate things dexterity scale FAISUpLimbFuncIntThiDexScale Scale used to determine how much the patient was limited in his ability to do intricate things as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to do intricate things as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Doing intricate things? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12105 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walking advance knowledge scale FAISLowLimbFuncWalAdvKnowScale Scale used to determine how much the patient was bothered by needing to know in advance where he was walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by needing to know in advance where he was walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the FAIS As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by needing to know in advance where you are walking? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12041 Friedreich's Ataxia Impact Scale (FAIS) - body movement hand control use inability FAISBodMoveHandConUseInaScale Scale used to determine how much the patient was bothered by the inability to control and use his hands as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by the inability to control and use his hands as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by not able to control and use your hands? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12137 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions appearance self-conscious scale FAISSelfPerAppearSelfScale Scale used to determine how much the patient was bothered by being self-conscious about his appearance as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by being self-conscious about his appearance as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by self conscious about your appearance? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS):SELF-PERCEPTIONS (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12073 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning page turning scale FAISUpLimbFuncPageTurnScale Scale used to determine how much the patient was limited in his ability to turn pages in books as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to turn pages in books as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Turning pages in books? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12116 Friedreich's Ataxia Impact Scale (FAIS) - isolation home visits inability scale FAISIsoHomeVisitInScale Scale used to determine how much the patient was bothered by not being able to visit other people's homes as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by not being able to visit other people's homes as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by not being able to visit other people's homes? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Social Functioning (13 ITEMS): 3.1 ISOLATION (13 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected you in social situations.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12052 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing slurred speech scale FAISSpSwalSlurredSpeechScale Scale used to determine how much the patient was bothered by slurred speech as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by slurred speech as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by slurred speech? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symtpoms (31 items) Speech and Swallowing (12 items)- People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12084 Friedreich's Ataxia Impact Scale (FAIS) - ADL slow movement scale FAISADLSlowMovementScale Scale used to determine how much the patient was limited by slowness as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited by being slowness as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities: Being slow to do things? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activities (51 items) ADL (16 ITEMS) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12095 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning falling over walking scale FAISLowLimbFuncFallWalkScale Scale used to determine how much the patient was bothered by falling over when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by falling over when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by falling over when walking? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12031 Friedreich's Ataxia Impact Scale (FAIS) - body movement balance loss scale FAISBodMoveBalanceLossScale Scale used to determine how much the patient was bothered by general loss of balance as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by general loss of balance as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by loss of balance? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Core 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12127 Friedreich's Ataxia Impact Scale (FAIS) - mood anxious about future feeling scale FAISMoodAnxFutureFeelScale Scale used to determine how much the patient was bothered by feeling anxious about the future as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling anxious about the future as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling anxious about the future? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS): MOOD (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12063 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning writing dexterity scale FAISUpLimbFuncWritingDexScale Scale used to determine how much the patient was limited in his ability to write as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to write as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Writing? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12106 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walk difficulty slippery uneven surface scale FAISLowLimbFuncWaDiSlUnSuScale Scale used to determine how much the patient was bothered by difficulty walking on a slippery or uneven surface as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by difficulty walking on a slippery or uneven surface as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the FAIS As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by difficulty walking on a slippery or uneven surface? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12042 Friedreich's Ataxia Impact Scale (FAIS) - body movement restless legs scale FAISBodMoveRestlessLegsScale Scale used to determine how much the patient was bothered by restless legs as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by restless legs as a result of Friedreich's Ataxia in the past two weeks. Part of Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by restless legs? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12138 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions cut off feeling scale FAISSelfPerCutOffFeelScale Scale used to determine how much the patient was bothered by feeling cut off as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling cut off as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling cut off? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS):SELF-PERCEPTIONS (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12074 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning telephone use scale FAISUpLimbFuncTeleUseScale Scale used to determine how much the patient was limited in his ability to use the telephone as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to use the telephone as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Using the telephone? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12117 Friedreich's Ataxia Impact Scale (FAIS) - isolation pub restaurant going difficulty scale FAISIsoPubRestGoDiffScale Scale used to determine how much the patient was bothered by difficulties going to pubs and restaurants as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by difficulties going to pubs and restaurants as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by difficulties going to pubs and restaurants? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Social Functioning (13 ITEMS): 3.1 ISOLATION (13 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected you in social situations.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12053 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing slow speech scale FAISSpSwalSlowSpeechScale Scale used to determine how much the patient was bothered by slow speech as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by slow speech as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by slow speech? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symtpoms (31 items) Speech and Swallowing (12 items)- People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12085 Friedreich's Ataxia Impact Scale (FAIS) - ADL socks shoes putting on scale FAISADLSockShoePutOnScale Scale used to determine how much the patient was limited in his ability to put on his socks or shoes as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to put on his socks or shoes as a result of Friedreich's Ataxia in the past two weeks. Part of the ADL (Activities of Daily Living) section of the FAIS As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities: Putting on your socks or shoes? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activities (51 items) ADL (16 ITEMS) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12096 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walk unsteady scale FAISLowLimbFuncWalkUnstScale Scale used to determine how much the patient was bothered by his walk not being steady as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by his walk not being steady as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by walking not being steady? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12032 Friedreich's Ataxia Impact Scale (FAIS) - body movement balance loss standing scale FAISBodMoveBalLosStandingScale Scale used to determine how much the patient was bothered by loss of balance when standing as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by loss of balance when standing as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by loss of balance when standing? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12128 Friedreich's Ataxia Impact Scale (FAIS) - mood annoyed feeling scale FAISMoodAnnoyedFeelScale Scale used to determine how much the patient was bothered by feeling annoyed as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling annoyed as a result of Friedreich's Ataxia in the past two weeks. Part of the Mood section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling annoyed? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS): MOOD (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12064 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning picking things up scale FAISUpLimbFuncPickThiUpScale Scale used to determine how much the patient was limited in his ability to pick things up from floor as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to pick things up from floor as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Pick things up from the floor? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12107 Friedreich's Ataxia Impact Scale (FAIS) - lower limb functioning walk falling scared feeling scale FAISLowLimbFuncWaFaScFeelScale Scale used to determine how much the patient was bothered by feeling scared of falling over when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by feeling scared of falling over when walking as a result of Friedreich's Ataxia in the past two weeks. Part of the Lower Limb Functioning section of the FAIS As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by feeling scared of falling over when walking? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) LOWER LIMB FUNCTIONING (19 ITEMS)The next series of questions ask about how the Friedreich's Ataxia has affected your walking. The following questions about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12043 Friedreich's Ataxia Impact Scale (FAIS) - body movement repetitive movement difficulty scale FAISBodMoveRepMoveRestlScale Scale used to determine how much the patient was bothered by repetitive movement difficulty as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by repetitive movement difficulty as a result of Friedreich's Ataxia in the past two weeks. Part of the Body Movement section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by repetitive movement difficulty? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symptoms (31 Items) Body Movement (19 items) - People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12139 Friedreich's Ataxia Impact Scale (FAIS) - self-perceptions confidence loss scale FAISSelfPerConfidenceLossScale Scale used to determine how much the patient was bothered by losing his confidence as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by losing his confidence as a result of Friedreich's Ataxia in the past two weeks. Part of the Self-perceptions section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by losing your confidence? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Psychological Functioning (22 ITEMS):SELF-PERCEPTIONS (11 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected your feelings. The following questions ask about problems you may have been bothered by during the past 2 weeks.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12075 Friedreich's Ataxia Impact Scale (FAIS) - upper limb functioning button pressing scale FAISUpLimbFuncButtonPreScale Scale used to determine how much the patient was limited in his ability to press buttons as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was limited in his ability to press buttons as a result of Friedreich's Ataxia in the past two weeks. Part of the Upper Limb Functioning section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much have you been limited in your ability over the past two weeks to carry out the following daily activities?: Pressing buttons? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Activties (51 items) Upper Limb Functioning (16 items) The following section asks about activities, which you might do during a typical day. During the past 2 weeks, has Friedreich's Ataxia limited your ability to carry out your usual daily activities? Please indicate whether the Friedreich's Ataxia problem LIMITS you not at all, a little, moderately, quite a bit or extremely in these activities by circling the appropriate number (Please draw a line through 5 if you are unable to do the activity).

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12118 Friedreich's Ataxia Impact Scale (FAIS) - isolation leisure activities give up scale FAISIsoLeisActGiveUpScale Scale used to determine how much the patient was bothered by giving up on leisure activities as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by giving up on leisure activities as a result of Friedreich's Ataxia in the past two weeks. Part of the Isolation section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by giving up on leisure activities? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Social Functioning (13 ITEMS): 3.1 ISOLATION (13 ITEMS) The next series of questions ask about how the Friedreich's Ataxia has affected you in social situations.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

C12054 Friedreich's Ataxia Impact Scale (FAIS) - speech swallowing telephone talking scale FAISSpSwalTeleTalkingScale Scale used to determine how much the patient was bothered by talking on the telephone as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) Scale used to determine how much the patient was bothered by talking on the telephone as a result of Friedreich's Ataxia in the past two weeks. Part of the Speech and Swallowing section of the Friedreich's Ataxia Impact Scale (FAIS) As a result of your Friedreich's Ataxia, how much in the past two weeks have you been bothered by talking on the telephone? 1;2;3;4;5 1=Not bothered at all;2=A little bothered;3=Moderately bothered;4=Quite a bit bothered;5=Extremely bothered Numeric Values

Symtpoms (31 items) Speech and Swallowing (12 items)- People like you who have Friedreich's Ataxia are bothered by different problems. The following questions ask about problems you may have been bothered by during the past 2 weeks. Please draw a line through the number under each scale that best describes your experience.

Cano SJ, Riazi A, Schapira AH, Cooper JM, Hobart JC. Friedreich's ataxia impact scale: a new measure striving to provide the flexibility required by today's studies. Mov Disord. 2009 May 15; 24(7): 984-92. Adult Supplemental 3.00 2013-07-11 15:03:49.2 Friedreich's Ataxia Impact Scale (FAIS) Ataxia and Performance Measures Outcomes and End Points

Single Pre-Defined Value Selected

CSV