CDE Detailed Report
Disease: Friedreich's Ataxia
Subdomain Name: Ataxia and Performance Measures
CRF: Bowel Control Scale (BWCS)
Displaying 1 - 6 of 6
Subdomain Name: Ataxia and Performance Measures
CRF: Bowel Control Scale (BWCS)
Displaying 1 - 6 of 6
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C11518 | Bowel Control Scale (BWCS) - constipation 4 week scale | BWCSConstip4WkScale | Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS) | Scale assessing constipation in the past 4 weeks, as part of the Bowel Control Scale (BWCS | During the past 4 weeks, how often have you been constipated? | 0;1;2;3;4 | not at all;Once;Two to four times;More than weekly but not daily;Daily | Numeric Values |
Record the appropriate response based on your bowel function during the past 4 weeks. |
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society | Adult | Exploratory | 3.00 | 2013-07-11 15:03:49.2 | Bowel Control Scale (BWCS) | Ataxia and Performance Measures | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11519 | Bowel Control Scale (BWCS) - bowel control loss 4 week scale | BWCSBowelContLoss4WkScale | Scale assessing how often the participant/subject lost control of bowels or had an accident in the past 4 weeks as part of the Bowel Control Scale (BWCS) | Scale assessing how often the participant/subject lost control of bowels or had an accident in the past 4 weeks as part of the Bowel Control Scale (BWCS | During the past 4 weeks, how often have you lost control of your bowels or had an accident? | 0;1;2;3;4 | not at all;Once;Two to four times;More than weekly but not daily;Daily | Numeric Values |
Record the appropriate response based on your bowel function during the past 4 weeks. |
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society | Adult | Exploratory | 3.00 | 2013-07-11 15:03:49.2 | Bowel Control Scale (BWCS) | Ataxia and Performance Measures | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11520 | Bowel Control Scale (BWCS) - bowel control almost lost 4 week scale | BWCSBowelContAlmLost4WkScale | Scale assessing how often the participant/subject almost lost control of his bowels or almost had an accident in the past four weeks as part of the Bowel Control Scale (BWCS) | Scale assessing how often the participant/subject almost lost control of his bowels or almost had an accident in the past four weeks as part of the Bowel Control Scale (BWCS | During the past 4 weeks, how often have you almost lost control of your bowels or almost had an accident? | 0;1;2;3;4 | not at all;Once;Two to four times;More than weekly but not daily;Daily | Numeric Values |
Record the appropriate response based on your bowel function during the past 4 weeks. |
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society | Adult | Exploratory | 3.00 | 2013-07-11 15:03:49.2 | Bowel Control Scale (BWCS) | Ataxia and Performance Measures | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11521 | Bowel Control Scale (BWCS) - bowel control problems altered activities 4 week scale | BWCSBowelContProbAltAct4WkScal | Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS) | Scale assessing how often the participant/subject altered activities because of bowel control problems in the past 4 weeks as part of the Bowel Control Scale (BWCS | During the past 4 weeks, how often have you altered your activities because of bowel control problems? | 0;1;2;3;4 | not at all;Once;Two to four times;More than weekly but not daily;Daily | Numeric Values |
Record the appropriate response based on your bowel function during the past 4 weeks. |
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society | Adult | Exploratory | 3.00 | 2013-07-11 15:03:49.2 | Bowel Control Scale (BWCS) | Ataxia and Performance Measures | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11522 | Bowel Control Scale (BWCS) - bowel problems restrict lifestyle 4 week scale | BWCSBowelProbRestrLife4WkScale | Scale measuring how often bowel control problems restricted overall lifestyle in the past 4 week as part of the Bowel Control Scale (BWCS) | Scale measuring how often bowel control problems restricted overall lifestyle in the past 4 week as part of the Bowel Control Scale (BWCS | During the past 4 weeks, how much have bowel problems restricted your overall lifestyle? | 0;1;2;3;4;5;6;7;8;9;10 | not at all;;;;;;;;;;Severely | Numeric Values |
Please circle one number |
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society | Adult | Exploratory | 3.00 | 2013-07-11 15:03:49.2 | Bowel Control Scale (BWCS) | Ataxia and Performance Measures | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C11523 | Bowel Control Scale (BWCS) - sum score value | BWCSSumScoreVal | Sum of the score for questions in the Bowel Control Scale (BWCS) | Sum of the score for questions in the Bowel Control Scale (BWCS | Numeric Values | The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997. Bowel Control Scale (BWCS). National Multiple Sclerosis Society | Adult | Exploratory | 3.00 | 2013-07-11 15:03:49.2 | Bowel Control Scale (BWCS) | Ataxia and Performance Measures | Outcomes and End Points |
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