CDE Detailed Report
Disease: Friedreich's Ataxia
Subdomain Name: Ataxia and Performance Measures
CRF: Bladder Control Scale (BLCS)
Displaying 1 - 5 of 5
Subdomain Name: Ataxia and Performance Measures
CRF: Bladder Control Scale (BLCS)
Displaying 1 - 5 of 5
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C11513 | Bladder Control Scale (BLCS) - lost control bladder 4 week scale | BLCSLostCont4WkScale | The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS) | The scale related to lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS) | During the past 4 weeks, how often have you lost control of your bladder or had an accident? | 0;1;2;3;4 | not at all;Once;Two to four times;More than weekly but not daily;Daily | Numeric Values |
Refer to instructions on form. |
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society | Adult | Exploratory | 3.00 | 2013-07-11 15:03:49.2 | Bladder Control Scale (BLCS) | Ataxia and Performance Measures | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11514 | Bladder Control Scale (BLCS) - almost lost control bladder 4 week scale | BLCSAlmostLostCont4WkScale | The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS) | The scale related to almost lost control of bladder or had an accident 4 week scale as part of the Bladder Control Scale (BLCS) | During the past 4 weeks, how often have you almost lost control of your bladder or had an accident? | 0;1;2;3;4 | not at all;Once;Two to four times;More than weekly but not daily;Daily | Numeric Values |
Refer to instructions on form. |
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society | Adult | Exploratory | 3.00 | 2013-07-11 15:03:49.2 | Bladder Control Scale (BLCS) | Ataxia and Performance Measures | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11515 | Bladder Control Scale (BLCS) - altered activities because bladder problems 4 week scale | BLCSAltActBladderProb4WkScale | The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS) | The scale related to altered activities because of bladder problems 4 week scale as part of the Bladder Control Scale (BLCS) | During the past 4 weeks, how often have you altered your activities because of bladder problems? | 0;1;2;3;4 | not at all;Once;Two to four times;More than weekly but not daily;Daily | Numeric Values |
Refer to instructions on form. |
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society | Adult | Exploratory | 3.00 | 2013-07-11 15:03:49.2 | Bladder Control Scale (BLCS) | Ataxia and Performance Measures | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11516 | Bladder Control Scale (BLCS) - restricted lifestyle 4 week severity | BLCSResLfeStylBladderProb4WkSv | The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS) | The scale related to restricted overall lifestyle because of bladder problems as part of the Bladder Control Scale (BLCS) | During the past 4 weeks, how much have bladder problems restricted your overall lifestyle? | 0;1;2;3;4;5;6;7;8;9;10 | not at all;1;2;3;4;5;6;7;8;9;Severely | Numeric Values |
Record only one number, with 0 = not at all, and 10 = severely. |
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society | Adult | Exploratory | 3.00 | 2013-07-11 15:03:49.2 | Bladder Control Scale (BLCS) | Ataxia and Performance Measures | Outcomes and End Points |
Single Pre-Defined Value Selected |
||||||||
| C11517 | Bladder Control Scale (BLCS) - scores sum value | BLCSSumScores | Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS) | Sum of scores from questions 1 through 4 (0-22) as part of the Bladder Control Scale (BLCS) | Numeric Values |
Sum of Q1-Q4. |
The consortium of multiple sclerosis centers health services research subcommittee. Multiple sclerosis quality of life inventory: a user's manual. National Multiple Sclerosis Society. 1997.Bladder Control Scale (BLCS). National Multiple Sclerosis Society | Adult | Exploratory | 3.00 | 2013-07-11 15:03:49.2 | Bladder Control Scale (BLCS) | Ataxia and Performance Measures | Outcomes and End Points |
Free-Form Entry |
