CDE Detailed Report
Disease: Spinal Cord Injury
Subdomain Name: The International SCI Data Sets
CRF: International SCI Quality of Life Basic Data Set
Displaying 1 - 6 of 6
Subdomain Name: The International SCI Data Sets
CRF: International SCI Quality of Life Basic Data Set
Displaying 1 - 6 of 6
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C06142 | Spinal cord injury general quality life scale | SpinCrdInjGenQultyLifScale | Numeric response of life quality satisfaction of subject for the past four weeks | Numeric response of life quality satisfaction of subject for the past four week | Thinking about your own life and personal circumstances, how satisfied are you with your life as a whole in the past four weeks? Please use a scale ranging from 0 completely dissatisfied to 10 completely satisfied. You can use 0 or 10 or any number in bet | 0;1;2;3;4;5;6;7;8;9;10 | 0 completely dissatisfied;1;2;3;4;5;6;7;8;9;10 completely satisfied | Numeric Values |
Rate the quality of life using a scale ranging from 0 (completely dissatisfied) to 10 (completely satisfied). You can use 0 or 10 or any number in between. |
Charlifue S, Post MW, Biering-SØrensen F, Catz A, Dijkers M, Geyh S, Horsewell J, Noonan V, Noreau L, Tate D, Sinnott KA. International Spinal Cord Injury Quality of Life Basic Data Set. Spinal Cord. 2012 Mar 27. [Epub ahead of print] | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Quality of Life Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C06144 | Spinal cord injury physical health satisfaction rating scale | SpinCrdInjPhysHlthSatRatScale | Numeric response of physical satisfaction of subject for the past four weeks | Numeric response of physical satisfaction of subject for the past four week | How satisfied are you with your physical health in the past four weeks? Please use a scale ranging from 0 completely dissatisfied to 10 completely satisfied. You can use 0 or 10 or any number in between. | 0;1;2;3;4;5;6;7;8;9;10 | 0 completely dissatisfied;1;2;3;4;5;6;7;8;9;10 completely satisfied | Numeric Values |
Rate the satisfaction with physical health using a scale ranging from 0 (completely dissatisfied) to 10 (completely satisfied). You can use 0 or 10 or any number in between. |
Charlifue S, Post MW, Biering-SØrensen F, Catz A, Dijkers M, Geyh S, Horsewell J, Noonan V, Noreau L, Tate D, Sinnott KA. International Spinal Cord Injury Quality of Life Basic Data Set. Spinal Cord. 2012 Mar 27. [Epub ahead of print] | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Quality of Life Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C06146 | Spinal cord injury psychological health satisfaction scale | SpinCrdInjPsychHlthSatScale | Numeric response of psychological health emotions and mood of subject for the past four weeks | Numeric response of psychological health emotions and mood of subject for the past four week | How satisfied are you with your psychological health, emotions and mood in the pastfour weeks? Please use a scale ranging from 0 completely dissatisfied to 10 completely satisfied. You can use 0 or 10 or any number in between. | 0;1;2;3;4;5;6;7;8;9;10 | 0 completely dissatisfied;1;2;3;4;5;6;7;8;9;10 completely satisfied | Numeric Values |
Rates the satisfaction with psychological general mood using a scale ranging from 0 (completely dissatisfied) to 10 (completely satisfied). You can use 0 or 10 or any number in between. |
Charlifue S, Post MW, Biering-SØrensen F, Catz A, Dijkers M, Geyh S, Horsewell J, Noonan V, Noreau L, Tate D, Sinnott KA. International Spinal Cord Injury Quality of Life Basic Data Set. Spinal Cord. 2012 Mar 27. [Epub ahead of print] | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Quality of Life Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Single Pre-Defined Value Selected |
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| C19247 | Subject ID | SubIDNam | Subject identification ID | Subject identification ID | Subject | Alphanumeric |
The participant or subject identifiers or IDs should be assigned by the study. |
Charlifue S, Post MW, Biering-SØrensen F, Catz A, Dijkers M, Geyh S, Horsewell J, Noonan V, Noreau L, Tate D, Sinnott KA. International Spinal Cord Injury Quality of Life Basic Data Set. Spinal Cord. 2012 Mar 27. [Epub ahead of print] | Adult;Pediatric | Supplemental | 1.00 | 2014-06-05 13:10:49.0 | International SCI Quality of Life Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
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| C06000 | Site identifier number | SiteIDNum | Unique identification number given to the study site to distinguish the location where data is recorded | Unique identification number given to the study site to distinguish the location where data is recorde | Site | Alphanumeric |
The site identifiers or IDs should be assigned by the study. |
Charlifue S, Post MW, Biering-SØrensen F, Catz A, Dijkers M, Geyh S, Horsewell J, Noonan V, Noreau L, Tate D, Sinnott KA. International Spinal Cord Injury Quality of Life Basic Data Set. Spinal Cord. 2012 Mar 27. [Epub ahead of print] | Adult | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | International SCI Quality of Life Basic Data Set | The International SCI Data Sets | The International SCI Data Sets | 255 |
Free-Form Entry |
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| C06005 | Data collected date and time | DataCollDateTime | Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed | Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performe | Date Performed | Date or Date & Time |
Record the date/time according to the ISO 8601, the International Standard for the representation of dates and times (http://www.iso.org/iso/home.html). The date/time should be recorded to the level of granularity known (e.g., year, year and month, complete date plus hours and minutes, etc.). |
Charlifue S, Post MW, Biering-SØrensen F, Catz A, Dijkers M, Geyh S, Horsewell J, Noonan V, Noreau L, Tate D, Sinnott KA. International Spinal Cord Injury Quality of Life Basic Data Set. Spinal Cord. 2012 Mar 27. [Epub ahead of print] | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 21:00:23.88 | International SCI Quality of Life Basic Data Set | The International SCI Data Sets | The International SCI Data Sets |
Free-Form Entry |
