CDE Detailed Report

Disease: Parkinson's Disease
Sub-Domain: Motor Function
CRF: Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)

Displaying 51 - 83 of 83
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C09997 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - finger tap right hand score MDSUPDRSFingerTppngRteHndScore Score for the participant's/subject's ability to tap the right hand fingers evaluating the speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to tap the right hand fingers evaluating the speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) FINGER TAPPING 0;1;2;3;4 Normal: No problems;Slight: Any of the following: a) the regular rhythm is broken with one or two interruptions or hesitations of the tapping movement| b) slight slowing| c) the amplitude decrements near the end of the 10 taps;Mild: Any of the following: a) 3 to 5 interruptions during tapping| b) mild slowing| c) the amplitude decrements midway in the 10-tap sequence;Moderate: Any of the following: a) more than 5 interruptions during tapping or at least one longer arrest (freeze) in ongoing movement| b) moderate slowing| c) the amplitude decrements starting after the 1st tap;Severe: Cannot or can only barely perform the task because of slowing, interruptions or decrements. Numeric Values

Each hand is tested separately. Demonstrate the task, but do not continue to perform the task while the patient is being tested. Rate each side separately, evaluating speed, amplitude, hesitations, halts and decrementing amplitude.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10029 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - percent dyskinesia value MDSUPDRSPrcntDyskVal Value of the percent of time the participant/subject has dyskinesia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Value of the percent of time the participant/subject has dyskinesia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Percent Dyskinesia equals two over one times one hundred Numeric Values

Value should be recorded between 0-100%

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Free-Form Entry

C09965 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - questionnaire information provider type MDSUPDRSQstnnreInfoProvdrTyp The type as related to the provider of the participant's/subject's information, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) The type as related to the provider of the participant's/subject's information, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Who is filling out this questionnaire Patient;Caregiver;Patient and Caregiver in Equal Proportion Patient;Caregiver;Patient and Caregiver in Equal Proportion Alphanumeric

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09976 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - eat task score MDSUPDRSEatingTskScore Score for the participant's/subject's ability to eat and handle food and utensils, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to eat and handle food and utensils, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) EATING TASKS 0;1;2;3;4 Normal: Not at all (no problems);Slight: I am slow, but I do not need any help handling my food and have not had food spills while eating;Mild: I am slow with my eating and have occasional food spills. I may need help with a few tasks such as cutting meat;Moderate: I need help with many eating tasks but can manage some alone;Severe: I need help for most or all eating tasks. Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10008 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - gait score MDSUPDRSGaitScore Score for the participant's/subject's level of gait observing the stride amplitude, stride speed, height of foot lift, heel strike during walking, turning, and arm swing, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of gait, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS). GAIT 0;1;2;3;4 Normal: No problems;Slight: Independent walking with minor gait impairment;Mild: Independent walking but with substantial gait impairment;Moderate: Requires an assistance device for safe walking (walking stick, walker) but not a person;Severe: Cannot walk at all or only with another person's assistance. Numeric Values

The patient should walk at least 10 meters (30 feet), then turn around and return to the examiner. This item measures multiple behaviors: stride amplitude, stride speed, height of foot lift, heel strike during walking, turning, and arm swing, but not freezing. Assess also for "freezing of gait" (next item 3.11) while patient is walking. observe posture for item 3.13

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10040 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - percent off dystonia value MDSUPDRSPrcntOffDystniaVal Value of the percent of time the participant/subject is off with dystonia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Value of the percent of time the participant/subject is off with dystonia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Percent Off Dystonia equals two over one times one hundred Numeric Values

Refer to instrument for additional instructions. Value should be recorded between 0-100%

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Free-Form Entry

C09987 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - patient clinical state while on Parkinson medication indicator MDSUPDRSPtClinStatePrknsnMdInd Indicator for whether the participant/subject is on the typical functional state or not , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Indicator for whether the participant/subject is on the typical functional state or not , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) If the patient is receiving medication for treating the symptoms of Parkinson's Disease mark the patient's clinical state using the following definitions ON;OFF On is the typical functional state when patients are receiving medication and have a good response;Off is the typical functional state when patients have a poor response in spite of taking medications. Alphanumeric

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10019 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - rest tremor amplitude right lower extremity score MDSUPDRSRestTremorAmpRLEScore Score for the participant's/subject's right lower extremities rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's right lower extremities rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) REST TREMOR AMPLITUDE 0;1;2;3;4 Normal: No tremor;Slight.: < 1 cm in maximal amplitude;Mild: > 1 cm but < 3 cm in maximal amplitude;Moderate: 3 - 10 cm in maximal amplitude;Severe: > 10 cm in maximal amplitude Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09998 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - finger tap left hand score MDSUPDRSFingerTppngLftHndScore Score for the participant's/subject's ability to tap the left hand fingers evaluating the speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to tap the left hand fingers evaluating the speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) FINGER TAPPING 0;1;2;3;4 Normal: No problems;Slight: Any of the following: a) the regular rhythm is broken with one or two interruptions or hesitations of the tapping movement| b) slight slowing| c) the amplitude decrements near the end of the 10 taps;Mild: Any of the following: a) 3 to 5 interruptions during tapping| b) mild slowing| c) the amplitude decrements midway in the 10-tap sequence;Moderate: Any of the following: a) more than 5 interruptions during tapping or at least one longer arrest (freeze) in ongoing movement| b) moderate slowing| c) the amplitude decrements starting after the 1st tap;Severe: Cannot or can only barely perform the task because of slowing, interruptions or decrements. Numeric Values

Each hand is tested separately. Demonstrate the task, but do not continue to perform the task while the patient is being tested. Rate each side separately, evaluating speed, amplitude, hesitations, halts and decrementing amplitude.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10030 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - functional impact of dyskinesia score MDSUPDRSFuncImpactDyskScore Score for the participant's/subject's level of functional impact of dyskinesia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of functional impact of dyskinesia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) FUNCTIONAL IMPACT OF DYSKINESIAS 0;1;2;3;4 Normal: No dyskinesias or no impact by dyskinesias on activities or social interactions;Slight: Dyskinesias impact on a few activities, but the patient usually performs all activities and participates in all social interactions during dyskinetic periods;Mild: Dyskinesias impact on many activities, but the patient usually performs all activities and participates in all social interactions during dyskinetic periods;Moderate: Dyskinesias impact on activities to the point that the patient usually does not perform some activities or does not usually participate in some social activities during dyskinetic episodes;Severe: Dyskinesias impact on function to the point that the patient usually does not perform most activities or participate in most social interactions during dyskinetic episodes. Numeric Values

Determine the degree to which dyskinesias impact on the patient's daily function in terms of activities and social interactions. Use the patient's and caregiver's response to your question and your own observations during the office visit to arrive at the best answer.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09966 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - sleep problem score MDSUPDRSSleepProbScore Score for the participant's/subject's ability to sleep considering how rested he or she felt waking up in the morning, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to sleep considering how rested he or she felt waking up in the morning, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) SLEEP PROBLEMS 0;1;2;3;4 Normal: No problems;Slight: Sleep problems are present but usually do not cause trouble getting a full night of sleep;Mild: Sleep problems usually cause some difficulties getting a full night of sleep;Moderate: Sleep problems cause a lot of difficulties getting a full night of sleep, but I still usually sleep for more than half the night;Severe: I usually do not sleep for most of the night. Numeric Values

Consider how rested you felt after waking up in the morning.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09977 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - dress score MDSUPDRSDressingScore Score for the participant's/subject's ability to dress himself or herself, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to dress himself or herself, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) DRESSING 0;1;2;3;4 Normal: Not at all (no problems);Slight: I am slow but I do not need help;Mild: I am slow and need help for a few dressing tasks (buttons, bracelets);Moderate: I need help for many dressing tasks;Severe: I need help for most or all dressing tasks Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10009 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - freeze gait score MDSUPDRSFreezingGaitScore Score for the participant's/subject's level of gait freezing episodes or hesitations especially when turning and reaching the end of the task, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of gait freezing episodes or hesitations especially when turning and reaching the end of the task, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) FREEZING OF GAIT 0;1;2;3;4 Normal: No freezing;Slight: Freezes on starting, turning or walking through doorway with a single halt during any of these events, but then continues smoothly without freezing during straight walking;Mild: Freezes on starting, turning or walking through doorway with more than one halt during any of these activities, but continues smoothly without freezing during straight walking;Moderate: Freezes once during straight walking;Severe: Freezes multiple times during straight walking. Numeric Values

Observe for start hesitation and stuttering movements especially when turning and reaching the end of the task. To the extent that safety permits, patients may NOT use sensory tricks during the assessment.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09988 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - patient use levodopa indicator MDSUPDRSPtntUseLDOPAInd Indicator for whether the participant/subject is taking Levodopa, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Indicator for whether the participant/subject is taking Levodopa, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Is the patient on Levodopa No;Yes No;Yes Alphanumeric

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10020 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - rest tremor amplitude left lower extremity score MDSUPDRSRestTremorAmpLLEScore Score for the participant's/subject's left lower extremities rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's left lower extremities rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) REST TREMOR AMPLITUDE 0;1;2;3;4 Normal: No tremor;Slight.: < 1 cm in maximal amplitude;Mild: > 1 cm but < 3 cm in maximal amplitude;Moderate: 3 - 10 cm in maximal amplitude;Severe: > 10 cm in maximal amplitude Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09999 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - right hand movement score MDSUPDRSRteHndScore Score for the participant's/subject's ability to move the right hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to move the right hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) HAND MOVEMENTS 0;1;2;3;4 Normal: No problem;Slight: Any of the following: a) the regular rhythm is broken with one or two interruptions or hesitations of the movement| b) slight slowing| c) the amplitude decrements near the end of the task;Mild: Any of the following: a) 3 to 5 interruptions during the movements, b) mild slowing, c) the amplitude decrements midway in the task;Moderate: Any of the following: a) more than 5 interruptions during the movement or at least one longer arrest (freeze) in ongoing movement, b) moderate slowing, c) the amplitude decrements starting after the 1st open-and-close sequence;Severe: Cannot or can only barely perform the task because of slowing, interruptions or decrements Numeric Values

Test each hand separately. Demonstrate the task, but do not continue to perform the task while the patient is being tested. Instruct the patient to make a tight fist with the arm bent at the elbow so that the palm faces the examiner. Rate each side separately, evaluating speed, amplitude, hesitations, halts and decrementing amplitude.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10031 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - time spent in off state score MDSUPDRSTmSpntOffStateScore Score for the participant's/subject's level of complexity of motor fluctuations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of complexity of motor fluctuations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) TIME SPENT IN THE OFF STATE 0;1;2;3;4 Normal: No OFF time;Slight: less than or equal to 25 percent of waking day;Mild: 26 - 50 percent of waking day;Moderate: 51 - 75 percent of waking day;Severe: greater than 75 percent of waking day Numeric Values

If the patient has an OFF period in the office, you can point to this state as a reference. You may also use your knowledge of the patient to describe a typical OFF period. Additionally you may use your own acting skills to enact an OFF period you have seen in the patient before or show them OFF function typical of other patients. Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09967 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - daytime sleepiness score MDSUPDRSDaytmSleepScore Score for the participant's/subject's daytime sleepiness level , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's daytime sleepiness level , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) DAYTIME SLEEPINESS 0;1;2;3;4 Normal: No daytime sleepiness.;Slight: Daytime sleepiness occurs but I can resist and I stay awake;Mild: Sometimes I fall asleep when alone and relaxing. For example, while reading or watching TV;Moderate: I sometimes fall asleep when I should not. For example, while eating or talking with other people;Severe: I often fall asleep when I should not. For example, while eating or talking with other people. Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09978 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - hygiene score MDSUPDRSHygieneScore Score for the participant's/subject's level of hygiene, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of hygiene, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) HYGIENE 0;1;2;3;4 Normal: Not at all (no problems);Slight: I am slow but I do not need any help;Mild: I need someone else to help me with some hygiene tasks;Moderate: I need help for many hygiene tasks;Severe: I need help for most or all of my hygiene tasks Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10010 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - postural stability score MDSUPDRSPostrlStabltyScore Score for the participant's/subject's level of postural stability , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of postural stability , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) POSTURAL STABILITY 0;1;2;3;4 Normal: No problems: Recovers with one or two steps;Slight: 3-5 steps, but subject recovers unaided;Mild: More than 5 steps, but subject recovers unaided;Moderate: Stands safely, but with absence of postural response| falls if not caught by examiner;Severe: Very unstable, tends to lose balance spontaneously or with just a gentle pull on the shoulders Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09989 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - last levodopa dose time MDSUPDRSLstLDOPADoseTm Duration of time, in minutes, since the participant/subject last took Levodopa, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Duration of time, in minutes, since the participant/subject last took Levodopa, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) If yes, minutes since last levodopa dose Numeric Values

Record the time in minutes

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Free-Form Entry

minutes
C10021 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - rest tremor amplitude lip jaw score MDSUPDRSRestTremrAmpLipJawScr Score for the participant's/subject's lip and jaw rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's lip and jaw rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) REST TREMOR AMPLITUDE 0;1;2;3;4 Normal: No tremor;Slight.: < 1 cm in maximal amplitude;Mild: > 1 cm but < 3 cm in maximal amplitude;Moderate: 3 - 10 cm in maximal amplitude;Severe: > 10 cm in maximal amplitude Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09968 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - pain other sensations score MDSUPDRSPainOthrSensScore Score for the participant's/subject's level of pain and other sensations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of pain and other sensations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) PAIN AND OTHER SENSATIONS 0;1;2;3;4 Normal: No uncomfortable feelings.;Slight: I have these feelings. However, I can do things and be with other people without difficulty;Mild: These feelings cause some problems when I do things or am with other people;Moderate: These feelings cause a lot of problems, but they do not stop me from doing things or being with other people;Severe: These feelings stop me from doing things or being with other people. Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10000 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - left hand movement score MDSUPDRSLftHndScore Score for the participant's/subject's ability to move the left hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to move the left hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) HAND MOVEMENTS 0;1;2;3;4 Normal: No problem;Slight: Any of the following: a) the regular rhythm is broken with one or two interruptions or hesitations of the movement| b) slight slowing| c) the amplitude decrements near the end of the task;Mild: Any of the following: a) 3 to 5 interruptions during the movements, b) mild slowing, c) the amplitude decrements midway in the task;Moderate: Any of the following: a) more than 5 interruptions during the movement or at least one longer arrest (freeze) in ongoing movement, b) moderate slowing, c) the amplitude decrements starting after the 1st open-and-close sequence;Severe: Cannot or can only barely perform the task because of slowing, interruptions or decrements Numeric Values

Test each hand separately. Demonstrate the task, but do not continue to perform the task while the patient is being tested. Instruct the patient to make a tight fist with the arm bent at the elbow so that the palm faces the examiner. Rate each side separately, evaluating speed, amplitude, hesitations, halts and decrementing amplitude.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10032 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - total hour awake number MDSUPDRSTtlHrAwkOffStateNum Number of total hours that the participant is awake, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Number of total hours that the participant is awake, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Total Hours Awake Numeric Values

Value should be recorded between 0-24 hours Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

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C09979 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - handwrite score MDSUPDRSHandwritingScore Score for the participant's/subject's handwriting abilities, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's handwriting abilities, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) HANDWRITING 0;1;2;3;4 Normal: Not at all (no problems);Slight: My writing is slow, clumsy or uneven, but all words are clear;Mild: Some words are unclear and difficult to read;Moderate: Many words are unclear and difficult to read;Severe: Most or all words cannot be read. Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10011 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - posture score MDSUPDRSPostureScore Score for how well the participant's/subject's posture is by observing the flexion and side-to-side leaning, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for how well the participant's/subject's posture is by observing the flexion and side-to-side leaning, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) POSTURE 0;1;2;3;4 Normal: No problems;Slight: Not quite erect, but posture could be normal for older person;Mild: Definite flexion, scoliosis or leaning to one side, but patient can correct posture to normal posture when asked to do so;Moderate: Stooped posture, scoliosis or leaning to one side that cannot be corrected volitionally to a normal posture by the patient;Severe: Flexion, scoliosis or leaning with extreme abnormality of posture Numeric Values

If you notice poor posture, tell the patient to stand up straight and see if the posture improves (see option 2 below). Rate the worst posture seen in these three observation points. Observe for flexion and side-to-side leaning.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09990 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - free flow speech score MDSUPDRSFreeFlowSpeechScore Score for the participant's/subject's free flowing speech ability considering the volume, modulation, clarity, slurring, palilalia, and tachyphemia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's free flowing speech ability considering the volume, modulation, clarity, slurring, palilalia, and tachyphemia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) SPEECH 0;1;2;3;4 Normal: No speech problems;Slight: Loss of modulation, diction or volume, but still all words easy to understand;Mild: Loss of modulation, diction, or volume, with a few words unclear, but the overall sentences easy to follow;Moderate: Speech is difficult to understand to the point that some, but not most, sentences are poorly understood;Severe: Most speech is difficult to understand or unintelligible Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10022 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - constancy of rest tremor score MDSUPDRSConstncyRestTremrScore Score for the participant's/subject's constancy of rest tremor when different body parts are at rest, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's constancy of rest tremor when different body parts are at rest, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) CONSTANCY OF REST TREMOR 0;1;2;3;4 Normal: No tremor;Slight: Tremor at rest is present less than 25 percent of the entire examination period;Mild: Tremor at rest is present 26-50percent of the entire examination period;Moderate: Tremor at rest is present 51-75 percent of the entire examination period;Severe: Tremor at rest is present greater than 75 percent of the entire examination period Numeric Values

It is rated purposefully at the end of the examination so that several minutes of information can be coalesced into the rating.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09958 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - primary source information type MDSUPDRSPrimrySrcInfoTyp The type as related to the primary source of information for the participant's/subject's information, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) The type as related to the primary source of information for the participant's/subject's information, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Primary source of information Patient;Caregiver;Patient and Caregiver in Equal Proportion Patient;Caregiver;Patient and Caregiver in Equal Proportion Alphanumeric

To be read to the patient: I am going to ask you six questions about behaviors that you may or may not experience. Some questions concern common problems and some concern uncommon ones. If you have a problem in one of the areas, please choose the best response that deScoreibes how you have felt MOST OF THE TIME during the PAST WEEK. If you are not bothered by a problem, you can simply respond NO. I am trying to be thorough, so I may ask questions that have nothing to do with you.

URL: http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09969 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - urinary problem score MDSUPDRSUrnryProbScore Score for the participant's/subject's degree of urinary problems (e.g. urgent need to urinate, a need to urinate too often, or urine accidents), as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's degree of urinary problems (e.g. urgent need to urinate, a need to urinate too often, or urine accidents), as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) URINARY PROBLEMS 0;1;2;3;4 Normal: No urine control problems;Slight: I need to urinate often or urgently. However, these problems do not cause difficulties with my daily activities;Mild: Urine problems cause some difficulties with my daily activities. However, I do not have urine accidents;Moderate: Urine problems cause a lot of difficulties with my daily activities, including urine accidents;Severe: I cannot control my urine and use a protective garment or have a bladder tube. Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10001 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - pronation supination right hand movement score MDSUPDRSProntSupnRtHndMvmtScr Score for the participant's/subject's ability to pronate and supinate the right hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to pronate and supinate the right hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) PRONATION SUPINATION MOVEMENTS OF HANDS 0;1;2;3;4 Normal: No problems;Slight: Any of the following: a) the regular rhythm is broken with one or two interruptions or hesitations of the movement| b) slight slowing| c) the amplitude decrements near the end of the sequence;Mild: Any of the following: a) 3 to 5 interruptions during the movements, b) mild slowing, c) the amplitude decrements midway in the sequence;Moderate: Any of the following: a) more than 5 interruptions during the movement or at least one longer arrest (freeze) in ongoing movement, b) moderate slowing c) the amplitude decrements starting after the 1st supination-pronation sequence;Severe: Cannot or can only barely perform the task because of slowing, interruptions or decrements Numeric Values

Test each hand separately. Demonstrate the task, but do not continue to perform the task while the patient is being tested. Rate each side separately, evaluating speed, amplitude, hesitations, halts and decrementing amplitude.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10033 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - total hour off number MDSUPDRSTtlHrOffNum Number of total hours that the participant/subject is Of, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Number of total hours that the participant/subject is OFF, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Total Hours OFF Numeric Values

Value should be recorded between 0-24 hours Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

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