CDE Detailed Report

Disease: Parkinson's Disease
Sub-Domain: Motor Function
CRF: Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS)

Displaying 51 - 83 of 83
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C09998 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - finger tap left hand score MDSUPDRSFingerTppngLftHndScore Score for the participant's/subject's ability to tap the left hand fingers evaluating the speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to tap the left hand fingers evaluating the speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) FINGER TAPPING 0;1;2;3;4 Normal: No problems;Slight: Any of the following: a) the regular rhythm is broken with one or two interruptions or hesitations of the tapping movement| b) slight slowing| c) the amplitude decrements near the end of the 10 taps;Mild: Any of the following: a) 3 to 5 interruptions during tapping| b) mild slowing| c) the amplitude decrements midway in the 10-tap sequence;Moderate: Any of the following: a) more than 5 interruptions during tapping or at least one longer arrest (freeze) in ongoing movement| b) moderate slowing| c) the amplitude decrements starting after the 1st tap;Severe: Cannot or can only barely perform the task because of slowing, interruptions or decrements. Numeric Values

Each hand is tested separately. Demonstrate the task, but do not continue to perform the task while the patient is being tested. Rate each side separately, evaluating speed, amplitude, hesitations, halts and decrementing amplitude.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09977 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - dress score MDSUPDRSDressingScore Score for the participant's/subject's ability to dress himself or herself, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to dress himself or herself, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) DRESSING 0;1;2;3;4 Normal: Not at all (no problems);Slight: I am slow but I do not need help;Mild: I am slow and need help for a few dressing tasks (buttons, bracelets);Moderate: I need help for many dressing tasks;Severe: I need help for most or all dressing tasks Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10009 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - freeze gait score MDSUPDRSFreezingGaitScore Score for the participant's/subject's level of gait freezing episodes or hesitations especially when turning and reaching the end of the task, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of gait freezing episodes or hesitations especially when turning and reaching the end of the task, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) FREEZING OF GAIT 0;1;2;3;4 Normal: No freezing;Slight: Freezes on starting, turning or walking through doorway with a single halt during any of these events, but then continues smoothly without freezing during straight walking;Mild: Freezes on starting, turning or walking through doorway with more than one halt during any of these activities, but continues smoothly without freezing during straight walking;Moderate: Freezes once during straight walking;Severe: Freezes multiple times during straight walking. Numeric Values

Observe for start hesitation and stuttering movements especially when turning and reaching the end of the task. To the extent that safety permits, patients may NOT use sensory tricks during the assessment.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09988 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - patient use levodopa indicator MDSUPDRSPtntUseLDOPAInd Indicator for whether the participant/subject is taking Levodopa, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Indicator for whether the participant/subject is taking Levodopa, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Is the patient on Levodopa No;Yes No;Yes Alphanumeric

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10020 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - rest tremor amplitude left lower extremity score MDSUPDRSRestTremorAmpLLEScore Score for the participant's/subject's left lower extremities rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's left lower extremities rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) REST TREMOR AMPLITUDE 0;1;2;3;4 Normal: No tremor;Slight.: < 1 cm in maximal amplitude;Mild: > 1 cm but < 3 cm in maximal amplitude;Moderate: 3 - 10 cm in maximal amplitude;Severe: > 10 cm in maximal amplitude Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10031 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - time spent in off state score MDSUPDRSTmSpntOffStateScore Score for the participant's/subject's level of complexity of motor fluctuations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of complexity of motor fluctuations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) TIME SPENT IN THE OFF STATE 0;1;2;3;4 Normal: No OFF time;Slight: less than or equal to 25 percent of waking day;Mild: 26 - 50 percent of waking day;Moderate: 51 - 75 percent of waking day;Severe: greater than 75 percent of waking day Numeric Values

If the patient has an OFF period in the office, you can point to this state as a reference. You may also use your knowledge of the patient to describe a typical OFF period. Additionally you may use your own acting skills to enact an OFF period you have seen in the patient before or show them OFF function typical of other patients. Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09967 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - daytime sleepiness score MDSUPDRSDaytmSleepScore Score for the participant's/subject's daytime sleepiness level , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's daytime sleepiness level , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) DAYTIME SLEEPINESS 0;1;2;3;4 Normal: No daytime sleepiness.;Slight: Daytime sleepiness occurs but I can resist and I stay awake;Mild: Sometimes I fall asleep when alone and relaxing. For example, while reading or watching TV;Moderate: I sometimes fall asleep when I should not. For example, while eating or talking with other people;Severe: I often fall asleep when I should not. For example, while eating or talking with other people. Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09999 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - right hand movement score MDSUPDRSRteHndScore Score for the participant's/subject's ability to move the right hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to move the right hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) HAND MOVEMENTS 0;1;2;3;4 Normal: No problem;Slight: Any of the following: a) the regular rhythm is broken with one or two interruptions or hesitations of the movement| b) slight slowing| c) the amplitude decrements near the end of the task;Mild: Any of the following: a) 3 to 5 interruptions during the movements, b) mild slowing, c) the amplitude decrements midway in the task;Moderate: Any of the following: a) more than 5 interruptions during the movement or at least one longer arrest (freeze) in ongoing movement, b) moderate slowing, c) the amplitude decrements starting after the 1st open-and-close sequence;Severe: Cannot or can only barely perform the task because of slowing, interruptions or decrements Numeric Values

Test each hand separately. Demonstrate the task, but do not continue to perform the task while the patient is being tested. Instruct the patient to make a tight fist with the arm bent at the elbow so that the palm faces the examiner. Rate each side separately, evaluating speed, amplitude, hesitations, halts and decrementing amplitude.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09978 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - hygiene score MDSUPDRSHygieneScore Score for the participant's/subject's level of hygiene, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of hygiene, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) HYGIENE 0;1;2;3;4 Normal: Not at all (no problems);Slight: I am slow but I do not need any help;Mild: I need someone else to help me with some hygiene tasks;Moderate: I need help for many hygiene tasks;Severe: I need help for most or all of my hygiene tasks Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10010 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - postural stability score MDSUPDRSPostrlStabltyScore Score for the participant's/subject's level of postural stability , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of postural stability , as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) POSTURAL STABILITY 0;1;2;3;4 Normal: No problems: Recovers with one or two steps;Slight: 3-5 steps, but subject recovers unaided;Mild: More than 5 steps, but subject recovers unaided;Moderate: Stands safely, but with absence of postural response| falls if not caught by examiner;Severe: Very unstable, tends to lose balance spontaneously or with just a gentle pull on the shoulders Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09989 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - last levodopa dose time MDSUPDRSLstLDOPADoseTm Duration of time, in minutes, since the participant/subject last took Levodopa, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Duration of time, in minutes, since the participant/subject last took Levodopa, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) If yes, minutes since last levodopa dose Numeric Values

Record the time in minutes

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Free-Form Entry

minutes
C10021 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - rest tremor amplitude lip jaw score MDSUPDRSRestTremrAmpLipJawScr Score for the participant's/subject's lip and jaw rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's lip and jaw rest tremor amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) REST TREMOR AMPLITUDE 0;1;2;3;4 Normal: No tremor;Slight.: < 1 cm in maximal amplitude;Mild: > 1 cm but < 3 cm in maximal amplitude;Moderate: 3 - 10 cm in maximal amplitude;Severe: > 10 cm in maximal amplitude Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10032 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - total hour awake number MDSUPDRSTtlHrAwkOffStateNum Number of total hours that the participant is awake, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Number of total hours that the participant is awake, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Total Hours Awake Numeric Values

Value should be recorded between 0-24 hours Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Free-Form Entry

C09968 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - pain other sensations score MDSUPDRSPainOthrSensScore Score for the participant's/subject's level of pain and other sensations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of pain and other sensations, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) PAIN AND OTHER SENSATIONS 0;1;2;3;4 Normal: No uncomfortable feelings.;Slight: I have these feelings. However, I can do things and be with other people without difficulty;Mild: These feelings cause some problems when I do things or am with other people;Moderate: These feelings cause a lot of problems, but they do not stop me from doing things or being with other people;Severe: These feelings stop me from doing things or being with other people. Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10000 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - left hand movement score MDSUPDRSLftHndScore Score for the participant's/subject's ability to move the left hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to move the left hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) HAND MOVEMENTS 0;1;2;3;4 Normal: No problem;Slight: Any of the following: a) the regular rhythm is broken with one or two interruptions or hesitations of the movement| b) slight slowing| c) the amplitude decrements near the end of the task;Mild: Any of the following: a) 3 to 5 interruptions during the movements, b) mild slowing, c) the amplitude decrements midway in the task;Moderate: Any of the following: a) more than 5 interruptions during the movement or at least one longer arrest (freeze) in ongoing movement, b) moderate slowing, c) the amplitude decrements starting after the 1st open-and-close sequence;Severe: Cannot or can only barely perform the task because of slowing, interruptions or decrements Numeric Values

Test each hand separately. Demonstrate the task, but do not continue to perform the task while the patient is being tested. Instruct the patient to make a tight fist with the arm bent at the elbow so that the palm faces the examiner. Rate each side separately, evaluating speed, amplitude, hesitations, halts and decrementing amplitude.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09979 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - handwrite score MDSUPDRSHandwritingScore Score for the participant's/subject's handwriting abilities, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's handwriting abilities, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) HANDWRITING 0;1;2;3;4 Normal: Not at all (no problems);Slight: My writing is slow, clumsy or uneven, but all words are clear;Mild: Some words are unclear and difficult to read;Moderate: Many words are unclear and difficult to read;Severe: Most or all words cannot be read. Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10011 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - posture score MDSUPDRSPostureScore Score for how well the participant's/subject's posture is by observing the flexion and side-to-side leaning, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for how well the participant's/subject's posture is by observing the flexion and side-to-side leaning, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) POSTURE 0;1;2;3;4 Normal: No problems;Slight: Not quite erect, but posture could be normal for older person;Mild: Definite flexion, scoliosis or leaning to one side, but patient can correct posture to normal posture when asked to do so;Moderate: Stooped posture, scoliosis or leaning to one side that cannot be corrected volitionally to a normal posture by the patient;Severe: Flexion, scoliosis or leaning with extreme abnormality of posture Numeric Values

If you notice poor posture, tell the patient to stand up straight and see if the posture improves (see option 2 below). Rate the worst posture seen in these three observation points. Observe for flexion and side-to-side leaning.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09958 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - primary source information type MDSUPDRSPrimrySrcInfoTyp The type as related to the primary source of information for the participant's/subject's information, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) The type as related to the primary source of information for the participant's/subject's information, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Primary source of information Patient;Caregiver;Patient and Caregiver in Equal Proportion Patient;Caregiver;Patient and Caregiver in Equal Proportion Alphanumeric

To be read to the patient: I am going to ask you six questions about behaviors that you may or may not experience. Some questions concern common problems and some concern uncommon ones. If you have a problem in one of the areas, please choose the best response that deScoreibes how you have felt MOST OF THE TIME during the PAST WEEK. If you are not bothered by a problem, you can simply respond NO. I am trying to be thorough, so I may ask questions that have nothing to do with you.

URL: http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09990 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - free flow speech score MDSUPDRSFreeFlowSpeechScore Score for the participant's/subject's free flowing speech ability considering the volume, modulation, clarity, slurring, palilalia, and tachyphemia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's free flowing speech ability considering the volume, modulation, clarity, slurring, palilalia, and tachyphemia, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) SPEECH 0;1;2;3;4 Normal: No speech problems;Slight: Loss of modulation, diction or volume, but still all words easy to understand;Mild: Loss of modulation, diction, or volume, with a few words unclear, but the overall sentences easy to follow;Moderate: Speech is difficult to understand to the point that some, but not most, sentences are poorly understood;Severe: Most speech is difficult to understand or unintelligible Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10022 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - constancy of rest tremor score MDSUPDRSConstncyRestTremrScore Score for the participant's/subject's constancy of rest tremor when different body parts are at rest, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's constancy of rest tremor when different body parts are at rest, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) CONSTANCY OF REST TREMOR 0;1;2;3;4 Normal: No tremor;Slight: Tremor at rest is present less than 25 percent of the entire examination period;Mild: Tremor at rest is present 26-50percent of the entire examination period;Moderate: Tremor at rest is present 51-75 percent of the entire examination period;Severe: Tremor at rest is present greater than 75 percent of the entire examination period Numeric Values

It is rated purposefully at the end of the examination so that several minutes of information can be coalesced into the rating.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10033 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - total hour off number MDSUPDRSTtlHrOffNum Number of total hours that the participant/subject is Of, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Number of total hours that the participant/subject is OFF, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Total Hours OFF Numeric Values

Value should be recorded between 0-24 hours Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Free-Form Entry

C09969 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - urinary problem score MDSUPDRSUrnryProbScore Score for the participant's/subject's degree of urinary problems (e.g. urgent need to urinate, a need to urinate too often, or urine accidents), as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's degree of urinary problems (e.g. urgent need to urinate, a need to urinate too often, or urine accidents), as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) URINARY PROBLEMS 0;1;2;3;4 Normal: No urine control problems;Slight: I need to urinate often or urgently. However, these problems do not cause difficulties with my daily activities;Mild: Urine problems cause some difficulties with my daily activities. However, I do not have urine accidents;Moderate: Urine problems cause a lot of difficulties with my daily activities, including urine accidents;Severe: I cannot control my urine and use a protective garment or have a bladder tube. Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10001 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - pronation supination right hand movement score MDSUPDRSProntSupnRtHndMvmtScr Score for the participant's/subject's ability to pronate and supinate the right hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to pronate and supinate the right hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) PRONATION SUPINATION MOVEMENTS OF HANDS 0;1;2;3;4 Normal: No problems;Slight: Any of the following: a) the regular rhythm is broken with one or two interruptions or hesitations of the movement| b) slight slowing| c) the amplitude decrements near the end of the sequence;Mild: Any of the following: a) 3 to 5 interruptions during the movements, b) mild slowing, c) the amplitude decrements midway in the sequence;Moderate: Any of the following: a) more than 5 interruptions during the movement or at least one longer arrest (freeze) in ongoing movement, b) moderate slowing c) the amplitude decrements starting after the 1st supination-pronation sequence;Severe: Cannot or can only barely perform the task because of slowing, interruptions or decrements Numeric Values

Test each hand separately. Demonstrate the task, but do not continue to perform the task while the patient is being tested. Rate each side separately, evaluating speed, amplitude, hesitations, halts and decrementing amplitude.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09980 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - hobby other activity score MDSUPDRSHobbieOthrActScore Score for the participant's/subject's ability to perform hobbies or other activities, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to perform hobbies or other activities, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) DOING HOBBIES AND OTHER ACTIVITES 0;1;2;3;4 Normal: Not at all (no problems);Slight: I am a bit slow but do these activities easily;Mild: I have some difficulty doing these activities;Moderate: I have major problems doing these activities, but still do most;Severe: I am unable to do most or all of these activities Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10012 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - global spontaneity of movement score MDSUPDRSGlblSpontntyMvmntScore Score for the participant's/subject's level of global spontaneity of movement observing the slowness, hesitancy, and small amplitude and poverty of movement in general Score for the participant's/subject's level of global spontaneity of movement observing the slowness, hesitancy, and small amplitude and poverty of movement in general GLOBAL SPONTANEITY OF MOVEMENT (BODY BRADYKINESIA) 0;1;2;3;4 Normal: No problems;Slight: Slight global slowness and poverty of spontaneous movements;Mild: Mild global slowness and poverty of spontaneous movements;Moderate: Moderate global slowness and poverty of spontaneous movements;Severe: Severe global slowness and poverty of spontaneous movements. Numeric Values

This assessment is based on the examiner's global impression after observing for spontaneous gestures while sitting, and the nature of arising and walking.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10023 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - dyskinesia chorea or dystonia presence score MDSUPDRSDyskChreaDystnaPrsScr Indicator for whether the participant's/subject's had any dyskinesia (chorea or dystonia) present during examination, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Indicator for whether the participant's/subject's had any dyskinesia (chorea or dystonia) present during examination, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Were dyskinesias (chorea or dystonia) present during examination? No;Yes No;Yes Alphanumeric

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URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09959 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - recent cognitive impairment score MDSUPDRSRcntCogImprmntScore Score for the participant's/subject's cognitive impairment including the cognitive slowing, impaired reasoning, memory loss, deficits in attention and orientation and how it impacts the activities of daily living, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's cognitive impairment including the cognitive slowing, impaired reasoning, memory loss, deficits in attention and orientation and how it impacts the activities of daily living, as a part of Movement Disorder Society - COGNITIVE IMPAIRMENT 0;1;2;3;4 Normal: No cognitive impairment;Slight: Impairment appreciated by patient or caregiver with no concrete interference with the patient's ability to carry out normal activities and social interactions;Mild: Clinically evident cognitive dysfunction, but only minimal interference with the patient's ability to carry out normal activities and social interactions;Moderate: Cognitive deficits interfere with but do not preclude the patient's ability to carry out normal activities and social interactions;Severe: Cognitive dysfunction precludes the patient's ability to carry out normal activities and social interactions. Numeric Values

Instructions to examiner: Consider all types of altered level of cognitive function including cognitive slowing, impaired reasoning, memory loss, deficits in attention and orientation. Rate their impact on activities of daily living as perceived by the patient and/or caregiver. Instructions to patients [and caregiver]: Over the past week have you had problems remembering things, following conversations, paying attention, thinking clearly, or finding your way around the house or in town? [If yes, examiner asks patient or caregiver to elaborate and probes for information]

URL: http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09991 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - facial expression score MDSUPDRSFacialExprScore Score for the participant's/subject's ability to make facial expressions observing the eye-blink frequency, masked faces or loss of facial expression, spontaneous smiling and parting of lips, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to make facial expressions, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) FACIAL EXPRESSION 0;1;2;3;4 Normal: Normal facial expression;Slight: Minimal masked faces manifested only by decreased frequency of blinking;Mild: In addition to decreased eye-blink frequency, Masked faces present in the lower face as well, namely fewer movements around the mouth, such as less spontaneous smiling, but lips not parted;Moderate: Masked faces with lips parted some of the time when the mouth is at rest;Severe: Masked faces with lips parted most of the time when the mouth is at rest Numeric Values

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URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10034 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - percent off value MDSUPDRSPrcntOffVal Value of the percent of time the participant/subject is OFF, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Value of the percent of time the participant/subject is OFF, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Percent OFF equals two over one times one hundred Numeric Values

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URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Free-Form Entry

C09970 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - constipation problem score MDSUPDRSConstipProbScore Score for the participant's/subject's level of constipation, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of constipation, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) CONSTIPATION PROBLEMS 0;1;2;3;4 Normal: No constipation;Slight: I have been constipated. I use extra effort to move my bowels. However, this problem does not disturb my activities or my being comfortable;Mild: Constipation causes me to have some troubles doing things or being comfortable;Moderate: Constipation causes me to have a lot of trouble doing things or being comfortable. However, it does not stop me from doing anything;Severe: I usually need physical help from someone else to empty my bowels. Numeric Values

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URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10002 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - pronation supination left hand movement score PronatSupinLftHndMvmntScore Score for the participant's/subject's ability to pronate and supinate the left hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to pronate and supinate the left hand evaluating speed, amplitude, hesitations, halts and decrementing amplitude, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) PRONATION SUPINATION MOVEMENTS OF HANDS 0;1;2;3;4 Normal: No problems;Slight: Any of the following: a) the regular rhythm is broken with one or two interruptions or hesitations of the movement| b) slight slowing| c) the amplitude decrements near the end of the sequence;Mild: Any of the following: a) 3 to 5 interruptions during the movements, b) mild slowing, c) the amplitude decrements midway in the sequence;Moderate: Any of the following: a) more than 5 interruptions during the movement or at least one longer arrest (freeze) in ongoing movement, b) moderate slowing c) the amplitude decrements starting after the 1st supination-pronation sequence;Severe: Cannot or can only barely perform the task because of slowing, interruptions or decrements Numeric Values

Test each hand separately. Demonstrate the task, but do not continue to perform the task while the patient is being tested. Rate each side separately, evaluating speed, amplitude, hesitations, halts and decrementing amplitude.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C09981 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - turn bed score MDSUPDRSTurngBedScore Score for the participant's/subject's ability to turn in bed, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's ability to turn in bed, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Turning in bed and adjusting bed clothes 0;1;2;3;4 Normal: Not at all (no problems);Slight: I have a bit of trouble turning, but I do not need any help;Mild I have a lot of trouble turning and need occasional help from someone else;Moderate: To turn over I often need help from someone else;Severe: I am unable to turn over without help from someone else Numeric Values

Refer to instrument for additional instructions

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

C10013 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) - postural tremor right hand score MDSUPDRSPostrlTremorRtHndScore Score for the participant's/subject's level of postural tremor of the right hand observing the highest amplitude seen, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) Score for the participant's/subject's level of postural tremor of the right hand observing the highest amplitude seen, as a part of Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS UPDRS) POSTURAL TREMOR OF THE HANDS 0;1;2;3;4 Normal: No tremor;Slight: Tremor is present but less than 1 cm in amplitude;Mild: Tremor is at least 1 but less than 3 cm in amplitude;Moderate: Tremor is at least 3 but less than 10 cm in amplitude;Severe: Tremor is at least 10 cm in amplitude Numeric Values

Rate each hand separately. Rate the highest amplitude seen. Instruct the patient to stretch the arms out in front of the body with palms down. The wrist should be straight and the fingers comfortably separated so that they do not touch each other. Observe this posture for 10 seconds.

URL:http://www.movementdisorders.org/MDS-Files1/Resources/PDFs/MDS-UPDRS.pdf Adult Core 3.00 2013-07-22 09:34:41.527 Movement Disorder Society - Unified Parkinson's Disease Rating Scale (MDS-UPDRS) Motor Function Outcomes and End Points

Single Pre-Defined Value Selected

CSV