CDE Detailed Report

Disease: Parkinson's Disease
Subdomain Name: Epidemiology/Environmental History
CRF: History of Early Exposure

Displaying 1 - 32 of 32
CDE ID CDE Name Variable Name Definition Short Description Question Text Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guidance) Subdomain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type External Id Loinc External Id Snomed External Id caDSR External Id CDISC
C08080 Twin sibling indicator TwinSiblingInd Indicator of whether the participant/subject has a twin brother or sister Indicator of whether the participant/subject has a twin brother or sister Are you a twin? Yes;No;Unknown Yes;No;Unknown Alphanumeric

If NO, skip to Day Care Attendance

Christiansen L, Frederiksen H, Schousboe K, Skytthe A, von Wurmb-Schwark N, Christensen K, Kyvik K. Age- and sex-differences in the validity of questionnaire-based zygosity in twins. Twin Res. 2003 Aug;6(4):275-8. Adult Supplemental 3.00 2013-07-22 09:34:41.527 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C08113 Born prematurely indicator BornPrematurInd Indicator of whether the participant was informed by a physician or family member that they were born prematurely Indicator of whether the participant was informed by a physician or family member that they were born prematurely Were you told by a doctor or one of your family (e.g., parents, siblings, uncles, aunts) that you were born premature? Yes;No;Unknown Yes;No;Unknown Alphanumeric

No instructions available

No references available Adult Supplemental 4.2 2024-01-08 14:51:28.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C59070 Shave facial hair regular begin age value ShaveFaclHairRegBeginAgeVal The age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more The age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more At what age did you start shaving your face regularly (once a week or more)? Numeric Values

Answer if you have facial hair

Habel LA, Van Den Eeden SK, Friedman GD. Body size, age at shaving initiation, and prostate cancer in a large, multiracial cohort. Prostate. 2000 May 1;43(2):136-43. Adult Supplemental 1.00 2022-07-26 16:33:41.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

0 year
C08081 Twin sibling type TwinSiblingTyp Type of twin the participant/subject has Type of twin the participant/subject has Would you say you are identical or non-identical twins? Identical;Not identical (fraternal) Identical;Not identical (fraternal) Alphanumeric

No instructions available

Christiansen L, Frederiksen H, Schousboe K, Skytthe A, von Wurmb-Schwark N, Christensen K, Kyvik K. Age- and sex-differences in the validity of questionnaire-based zygosity in twins. Twin Res. 2003 Aug;6(4):275-8. Adult Supplemental 3.00 2013-07-22 09:34:41.527 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C16170 Menstrual period occurrence indicator MenstrualPrdOcurInd Indicates whether participant has ever had a menstrual period Indicates whether participant has ever had a menstrual period Do you menstruate or have you menstruated in the past? Yes;No Yes;No Alphanumeric

If NO, skip to question on facial hair/shaving

Cooper R, Blell M, Hardy R, Black S, Pollard TM, Wadsworth ME, Pearce MS, Kuh D. Validity of age at menarche self-reported in adulthood. J Epidemiol Community Health. 2006 Nov;60(11):993-7. Erratum in: J Epidemiol Community Health. 2007 Feb;61(2):175. Adult Supplemental 3.10 2024-02-02 08:23:32.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C59071 Shave facial hair regular begin age category ShaveFaclHairRegBeginAgeCat Categorization of the age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more Categorization of the age at which the participant/subject began to regularly shave facial hair. Regular shaving is defined as once a week or more If you cannot remember the exact age, was it <=14 years;15-16 years;17-18 years;>=19 years <=14 years;15-16 years;17-18 years;>=19 years Alphanumeric

Only answer if exact age cannot be answered

Habel LA, Van Den Eeden SK, Friedman GD. Body size, age at shaving initiation, and prostate cancer in a large, multiracial cohort. Prostate. 2000 May 1;43(2):136-43. Adult Supplemental 1.00 2022-07-26 16:34:59.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C08104 Day care attendance indicator DayCareAttendanceInd Indicator of whether the participant/subject attended day care outside of the home as a child Indicator of whether the participant/subject attended day care outside of the home as a chil As a child did you attend day care outside of your home? Yes;Unknown;No Yes;Unknown;No Alphanumeric

If NO, skip to Preschool Attendance

No references available Adult Supplemental 3.00 2013-07-22 09:34:41.527 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C52710 Menarche begin age value MenarcheBeginAgeVal The age at which menarche began for the participant/subject The age at which menarche began for the participant/subject At what age did you first start having regular periods? Numeric Values

No instructions available

Cooper R, Blell M, Hardy R, Black S, Pollard TM, Wadsworth ME, Pearce MS, Kuh D. Validity of age at menarche self-reported in adulthood. J Epidemiol Community Health. 2006 Nov;60(11):993-7. Erratum in: J Epidemiol Community Health. 2007 Feb;61(2):175. Adult Supplemental 3.00 2013-06-11 00:00:00.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

C59072 Height in twenties measurement HgtInTwentiesMeasr Measurement of participant's/subject's height when in their twenties Measurement of participant's/subject's height when in their twenties When you were in your twenties, what was your height? feet and inches (or meters) Numeric Values

This may be greater than your current height as we can get a little shorter with age due to osteoporosis

Habel LA, Van Den Eeden SK, Friedman GD. Body size, age at shaving initiation, and prostate cancer in a large, multiracial cohort. Prostate. 2000 May 1;43(2):136-43. Adult Supplemental 1.00 2022-07-26 16:39:18.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

C08105 Day care start date DayCareStrtDate Date participant/subject first started day care outside of home Date (and time if applicable and known) participant/subject first started day care outside of home If YES, in what month and year did you begin and end the first (next) attendance? Date or Date & Time

No instructions available

ISO 8601 - https://www.iso.org/iso-8601-date-and-time-format.html Adult Supplemental 3.00 2013-07-22 09:34:41.527 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

C59062 Birth weight known indicator BirthWgtKnownInd Indicator of whether the participant/subject knows his/her birth weight Indicator of whether the participant/subject knows his/her birth weight Do you know how much you weighed at birth? No;Yes No;Yes Alphanumeric

If NO, skip to question on birth weight category

Kemp M, Gunnell D, Maynard M, Smith GD, Frankel S. How accurate is self reported birth weight among the elderly? J Epidemiol Community Health. 2000 Aug;54(8):639.<br /><br />Troy LM, Michels KB, Hunter DJ, Spiegelman D, Manson JE, Colditz GA, Stampfer MJ, Willett WC. Self-reported birthweight and history of having been breastfed among younger women: an assessment of validity. Int J Epidemiol. 1996 Feb;25(1):122-7. Adult Supplemental 1.00 2022-07-26 16:12:56.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C59073 Full biological sibling indicator FullBioSiblingInd Indicator of whether the participant/subject has any full biological brothers and/or sisters. Full brothers and/or sisters are defined as those with whom a biological mother and father is shared Indicator of whether the participant/subject has any full biological brothers and/or sisters. Full brothers and/or sisters are defined as those with whom a biological mother and father is shared Do you have any full brothers and/or sisters, that is, those with whom you share both a biological mother and father? No;Yes;Unknown No;Yes;Unknown Alphanumeric

If unknown, skip to Day Care Attendance. Please include brothers and sisters who are living or deceased, but do not include adopted, foster, half, or step brothers or sisters.

No references available Adult Supplemental 1.00 2022-07-26 16:44:42.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C08106 Day care end date DayCareEndDate Date participant/subject ended day care outside of home Date (and time if applicable and known) participant/subject ended day care outside of home If YES, in what month and year did you begin and end the first (next) attendance? Date or Date & Time

No instructions available

ISO 8601 - https://www.iso.org/iso-8601-date-and-time-format.html Adult Supplemental 3.00 2013-07-22 09:34:41.527 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

C59063 Birth weight source BirthWgtSource Source of the participant's/subject's birth weight data Source of the participant's/subject's birth weight data Is this from your memory of what you have been told by your parents or have you been able to check this with your parents (if either are currently still alive)? My memory;Mother's memory;Father's memory My memory;Mother's memory;Father's memory Alphanumeric

Only answer is 'YES' is answered to 'Do you know how much you weighed at birth?'

Kemp M, Gunnell D, Maynard M, Smith GD, Frankel S. How accurate is self reported birth weight among the elderly? J Epidemiol Community Health. 2000 Aug;54(8):639.<br /><br />Troy LM, Michels KB, Hunter DJ, Spiegelman D, Manson JE, Colditz GA, Stampfer MJ, Willett WC. Self-reported birthweight and history of having been breastfed among younger women: an assessment of validity. Int J Epidemiol. 1996 Feb;25(1):122-7. Adult Supplemental 1.00 2022-07-26 16:15:43.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C00311 Birth weight report value BirthWgtRprtVal Birth weight according to the participant's medical report or reported by the parent or legal guardian Birth weight according to the participant's medical report or reported by the parent or legal guardian What was your birth weight? (lbs oz or Kgs) Numeric Values

Only answer is 'YES' is answered to 'Do you know how much you weighed at birth?'

Kemp M, Gunnell D, Maynard M, Smith GD, Frankel S. How accurate is self reported birth weight among the elderly? J Epidemiol Community Health. 2000 Aug;54(8):639.<br /><br />Troy LM, Michels KB, Hunter DJ, Spiegelman D, Manson JE, Colditz GA, Stampfer MJ, Willett WC. Self-reported birthweight and history of having been breastfed among younger women: an assessment of validity. Int J Epidemiol. 1996 Feb;25(1):122-7. Adult Supplemental 4.20 2024-02-29 15:41:27.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

0
C08107 Day care hour per week value DayCareHourPerWkVal Approximate hours per week the participant/subject attended day care as a child Approximate hours per week the participant/subject attended day care as a child About how many hours per week did you attend? Numeric Values

No instructions available

No references available Adult Supplemental 3.10 2022-07-27 10:19:25.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

hour
C59064 Breastfed duration range BreastfedDurRng The range of duration that the participant/subject was breastfed The range of duration that the participant/subject was breastfed If YES, what was the duration? <=3 months;4-8 months;9+ months;Unknown <=3 months;4-8 months;9+ months;Unknown Alphanumeric

Only answer if 'YES' is answered to 'As far as you know did your mother breastfeed you?'

Troy LM, Michels KB, Hunter DJ, Spiegelman D, Manson JE, Colditz GA, Stampfer MJ, Willett WC. Self-reported birthweight and history of having been breastfed among younger women: an assessment of validity. Int J Epidemiol. 1996 Feb;25(1):122-7. Adult Supplemental 1.00 2022-07-26 16:19:19.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C01581 Weight unit of measure WgtUoM Unit of measure for the weight numerical value Unit of measure for the weight numerical value What was your birth weight? (lbs oz or Kgs) Pounds;Kilograms;oz Pounds;Kilograms;ounce Alphanumeric

No instructions available

Kemp M, Gunnell D, Maynard M, Smith GD, Frankel S. How accurate is self reported birth weight among the elderly? J Epidemiol Community Health. 2000 Aug;54(8):639.<br /><br />Troy LM, Michels KB, Hunter DJ, Spiegelman D, Manson JE, Colditz GA, Stampfer MJ, Willett WC. Self-reported birthweight and history of having been breastfed among younger women: an assessment of validity. Int J Epidemiol. 1996 Feb;25(1):122-7. Adult Supplemental 3.00 2013-07-25 08:54:08.2 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

2630200
C08108 Preschool attendance indicator PreschoolAttendanceInd Indicator of whether the participant/subject attended preschool as a child Indicator of whether the participant/subject attended preschool as a child As a child, did you attend preschool? Yes;No;Unknown Yes;No;Unknown Alphanumeric

If NO, skip to Developmental Measures

No references available Adult Supplemental 3.00 2013-07-22 09:34:41.527 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C59065 Older full biological sibling count OlderFullBioSiblingCt Count of older full biological siblings the participant/subject has Count of older full biological siblings the participant/subject has How many older siblings do you have? Numeric Values

If you are the first born please enter 0

No references available Adult Supplemental 1.00 2022-07-26 16:24:02.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

0
C01582 Height unit of measure HgtUOM Unit of measure for the height numerical value for participant Unit of measure for the height numerical value for participant When you were in your twenties, what was your height? feet and inches (or meters) meters;feet;Inches meters;feet;Inches Alphanumeric

No instructions available

Habel LA, Van Den Eeden SK, Friedman GD. Body size, age at shaving initiation, and prostate cancer in a large, multiracial cohort. Prostate. 2000 May 1;43(2):136-43. Adult Supplemental 3.10 2024-02-29 15:58:54.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

2538920
C08109 Preschool start date PreschlStrtDate Date participant/subject first started preschool Date (and time if applicable and known) participant/subject first started preschool If YES, in what month and year did you begin and end the first (next) attendance? Date or Date & Time

No instructions available

ISO 8601 - https://www.iso.org/iso-8601-date-and-time-format.html Adult Supplemental 3.00 2013-07-22 09:34:41.527 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

C59066 Twin sibling birth sex assigned type TwinSibBirthSexAssignTyp Sex assigned at birth of participant's/subject's twin sibling Sex assigned at birth of participant's/subject's twin sibling Do you have a twin brother or sister? Brother;Sister Brother;Sister Alphanumeric

No instructions available

Christiansen L, Frederiksen H, Schousboe K, Skytthe A, von Wurmb-Schwark N, Christensen K, Kyvik K. Age- and sex-differences in the validity of questionnaire-based zygosity in twins. Twin Res. 2003 Aug;6(4):275-8. Adult Supplemental 1.00 2022-07-26 16:25:27.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C08076 Breastfed indicator BreastfedInd Indicator of whether the participant/subject was breastfed by his/her mother Indicator of whether the participant/subject was breastfed by his/her mother As far as you know did your mother breastfeed you? Yes;No;Unknown Yes;No;Unknown Alphanumeric

No instructions available

Troy LM, Michels KB, Hunter DJ, Spiegelman D, Manson JE, Colditz GA, Stampfer MJ, Willett WC. Self-reported birthweight and history of having been breastfed among younger women: an assessment of validity. Int J Epidemiol. 1996 Feb;25(1):122-7. Adult Supplemental 3.00 2013-07-22 09:34:41.527 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C08110 Preschool end date PreschlEndDate Date participant/subject ended preschool Date (and time if applicable and known) participant/subject ended preschool If YES, in what month and year did you begin and end the first (next) attendance? Date or Date & Time

No instructions available

ISO 8601 - https://www.iso.org/iso-8601-date-and-time-format.html Adult Supplemental 3.00 2013-07-22 09:34:41.527 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

C59067 Twin pea pod look indicator TwinPeaPodLookInd Indicator of whether the participant/subject and his/her twin look like two peas in a pod Indicator of whether the participant/subject and his/her twin look like two peas in a pod Do you and your twin look like two peas in a pod? No;Yes No;Yes Alphanumeric

No instructions available

Christiansen L, Frederiksen H, Schousboe K, Skytthe A, von Wurmb-Schwark N, Christensen K, Kyvik K. Age- and sex-differences in the validity of questionnaire-based zygosity in twins. Twin Res. 2003 Aug;6(4):275-8. Adult Supplemental 1.00 2022-07-26 16:27:06.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C08078 Full biological sisters count FullBioSistersCt Count of full biological sisters the participant/subject has Count of full biological sisters the participant/subject has How many full sisters do you have? Numeric Values

Please include sisters who are living or deceased, but do not include adopted, foster, half, or step sisters.

No references available Adult Supplemental 4.00 2022-07-27 09:41:24.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

2192217
C08111 Preschool hour per week value PreschoolHourPerWkVal Approximate hours per week the participant/subject attended preschool as a child Approximate hours per week the participant/subject attended preschool as a child About how many hours per week did you attend? Numeric Values

No instructions available

No references available Adult Supplemental 3.10 2022-07-27 10:24:56.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

hour
C59068 Twin difficult tell apart indicator TwinDifficltTellApartInd Indicator of whether the participant/subject and his/her twin are/were difficult for teachers or friends to tell apart Indicator of whether the participant/subject and his/her twin are/were difficult for teachers or friends to tell apart Was it difficult for your teachers and friends to tell you apart? No;Yes No;Yes Alphanumeric

No instructions available

Christiansen L, Frederiksen H, Schousboe K, Skytthe A, von Wurmb-Schwark N, Christensen K, Kyvik K. Age- and sex-differences in the validity of questionnaire-based zygosity in twins. Twin Res. 2003 Aug;6(4):275-8. Adult Supplemental 1.00 2022-07-26 16:29:21.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C08079 Full biological brothers count FullBioBrothersCt Count of full biological brothers the participant/subject has Count of full biological brothers the participant/subject has How many full brothers do you have? Numeric Values

Please include brothers who are living or deceased, but do not include adopted, foster, half, or step brothers.

No references available Adult Supplemental 4.00 2022-07-27 09:42:53.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Free-Form Entry

C08112 Birth weight category BirthWgtCat Categorization of the participant's/subject's birth weight Categorization of the participant's/subject's birth weight If you cannot recall the actual birth weight, would you say your birth weight was Underweight;Average weight;Overweight;Unknown;Below average weight Underweight;Average weight;Overweight;Unknown;Below average weight Alphanumeric

Underweight (10 lbs)

Kemp M, Gunnell D, Maynard M, Smith GD, Frankel S. How accurate is self reported birth weight among the elderly? J Epidemiol Community Health. 2000 Aug;54(8):639.<br /><br />Troy LM, Michels KB, Hunter DJ, Spiegelman D, Manson JE, Colditz GA, Stampfer MJ, Willett WC. Self-reported birthweight and history of having been breastfed among younger women: an assessment of validity. Int J Epidemiol. 1996 Feb;25(1):122-7. Adult Supplemental 3.00 2013-07-22 09:34:41.527 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

C59069 Menarche begin age category MenarcheBeginAgeCat Categorization of the age at which menarche began for the participant/subject Categorization of the age at which menarche began for the participant/subject If you cannot remember the exact age, was it <=11 years;>=14 years;12-13 years <=11 years;>=14 years;12-13 years Alphanumeric

Only answer if exact age cannot be answered

Cooper R, Blell M, Hardy R, Black S, Pollard TM, Wadsworth ME, Pearce MS, Kuh D. Validity of age at menarche self-reported in adulthood. J Epidemiol Community Health. 2006 Nov;60(11):993-7. Erratum in: J Epidemiol Community Health. 2007 Feb;61(2):175. Adult Supplemental 1.00 2022-07-26 16:30:22.0 History of Early Exposure Epidemiology/Environmental History Participant History and Family History

Single Pre-Defined Value Selected

CSV