CDE Detailed Report
Disease: NeuroRehab
Subdomain Name: Dysphagia
CRF: Quality of Life in Swallowing Disorders (SWAL-QOL)
Displaying 51 - 66 of 66
Subdomain Name: Dysphagia
CRF: Quality of Life in Swallowing Disorders (SWAL-QOL)
Displaying 51 - 66 of 66
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Question Text | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guidance) | Subdomain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | External Id Loinc | External Id Snomed | External Id caDSR | External Id CDISC |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C17836 | Quality of Life in Swallowing Disorders (SWAL-QOL) - education level status | SWALQOLEduLevelStatus | Participant's highest education level | Participant's highest education leve | What is the highest year of school or college you have ever completed? | 1;2;3;4;5;6;7;8;9;10;11;12;13;14;15;16;16+;Grade School;High School;College;Post Graduate | 1;2;3;4;5;6;7;8;9;10;11;12;13;14;15;16;16+;Grade School;High School;College;Post Graduate | Alphanumeric |
circle one number |
No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10293 | Quality of Life in Swallowing Disorders (SWAL-QOL) - food liquid dribble out problem indicator | SWALQOLFdLiqDrblOtProbInd | Scale assessing how true the following statement has been for the participant during the last month: Food or liquid dribbling out of your mouth. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject experiences food or liquid dribbling out of mouth, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Food or liquid dribbling out of your mouth | 1;2;3;4;5 | Almost always;Often;Sometimes;Hardly ever;Never | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10304 | Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem depress indicator | SWALQOLSwllwngProbDeprsInd | Scale assessing how true the following statement has been for the participant during the last month: My swallowing problem depresses me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how much swallowing problem depresses the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | My swallowing problem depresses me. | 1;2;3;4;5 | Always true;Often true;Sometimes true;Hardly ever true;Never true | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C18104 | Quality of Life in Swallowing Disorders (SWAL-QOL) - current marital status | SWALQOLCurntMartlStatus | Current marital status of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Current marital status of the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | What is your current marital status/ | 1;2 | 1;2 | Numeric Values | No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-18 09:11:50.26 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10315 | Quality of Life in Swallowing Disorders (SWAL-QOL) - troubling falling asleep indicator | SWALQOLTrblngFllngAslpInd | Scale assessing how true the following statement has been for the participant during the last month: Have trouble falling asleep? As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject has trouble falling asleep, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Have trouble falling asleep? | 1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10283 | Quality of Life in Swallowing Disorders (SWAL-QOL) - choking food problem indicator | SWALQOLChokngFdProbInd | Scale assessing how true the following statement has been for the participant during the last month: Choking when you eat food. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject chokes on food when eating food, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Choking when you eat food | 1;2;3;4;5 | Almost always;Often;Sometimes;Hardly ever;Never | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C17838 | Quality of Life in Swallowing Disorders (SWAL-QOL) - gender type | SWALQOLGenderTyp | Self-reported gender of the subject/participant | Self-reported gender of the subject/participa | Are you | 1;2 | Male;Female | Numeric Values |
circle one |
No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10294 | Quality of Life in Swallowing Disorders (SWAL-QOL) - food liquid fall out nose problem indicator | SWALQOLFdLiqFllOtNsProbInd | Scale assessing how true the following statement has been for the participant during the last month: Food or liquid coming out of your nose. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject experiences food or liquid fall out of nose, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Food or liquid coming out of your nose | 1;2;3;4;5 | Almost always;Often;Sometimes;Hardly ever;Never | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10305 | Quality of Life in Swallowing Disorders (SWAL-QOL) - careful diet annoy problem indicator | SWALQOLCarflAnnyProbInd | Scale assessing how true the following statement has been for the participant during the last month: Having to be so careful when I eat or drink annoys me. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how much having to be careful when eating or drinking annoys the subject, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Having to be so careful when I eat or drink annoys me. | 1;2;3;4;5 | Always true;Often true;Sometimes true;Hardly ever true;Never true | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C18105 | Quality of Life in Swallowing Disorders (SWAL-QOL) - help questionnaire indicator | SWALQOLHlpQuestnnrInd | Indicator of whether subject received help to complete this questionnaire or not, | Indicator of whether subject received help to complete this questionnaire or not, | Did anybody help you complete this questionnaire? | 1;2 | 1;2 | Numeric Values | No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-18 09:11:50.26 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10316 | Quality of Life in Swallowing Disorders (SWAL-QOL) - feeling tired indicator | SWALQOLFlngTrdInd | Scale assessing how true the following statement has been for the participant during the last month: Feel tired? As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject feels tired, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Feel tired? | 1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10284 | Quality of Life in Swallowing Disorders (SWAL-QOL) - choking liquid problem indicator | SWALQOLChockngLiqProbInd | Scale assessing how true the following statement has been for the participant during the last month: Choking when you take liquids. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject chokes on liquid when drinking, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Choking when you take liquids | 1;2;3;4;5 | Almost always;Often;Sometimes;Hardly ever;Never | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C17839 | Quality of Life in Swallowing Disorders (SWAL-QOL) - help method type | SWALQOLHelpMethdTyp | Type of help the subject/participant received filling out the questionnaire | Type of help the subject/participant received filling out the questionnair | If someone helped you fill out this questionnaire, how did that person help you? | 1;2;3 | Read you the questions and/or wrote down the answers you gave;Answered the questions for you;Helped in some other way | Numeric Values |
circle one |
No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10295 | Quality of Life in Swallowing Disorders (SWAL-QOL) - coughing stuck food liquid out mouth problem indicator | SWALQOLCghStkFdLiqOtMthProbInd | Scale assessing how true the following statement has been for the participant during the last month: Coughing food or liquid out of your mouth when it gets stuck. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how often subject feels the need to cough food or liquid out of mouth when it's stuck, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | Coughing food or liquid out of your mouth when it gets stuck | 1;2;3;4;5 | Almost always;Often;Sometimes;Hardly ever;Never | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C10306 | Quality of Life in Swallowing Disorders (SWAL-QOL) - swallowing problem discourage indicator | SWALQOLSwllwngProbDiscrgInd | Scale assessing how true the following statement has been for the participant during the last month: I've been discouraged by my swallowing problem. As part of Quality of Life in Swallowing Disorders (SWAL-QOL) | Indicates how much subject gets discouraged with swallowing problem, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | I've been discouraged by my swallowing problem. | 1;2;3;4;5 | Always true;Often true;Sometimes true;Hardly ever true;Never true | Numeric Values |
Circle one number on each line |
Colleen A. McHorney, PhD, US Outcomes Research, Merck & Co., Inc., 351 North Sumneytown Pike, UG2MW-05, North Wales, PA 19454 | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-22 16:57:17.79 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
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| C18106 | Quality of Life in Swallowing Disorders (SWAL-QOL) - help method indicator | SWALQOLHlpMethdInd | If received help, what type of help did the subject receive, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | If received help, what type of help did the subject receive, as part of the Quality of Life in Swallowing Disorders (SWAL-QOL) | If someone helped you fill out this questionnaire, how did that person help you? | 1;2;3 | 1;2;3 | Numeric Values | No references available | Adult | NeuroRehab Supplemental-Highly Recommended | 3.00 | 2013-07-18 09:11:50.26 | Quality of Life in Swallowing Disorders (SWAL-QOL) | Dysphagia | Outcomes and End Points |
Single Pre-Defined Value Selected |
