CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13178 Stroke Specific Quality of Life Scale (SS-QOL) - writing upper extremity scale

The scale for trouble writing or typing based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14250 Subarachnoid hemorrhage Sylvian fissure lateral part score

SAH Volume Scale (Hijdra) - Sylvian fissure lateral part left score

 Supplemental SAH Grading False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13186 Stroke Specific Quality of Life Scale (SS-QOL) - daily work or productivity scale

The scale for trouble doing daily work around the house based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13233 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness secondary question score

Level of consciousness (LOC) questions assessed using the NIH Stroke Scale (NIHSS)

 Supplemental NIH Stroke Scale (NIHSS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13146 Stroke Specific Quality of Life Scale (SS-QOL) - trouble speaking language scale

The scale for having trouble speaking based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55344 Microdialysis cerebral probe location anatomic site

Free-text field to describe the location of the probe for cerebral microdialysis specimens

 Supplemental Biospecimen Collection and Processing False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13241 National Institutes of Health Stroke Scale (NIHSS) - sensory score

Sensory abilities assessed using the NIH Stroke Scale (NIHSS)

 Supplemental NIH Stroke Scale (NIHSS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13154 Stroke Specific Quality of Life Scale (SS-QOL) - rest mobility scale

The scale for stopping and resting more than usual based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14637 Stroke discharge medication category

Class(es) of medications the participant/ subject was prescribed at hospital discharge following stroke

 Supplemental Discharge Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13885 Imaging vessel angiography arterial result

Indicates vessel imaging angiography arterial findings

 Core Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13851 Arteriovenous malformation anatomic site

Specifies Location of arteriovenous malformation

 Supplemental-Highly Recommended Parenchymal Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14281 Comfort care measure type

Describes the types of comfort care the participant/ subject received

 Supplemental Palliative/Comfort Care and End of Life Issues False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13848 Hydrocephalus present indicator

Indicates if hydrocephalus is present

 Supplemental Neurological Complications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52537 Hospital admission past month type

Whether the hospital readmission was the first or second in the past month

 Supplemental Clinical Presentation False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13140 Stroke Specific Quality of Life Scale (SS-QOL) - tired energy question scale

The scale for feeling tired most of the time based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52699 Sickle cell anemia blood transfusion treatment indicator

The indicator related to whether blood transfusions are used for treatment for sickle cell anemia

 Supplemental Medical History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13872 Imaging perfusion computed tomography based identification perfusion defect correction method type

Indicates PCT based identification of perfusion defect method used for perfusion processing

 Supplemental Perfusion Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13832 Graeb intraventricular hemorrhage (IVH) scale - left lateral ventricle score

Indicates Graeb IVH Scale - Left lateral ventricle score

 Supplemental-Highly Recommended Parenchymal Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14205 Emergency Medical Services (EMS) scene arrival date and time

This refers to the date/time when the Emergency Medical Services (EMS) vehicle arrives on the scene to transport the patient to the hospital

 Supplemental Pre-Hospital/Emergency Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18888 Imaging acquisition reason other text

The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed

 Supplemental-Highly Recommended Perfusion Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13840 Subdural hematoma present indicator

Indicates presence of Subdural hematoma

 Supplemental-Highly Recommended Parenchymal Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13163 Stroke Specific Quality of Life Scale (SS-QOL) - impatient personality scale

The scale for impatience with others based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13171 Stroke Specific Quality of Life Scale (SS-QOL) - hobbies social role scale

The scale for hobbies for shorter periods of time based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13838 Hijdra scale anatomic site

The site for the Hijdra scale assessment (the Hijdra et al. (1990) described a method to grade the amount of blood in the SA space and ventricles on CT)

 Supplemental SAH Grading False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13179 Stroke Specific Quality of Life Scale (SS-QOL) - socks upper extremity scale

The scale for trouble putting socks on based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.