CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C05418 Hospital transport type

Type of transportation from injury scene to hospital

 Supplemental Pre-Hospital/Emergency Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54102 Coagulopathy history current diagnosis type

The element related to a history or current diagnosis type of coagulopathy

 Supplemental Concomitant Diseases False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14704 Berg Balance Scale (BBS) - alternate foot step up scale

The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

 Supplemental Berg Balance Scale (BBS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52588 Stroke volume measurement method type

Type of method used to measure cardiac stroke volume

 Supplemental Vital Signs and Acute Physiological Measurements False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52699 Sickle cell anemia blood transfusion treatment indicator

The indicator related to whether blood transfusions are used for treatment for sickle cell anemia

 Supplemental Medical History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02455 Midline shift supratentorial indicator

Displacement of the supratentorial midline structures, particularly the septum pellucidum, 2 mm or more due to mass effect of a focal traumatic lesion or brain swelling

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C17506 Cardiac MRI result comment text

Free-text field describing the results comments on the cardiac magnetic resonance imaging (MRI) results

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18622 Brief Symptom Inventory-18 (BSI18)- Faintness scale

A scale to indicate how much the participant is distressed by faintness or dizziness

 Supplemental Brief Symptom Inventory-18 (BSI-18) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13187 Stroke Specific Quality of Life Scale (SS-QOL) - finish work or productivity scale

The scale for trouble finishing jobs based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54961 Medication antiplatelet current former take age start value

Age in years at which the subject/participant began taking the selected former or current antiplatelet medication

 Supplemental Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C04807 Vital status

Status of participant/subject as alive or dead

 Supplemental Death False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13234 National Institutes of Health Stroke Scale (NIHSS) - level of consciousness tertiary question score

Level of consciousness (LOC) commands assessed using the NIH Stroke Scale (NIHSS)

 Supplemental NIH Stroke Scale (NIHSS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13147 Stroke Specific Quality of Life Scale (SS-QOL) - trouble phone language scale

The scale for trouble speaking on phone based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01518 Circulation support type

Therapies or procedures the participant/subject received to support circulation

 Supplemental Vital Signs and Blood Gases False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54850 EEG rhythmic periodic pattern lateral prevalence category

Category of prevalence of the lateralized rhythmic or periodic pattern observed on the electroencephalogram (EEG)

 Supplemental Electroencephalography (EEG) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14256 World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale

World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale

 Supplemental SAH Grading False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54936 Hypervolemic therapy volume augmentation specify text

The free-text field related to 'Hypervolemic therapy volume augmentation' for specifying the hypervolemic therapy or volume augmentation being given

 Supplemental ICU Therapies False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14205 Emergency Medical Services (EMS) scene arrival date and time

This refers to the date/time when the Emergency Medical Services (EMS) vehicle arrives on the scene to transport the patient to the hospital

 Supplemental Pre-Hospital/Emergency Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52596 Mean arterial pressure non-invasive method anatomic site

Anatomic site where non-invasive method of measuring mean arterial pressure (MAP) was performed

 Supplemental Vital Signs and Acute Physiological Measurements False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02464 Skull fracture anatomic site

Anatomic site of the skull fracture

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C04504 ECG heart rhythm result type

Type of heart rhythm apparent on the electrocardiogram (ECG/EKG) being reported

 Supplemental Electrocardiogram (ECG) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02421 Diffuse axonal injury status

Status of a widespread distribution of lesions, including the subcortical white matter in more than one lobe or hemisphere, along with lesions in the corpus callosum, and may include the dorsomedial midbrain and other brainstem and cerebellar regions

 Supplemental Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54450 Functional Gait Assessment (FGA) - Gait head turn horizontal task score

Score for the subject/participant's performance on the Gait with Horizontal Head Turns task, as part of the Functional Gait Assessment (FGA)

 Supplemental Functional Gait Assessment False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20964 Frontal Systems Behavior Scale (FrSBE) - Speech only with verbal prompt frequency scale

Frequency of speaking only when spoken to as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 401 - 425 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.