CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54067 Delis-Kaplan Executive Function System (DKEFS) - Error analysis optional type

Optional measures for error analysis, as part of Delis-Kaplan Executive Function System (DKEFS)

Exploratory Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52199 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity Associated Feature Depersonalization Scale

Intensity of the associated feature, depersonalization, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54915 Unruptured intracranial aneurysm management plan initial status

Status of initial management plan for unruptured intracranial aneurysm (UIA)

Exploratory Unruptured Intracranial Aneurysm Management Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52535 Ethnicity pertinent intracranial aneurysm type

Ethnicity type pertinent to unruptured intracranial aneurysms the participant/subject most closely identifies with

Exploratory Demographics Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54439 Aneurysm rerupture after primary treatment date

Date when the aneurysm reruptured after primary treatment was completed

Exploratory Aneurysm Retreatment and Re-rupture Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20529 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category

Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Exploratory EuroQoL-5 Dimension Questionnaire (EQ-5D) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07378 PTSD Checklist Civilian (PCL-C) - Very Upset indicator

Indicator of whether the subject experiences feeling very upset when something reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52210 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity Associated Feature De-realization Scale

Intensity of the associated feature, derealization, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52160 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Difficulty concentrating frequency

Frequency of having difficulty concentrating on what the subject as doing, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07435 Patient Health Questionnaire (PHQ) - Abnormal diet score

Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Exploratory Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20502 Grooved Pegboard Test (GPT) - Dominant hand time T-score

Hand time T-score to determine statistical significance for the hand time and pegs placed/dropped, as part of Grooved Pegboard Test (GPT)

Exploratory Grooved Pegboard Test Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52107 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Trauma-related Time Indicator

Indicator of the time when trauma-related events happen, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C19262 Occupation secondary other status text

The free-text field to capture other status indicating the participant's/subject's current secondary occupational status

Exploratory Social Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52171 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Outside of the body frequency

Frequency of feeling outside of the body, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21477 Rey Auditory Verbal Learning Test (RAVLT) - Correct recall trial A1-5 total count

Total number of words from List A correctly recalled during Trials A1-5 as part of Rey Auditory Verbal Learning Test (RAVLT)

Exploratory Rey Auditory Verbal Learning Test [RAVLT] Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52116 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity QV Text

Intensity QV, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55002 Medication immunosuppressant former take age end value

Age in years at which the subject/participant stopped taking the selected former immunosuppressant medication

Exploratory Concomitant Medications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52879 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A follow trail complete time

The element related to the time it takes the participant/subject to follow the trail in Part A as part of the Trail Making Test (TMT)

Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52127 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Subjective Distress Scale

Scale of subjective distress, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C17409 Visit date

Date of interview or visit (actually the date when data in the form were captured)

Exploratory 12-Item Short Form Health Survey (SF-12) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54767 Imaging aneurysm vorticity mean measurement

Measurement of the mean vorticity of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54969 Birth control method current former use duration

Duration in months for which the subject/participant used the selected current or former birth control method

Exploratory Concomitant Medications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54087 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Completion time raw score

Complete time as a raw score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)

Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52138 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Serious Injury Indicator

Indicator of serious injury, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52345 12-item Short Form Health Survey Version 2 (SF-12v2) - Times energy scale

Scale of times having a lot of energy during the past 4 weeks as part of version 2.0 of 12-item Short Form Health Survey (SF-12)

Exploratory 12-Item Short Form Health Survey (SF-12) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.