CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2347-C52547	C52547	Brain aneurysm unruptured measurement	The size (diameter in mm) of the unruptured brain aneurysm(s)	Supplemental	Aneurysm History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2430-C52544	C52544	Brain aneurysm unruptured number	Number of unruptured brain aneurysms the participant/usbject has	Supplemental-Highly Recommended	Radiological Findings	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2347-C52544	C52544	Brain aneurysm unruptured number	Number of unruptured brain aneurysms the participant/usbject has	Supplemental	Aneurysm History	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02402	C02402	Brain atrophy encephalomalacia anatomic site	Anatomic site of the brain atrophy/encephalomalacia	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02401	C02401	Brain atrophy encephalomalacia result	Result of assessment of brain atrophy or encephalomalacia, defined as loss of tissue volume over time due to cell death or shrinkage.	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02425	C02425	Brain edema anatomic site	Anatomic site of the brain edema	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02423	C02423	Brain edema extent type	Extent of the brain edema	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02422	C02422	Brain edema finding type	Further describes the brain edema	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02424	C02424	Brain edema status	Status of an abnormal accumulation of water in the intracellular and/or extracellular spaces of the brain	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02504	C02504	Brain edema volume measurement	Measured volume in cubic centimeters of the brain edema	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2349-C52577	C52577	Brain oxygen partial pressure highest 5 minute average value	Value of highest 5-minute average partial pressure of oxygen in brain tissue	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2349-C52578	C52578	Brain oxygen partial pressure lowest 5 minute average value	Value of lowest 5-minute average partial pressure of oxygen in brain tissue	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2349-C52579	C52579	Brain oxygen partial pressure mean daily value	Value of daily mean partial pressure of oxygen in brain tissue	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2349-C52580	C52580	Brain oxygen partial pressure measurement anatomical site	Anatomic site of measurement of partial pressure of oxygen in brain tissue	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02405	C02405	Brain swelling anatomic site	Anatomic site of the brain swelling	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02403	C02403	Brain swelling extent type	Extent of the brain swelling	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02404	C02404	Brain swelling status	Status of brain swelling in participant/subject	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02400	C02400	Brain volumetric analysis measurement	Measured brain volume in cubic centimeters	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2443-C18645	C18645	Brief Symptom Inventory-18 (BSI18)- Anxiety normalized T score	Normalized T score for anxiety symptom scale	Supplemental	Brief Symptom Inventory-18 (BSI-18)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2443-C18644	C18644	Brief Symptom Inventory-18 (BSI18)- Anxiety raw score	Raw score for anxiety symptom scale	Supplemental	Brief Symptom Inventory-18 (BSI-18)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2443-C18625	C18625	Brief Symptom Inventory-18 (BSI18)- Chest pains scale	The scale for the participant's distress by pains in heart or chest	Supplemental	Brief Symptom Inventory-18 (BSI-18)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2443-C18643	C18643	Brief Symptom Inventory-18 (BSI18)- Depression normalized T score	Normalized T score for depression symptom scale	Supplemental	Brief Symptom Inventory-18 (BSI-18)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2443-C18642	C18642	Brief Symptom Inventory-18 (BSI18)- Depression raw score	Raw score for depression symptom scale	Supplemental	Brief Symptom Inventory-18 (BSI-18)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2443-C18622	C18622	Brief Symptom Inventory-18 (BSI18)- Faintness scale	A scale to indicate how much the participant is distressed by faintness or dizziness	Supplemental	Brief Symptom Inventory-18 (BSI-18)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2443-C18639	C18639	Brief Symptom Inventory-18 (BSI18)- Fearful scale	The scale for the participant's distress from feeling fearful	Supplemental	Brief Symptom Inventory-18 (BSI-18)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.