CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 201 - 225 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02481 Subdural hematoma mixed density or CSF-like collection anatomic site

Anatomic site of the subdural hematoma mixed density subdural or CSF-like collection

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14280 Comfort care earliest documentation timepoint type

Timepoint of the earliest documentation of comfort measures only

Supplemental Palliative/Comfort Care and End of Life Issues Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52567 Elapsed time unit of measure

Unit of measure for the elapsed-time value captured by another data element

Supplemental Vital Signs and Acute Physiological Measurements Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52605 Medical history carotid artery stenting anatomic site

The element related to the location of carotid artery stenting the participant/subject has had

Supplemental Medical History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02437 Imaging modality type

Type of radiologic study performed on the participant

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54466 Dynamic Gait Index (DGI) - Gait task stair score

Score for the subject/participant's performance walking up stairs for the Steps task, as part of the Dynamic Gait Index (DGI)

Supplemental Functional Gait Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21005 Frontal Systems Behavior Scale (FrSBE) - Lack emotion concern frequency scale

Frequency of showing little emotion, is unconcerned and unresponsive as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07096 Center for Epidemiologic Studies-Depression Scale (CES-D) - depressed indicator

Indicates how often the subject felt depressed in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13171 Stroke Specific Quality of Life Scale (SS-QOL) - hobbies social role scale

The scale for hobbies for shorter periods of time based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54874 EEG intracranial pressure greater 20 millimeter mercury record duration

Duration in minutes of the electroencephalogram (EEG) recording for which the subject/participant's intracranial pressure (ICP) was greater than 20 millimeters of mercury (mmHg)

Supplemental Electroencephalography (EEG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54922 Unruptured intracranial aneurysm treatment management score

Score in favor of management on the unruptured intracranial aneurysm (UIA) treatment score model

Supplemental Unruptured Intracranial Aneurysm Management Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01576 Intracranial pressure episode greater 20 mmHg longer 5 minutes count

Count of episodes where the participant's/subject's intracranial pressure was greater than 20 mmHg lasting for longer than five minutes

Supplemental Intracranial Pressure (ICP) Monitoring Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54810 qEEG ischemia detection type

Type of method by which ischemia was detected on the quantitative electroencephalogram (qEEG)

Supplemental Electroencephalography (EEG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13835 Graeb intraventricular hemorrhage (IVH) scale - total score

Indicates Graeb IVH Scale - total Score

Supplemental SAH Grading Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14517 Device manufacturer name

The company responsible for development of the device

Supplemental Biospecimen Collection and Processing Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01539 Temperature measurement

Measurement of the participant's/subject's body temperature

Supplemental Pre-Hospital/Emergency Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53720 Speech disturbance global assessment other text

The free-text field related to other result of assessment of condition and ability of speech disturbance

Supplemental Baseline Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14696 Berg Balance Scale (BBS) - stand sit scale

The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52577 Brain oxygen partial pressure highest 5 minute average value

Value of highest 5-minute average partial pressure of oxygen in brain tissue

Supplemental Vital Signs and Acute Physiological Measurements Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52624 Hypertension first diagnosed age value

Free-text field related to the age hypertension was first diagnosed

Supplemental Medical History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02446 Intraventricular hemorrhage status

Indicator of acute-appearing blood within the ventricles

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12852 Cardiac MRI atrium area measurement

Measurement of the area of the selected atrium as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21020 Frontal Systems Behavior Scale (FrSBE) - Food lack smell taste complaint frequency scale

Frequency of complaining that food has no taste or smell as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07104 Center for Epidemiologic Studies-Depression Scale (CES-D) - loneliness indicator

Indicates how often the subject felt lonely in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02403 Brain swelling extent type

Extent of the brain swelling

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.