CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1776
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13170 Stroke Specific Quality of Life Scale (SS-QOL) - go out social role scale

The scale for not going out as often based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13156 Stroke Specific Quality of Life Scale (SS-QOL) - getting out of chair mobility scale

The scale for trouble getting out of a chair based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13157 Stroke Specific Quality of Life Scale (SS-QOL) - future mood scale

The scale for being discouraged about future based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13172 Stroke Specific Quality of Life Scale (SS-QOL) - friends social role Scale

The scale for not seeing as many friends based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13165 Stroke Specific Quality of Life Scale (SS-QOL) - food self care scale

The scale for needing help to prepare food based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13161 Stroke Specific Quality of Life Scale (SS-QOL) - food mood scale

The scale for lack of interest in food based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13187 Stroke Specific Quality of Life Scale (SS-QOL) - finish work or productivity scale

The scale for trouble finishing jobs based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13166 Stroke Specific Quality of Life Scale (SS-QOL) - eating self care scale

The scale for needing help eating based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13167 Stroke Specific Quality of Life Scale (SS-QOL) - dressing self care scale

The scale for needing help for getting dressed on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13186 Stroke Specific Quality of Life Scale (SS-QOL) - daily work or productivity scale

The scale for trouble doing daily work around the house based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13160 Stroke Specific Quality of Life Scale (SS-QOL) - confidence mood question scale

The scale for lacking confidence based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13175 Stroke Specific Quality of Life Scale (SS-QOL) - concentration thinking question scale

The scale for being hard to concentrate based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13153 Stroke Specific Quality of Life Scale (SS-QOL) - climbing mobility question scale

The scale for trouble climbing stairs based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13164 Stroke Specific Quality of Life Scale (SS-QOL) - change personality scale

The scale for personality change on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13180 Stroke Specific Quality of Life Scale (SS-QOL) - buttoning upper extremity scale

The scale for trouble buttoning buttons based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13144 Stroke Specific Quality of Life Scale (SS-QOL) - burden family roles scale

The scale for feeling burden to family based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13168 Stroke Specific Quality of Life Scale (SS-QOL) - bathing self care scale

The scale for needing help to take bath or shower based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13152 Stroke Specific Quality of Life Scale (SS-QOL) - balance mobility scale

The scale for losing balance when bending over to reach for something based on Stroke Specific Quality of Life Scale (SS-QOL)

 Supplemental Stroke Specific Quality of Life Scale (SS-QOL) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14637 Stroke discharge medication category

Class(es) of medications the participant/ subject was prescribed at hospital discharge following stroke

 Supplemental Discharge Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54989 Stimulant former use age end value

Age in years at which the subject/participant stopped taking the selected former stimulant

 Supplemental Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54985 Stimulant current former use type

Type of stimulant formerly or currently taken by the subject/participant

 Supplemental Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54986 Stimulant current former use other text

The free-text field related to 'Stimulant current former use type' specifying other text

 Supplemental Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54987 Stimulant current former use duration

Duration in months for which the subject/participant took or has taken the selected former or current stimulant

 Supplemental Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54988 Stimulant current former use age start value

Age in years at which the subject/participant began taking the selected former or current stimulant

 Supplemental Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10559 Spontaneous miscarriage count

Value representing the number of times the participant/subject has had miscarriages or spontaneous abortions, including all trimesters

 Exploratory Pregnancy and Perinatal History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.