CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 1676 - 1700 of 1776

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2445-C54718	C54718	Death post subarachnoid hemorrhage neurological cause indicator	Indicator of whether death resulted from a neurological cause following subarachnoid hemorrhage (SAH)	Supplemental	Death	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2430-C54732	C54732	Parent artery proximal aneurysm diameter measurement	Diameter of the parent artery proximal to the aneurysm being described	Supplemental	Radiological Findings	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2438-C13235	C13235	National Institutes of Health Stroke Scale (NIHSS) - Best gaze score	Best gaze assessed using the NIH Stroke Scale (NIHSS)	Supplemental	NIH Stroke Scale (NIHSS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13148	C13148	Stroke Specific Quality of Life Scale (SS-QOL) - trouble communication language scale	The scale for people having trouble in understanding what person is saying based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2377-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	Vital Signs and Blood Gases	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2432-C54851	C54851	EEG rhythmic periodic pattern lateral prevalence percent value	Percent value of the electroencephalogram (EEG) record that includes the lateralized rhythmic or periodic pattern	Supplemental	Electroencephalography (EEG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2362-C04804	C04804	Hospital discharge date and time	Date (and time, if applicable and known) the participant/subject was discharged from the hospital	Supplemental	Discharge Status	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2435-C54937	C54937	Hypervolemic therapy volume augmentation range	Range of hypervolemic therapy/volume augmentation	Supplemental	ICU Therapies	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2341-C14206	C14206	Emergency Medical Services (EMS) scene departure date and time	Date and time the EMS vehicle departs with the patient from the scene to take the patient to the hospital	Supplemental	Pre-Hospital/Emergency Status	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2373-C54111	C54111	Aortic coarctation history current diagnosis indicator	The indicator related to a history or current diagnosis of aortic coarctation	Supplemental	Concomitant Diseases	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2349-C52606	C52606	Ventilator mode status	Status reflecting the ventilator's operational mode	Supplemental	Vital Signs and Acute Physiological Measurements	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02465	C02465	Skull fracture morphology findings type	Findings related to morphology of the skull fracture	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1177-C04505	C04505	ECG left ventricular hypertrophy status	Status of left ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02422	C02422	Brain edema finding type	Further describes the brain edema	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2480-C54451	C54451	Dynamic Gait Index (DGI) - Gait head turn horizontal task score	Score for the subject/participant's performance on the Gait with Horizontal Head Turns task, as part of the Dynamic Gait Index (DGI)	Supplemental	Functional Gait Assessment	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2453-C20967	C20967	Frontal Systems Behavior Scale (FrSBE) - Action speech embarassment frequency scale	Frequency of doing or saying embarrassing things as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale	Supplemental	Frontal Systems Behavioral Scale (FrSBe)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2438-C13243	C13243	National Institutes of Health Stroke Scale (NIHSS) - dysarthria score	Dysarthria assessed using the NIH Stroke Scale (NIHSS)	Supplemental	NIH Stroke Scale (NIHSS)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2478-C13156	C13156	Stroke Specific Quality of Life Scale (SS-QOL) - getting out of chair mobility scale	The scale for trouble getting out of a chair based on Stroke Specific Quality of Life Scale (SS-QOL)	Supplemental	Stroke Specific Quality of Life Scale (SS-QOL)	True	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2377-C01557	C01557	Respiratory support type	Type of respiratory support participant/subject received	Supplemental	Vital Signs and Blood Gases	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2432-C54859	C54859	EEG rhythmic periodic pattern bilateral independent frequency value	Value in cycles per second of the frequency of the bilateral independent rhythmic or periodic pattern observed on the electroencephalogram (EEG)	Supplemental	Electroencephalography (EEG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2342-C00704	C00704	Alcohol drinking day average drinks consumed range	The counted number of drinks containing alcohol consumed by the participant/subject on a typical day when he/she is drinking. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental-Highly Recommended	Risk Factors	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2384-C02469	C02469	Subarachnoid hemorrhage indicator	Indicator of macroscopic blood located between the brain surface and the arachnoid membrane. On CT and MR, the blood in this location will follow the contour of the sulci and cisterns. Acute SAH is hyperdense on CT and hyperintense on FLAIR MR imaging	Supplemental-Highly Recommended	Parenchymal Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2431-C54675	C54675	Imaging aneurysm anatomic site	Anatomic site of aneurysm scanned scanned in the imaging study	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2342-C52529	C52529	Family history unruptured intracranial aneurysm subarachnoid hemorrhage indicator	Indicator for whether the participant/subject has a family history of unruptured intracranial aneurysm or subarachnoid hemorrhage	Supplemental-Highly Recommended	Risk Factors	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2815-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental-Highly Recommended	Perfusion Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

Displaying 1676 - 1700 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.