CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 151 - 175 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14255 Subarachnoid hemorrhage volume total measurement

Subarachnoid hemorrhage (SAH) volume scale (Hijdra) - total amount of subarachnoid blood. Sum of the scores of the 10 basal cisterns and fissures

Supplemental SAH Grading Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12843 Cardiac MRI ventricle end systolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02472 Subdural hematoma acute status

Status of a collection of acute blood between the arachnoid and the dura, typically (though not always) hyperdense with a crescent shape on CT. Mixed density may be seen if the collection contains unclotted blood, CSF admixture, and/or active extravasation. On MRI, the acute SDH is iso/hypointense on T1 and very hypointense on T2, GRE, and SW-imaging. Note: Please see additional categories below for subacute, chronic, and mixed collections if these better describe the lesion, or if the chronicity/timing is uncertain

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14204 Emergency Medical Services (EMS) vehicle type

This refers to the Emergency Medical Services (EMS) vehicle that is used to transport the patient to the hospital. Choose one response

Supplemental Pre-Hospital/Emergency Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52595 Mean arterial pressure invasive method anatomic site

Anatomic site where invasive method of measuring mean arterial pressure (MAP) was performed

Supplemental Vital Signs and Acute Physiological Measurements Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10735 Echocardiogram left ventricular hypertrophy status

Status of left ventricular hypertrophy on the echocardiogram

Supplemental Echocardiogram Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02428 Epidural hematoma anatomic site

Anatomic site of the epidural hematoma

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54449 Dynamic Gait Index (DGI) - Gait speed change task score

Score for the change in gait speed task, as part of the Dynamic Gait Index (DGI)

Supplemental Functional Gait Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52709 Menopause begin age value

The age at which menopause began for the participant/subject

Supplemental Demographics - Unruptured Intracranial Aneurysms Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13241 National Institutes of Health Stroke Scale (NIHSS) - sensory score

Sensory abilities assessed using the NIH Stroke Scale (NIHSS)

Supplemental NIH Stroke Scale (NIHSS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13154 Stroke Specific Quality of Life Scale (SS-QOL) - rest mobility scale

The scale for stopping and resting more than usual based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01551 Respiration type

Type of respiration.

Supplemental Vital Signs and Blood Gases Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54857 EEG rhythmic periodic pattern bilateral independent prevalence category

Category of prevalence of the bilateral independent rhythmic or periodic pattern observed on the electroencephalogram (EEG)

Supplemental Electroencephalography (EEG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18687 ICU discharge destination other text

The free-text field related to 'ICU discharge destination type' specifying other text. Type of destination on completion of stabilization/evaluation in the intensive care unit (ICU) of the hospital

Supplemental Discharge Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C08518 36-item Short Form Health Survey (SF-36) - Less accomplished emotional problems indicator

Indicator for surveyee-reported less accomplishment as a result of emotional problems during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54892 Aneurysm treatment surgical type

Type of surgery performed to treat aneurysm

Supplemental Surgical/Procedural Interventions Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21069 Frontal Systems Behavior Scale (FrSBE) - Apathy subscale raw score

Raw score for Apathy subscale as part of Frontal Systems Behavior Scale (FrSBE)

Supplemental Frontal Systems Behavioral Scale (FrSBe) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18636 Brief Symptom Inventory-18 (BSI18)- Restless scale

The scale for the participant's distress from feeling so restless they couldn't sit still

Supplemental Brief Symptom Inventory-18 (BSI-18) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14542 Systemic vascular resistance unit of measure

Units used to measure the systemic vascular resistance

Supplemental Vital Signs and Acute Physiological Measurements Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12868 Echocardiogram left ventricular trabeculation ratio indicator

Indicator of whether any of the trabeculations are more than 2:1 ratio, trabecular layer to compact layer as assessed by echocardiography

Supplemental Echocardiogram II Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14702 Berg Balance Scale (BBS) - turn head scale

The scale for assessment of turning to look behind over left and right shoulders while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental Berg Balance Scale (BBS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52598 Medical history ischemic stroke recency rate

The element related to the recency of ischemic strokes the participant/subject has had

Supplemental Medical History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14466 Sensory system global assessment result

The condition and ability of sensory system

Supplemental Neurological Exam Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52539 Family history subarachnoid hemorrhage indicator

Indicator for whether the participant/subject has a family history of subarachnoid hemorrhage

Supplemental Aneurysm History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18408 Blood gases pressure unit of measure

Unit of measure for the pressure of blood gases (i.e. O2 , CO2) in the blood stream (i.e. arterial, venous)

Supplemental Vital Signs and Blood Gases Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.