CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C02452 Ischemia infarction hypoxic-ischemic injury anatomic site

Anatomic site of the ischemia/infarction/hypoxic-ischemic injury

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12859 Cardiac MRI other cardiac anatomy structure result status

Status of the result of evaluation of the structure of the selected other cardiac anatomy as observed on the cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21035 Frontal Systems Behavior Scale (FrSBE) - Memory strategy use frequency scale

Frequency of using strategies to remember important things (for example, writes notes to self) as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07109 Center for Epidemiologic Studies-Depression Scale (CES-D) - people dislike indicator

Indicates how often the subject felt that people dislike the subject in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)

Supplemental Center for Epidemiologic Studies-Depression Scale (CES-D) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02408 Cervicomedullary junction or brainstem injury anatomic site

Anatomic site of the cervicomedullary junction/ brainstem injury

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13184 Stroke Specific Quality of Life Scale (SS-QOL) - primary energy scale

The scale for trouble reaching things because of poor eyesight based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54958 Medication antiplatelet current former type

Type of antiplatelet medicaton formerly or currently taken by the subject/participant

Supplemental Concomitant Medications Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental NIH Stroke Scale (NIHSS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13144 Stroke Specific Quality of Life Scale (SS-QOL) - burden family roles scale

The scale for feeling burden to family based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01502 Blood pressure diastolic mean daily measurement

Mean measurement of the participant's/subject's diastolic blood pressure over a 24-hour period

Supplemental Vital Signs and Blood Gases Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54847 EEG superimpose activity wave spike type

Type(s) of activity, waves, or spikes superimposed onto generalized rhythmic or period patterns on the electroencephalogram (EEG)

Supplemental Electroencephalography (EEG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14253 Subarachnoid hemorrhage ambient cistern score

SAH Volume Scale (Hijdra) - Ambient cistern left score

Supplemental SAH Grading Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13518 Upper limb tone findings result

Assess tone of upper limbs on the affected side using the Orgogozo Stroke Scale

Supplemental Pre-Hospital/Emergency Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52593 Arterial pressure low measurement

Lowest measurement of the participant/subject's arterial pressure

Supplemental Vital Signs and Acute Physiological Measurements Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52706 Mitochondrial encephalomyopathy lactic acidosis stroke like episodes indicator

The indicator related to whether the participant/subject has or had mitochondrial encephalomyopathy, lactic acidosis and stroke-like episodes (MELAS)

Supplemental Medical History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02460 Penetrating injury brain anatomic site

Anatomic site of the penetrating injury

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C04501 ECG assessment date and time

Date (and time, if applicable and known) the electrocardiogram (ECG/EKG) was administered

Supplemental Electrocardiogram (ECG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02416 Contusion volume measurement

Measured volume in cubic centimeters of contusion (calculated from length, width, maximal thickness). Measurements should include all areas of contiguous abnormality not related to a separate lesion

Supplemental Imaging Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54447 Functional Gait Assessment (FGA) - Gait level surface task duration

Time taken by the subject/participant to ambulate 20 feet for the level-surface gait task, as part of the Functional Gait Assessment (FGA)

Supplemental Functional Gait Assessment Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13239 National Institutes of Health Stroke Scale (NIHSS) - Motor leg score

Motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS)

Supplemental NIH Stroke Scale (NIHSS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13152 Stroke Specific Quality of Life Scale (SS-QOL) - balance mobility scale

The scale for losing balance when bending over to reach for something based on Stroke Specific Quality of Life Scale (SS-QOL)

Supplemental Stroke Specific Quality of Life Scale (SS-QOL) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01534 Oxygen saturation minimum daily value

Lowest measurement of the participant's/subject's oxygen saturation over the 24-hour period

Supplemental Vital Signs and Blood Gases Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54855 EEG rhythmic periodic pattern bilateral independent category

Category(ies) of bilateral independent rhythmic or periodic patterns observed on the electroencephalogram (EEG)

Supplemental Electroencephalography (EEG) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C04809 Hospital discharge destination type

Type of destination on completion of stabilization/evaluation in hospital

Supplemental Discharge Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55329 Specimen storage barcode system used indicator

The indicator related to whether a specimen storage barcode system was used

Supplemental Biospecimen Collection and Processing Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.