CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1776
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C53690 Subarachnoid hemorrhag clinical deterioration occur date

The date clinical deterioration occurred afer subarachnoid hemorrhage

 Supplemental Neurological Complications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54772 Imaging aneurysm wall shear stress minimum measurement

Measurement of the minimum wall shear stress of the aneurysm, as computed from imaging

 Supplemental Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18635 Brief Symptom Inventory-18 (BSI18)- Hopeless scale

The scale for the participant's distress from feeling hopeless about the future

 Supplemental Brief Symptom Inventory-18 (BSI-18) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10874 Holter exam maximum heart rate

Maximum heart rate measured during the Holter examination

 Supplemental Holter Exam False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14541 Systemic vascular resistance measurement

A measurement of the arteriolar constriction throughout the body

 Supplemental Vital Signs and Acute Physiological Measurements False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12867 Echocardiogram left ventricular trabeculation status

Status of trabeculations in the left ventricle on the echocardiogram

 Supplemental Echocardiogram II False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52597 Medical history ischemic stroke range

The element related to the number of ischemic strokes the participant/subject has had

 Supplemental Medical History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14463 Reflex plantar left response result

The results from reflex plantar response on the left side

 Supplemental Neurological Exam False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18409 Glasgow Outcome date and time

Date and Time of Glasgow Outcome Scale

 Supplemental Glasgow Outcome Scale (GOS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52538 History subarachnoid hemorrhage indicator

Indicator for whether the participant/subject has a history of subarachnoid hemorrhage

 Supplemental Aneurysm History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

 Supplemental Vital Signs and Blood Gases False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18670 Subscribed drug or substance illicitly used category other text

The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

 Supplemental Behavioral History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00026 Language spoken Fluent text

Text for each language that the participant/subject speaks fluently

 Supplemental Neurological Exam False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C08525 36-item Short Form Health Survey (SF-36) - Times down score

Score of times feeling so down in the dumps that nothing could cheer up during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54899 Blood transfusion surgery procedure indicator

Indicator of whether blood transfusion was performed during surgery or procedure

 Supplemental Surgical/Procedural Interventions False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21084 Frontal Systems Behavior Scale (FrSBE) - Total T score

T score for all scales as part of Frontal Systems Behavior Scale (FrSBE)

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C01574 Intracranial pressure maximum daily measurement

Highest measurement of the participant's/ subject's intracranial pressure (ICP) over the 24-hour period

 Supplemental Electroencephalography (EEG) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18643 Brief Symptom Inventory-18 (BSI18)- Depression normalized T score

Normalized T score for depression symptom scale

 Supplemental Brief Symptom Inventory-18 (BSI-18) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12837 Cardiac MRI ventricle systolic function result status

Status of the result of the cardiac magnetic resonance imaging (MRI) evaluation of the selected ventricle's systolic function

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C12875 Echocardiogram mitral valve prolapse indicator

Indicator of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve as assessed by echocardiography

 Supplemental Echocardiogram II False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54982 Medication anticoagulant current former take duration

Duration in months for which the subject/participant took or has taken the selected former or current anticoagulant medication

 Supplemental Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18514 Sensory system abnormality participant description text

The free-text field to capture the participant's description of the sensory abnormality

 Supplemental Neurological Exam False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C10730 Echocardiogram right ventricular diastolic wall thickness measurement

Right ventricular wall thickness in diastole (RVWTd) measured with echocardiography

 Supplemental Echocardiogram False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52546 Brain aneurysm anatomic site other text

Free-text field to specify location of unruptured brain aneurysm(s)

 Supplemental Aneurysm History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.