CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1775
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C07430 Patient Health Questionnaire (PHQ) - Little interest score

Score of how much the subject has been bothered by having little interest or pleasure in doing things in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 Exploratory Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54775 Imaging aneurysm oscillatory shear stress mean value

Value of the mean oscillatory shear stress of the aneurysm, as determined from imaging

 Exploratory Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52210 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity Associated Feature De-realization Scale

Intensity of the associated feature, derealization, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54113 Gingival disease tooth decay history current diagnosis indicator

The indicator related to a history or current diagnosis of gingival disease or tooth decay

 Exploratory Concomitant Diseases False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54089 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Contrast scaled score

Contrast scaled score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07439 Patient Health Questionnaire (PHQ) - Better dead thought score

Score of how much the subject has been suffering with the thoughts of that he/she would be better off dead to hurt, as part of the Patient Health Questionnaire (PHQ)

 Exploratory Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52224 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Desired Number of Hours Sleep/night

Desired number of hours sleep per night, PTSD symptoms, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54973 Non-steroidal anti-inflammatory drug current former take duration

Duration in months for which the subject/participant took or has taken the specified non-steroidal anti-inflammatory drug (NSAID)

 Exploratory Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21481 Rey Auditory Verbal Learning Test (RAVLT) - Word list B type

The type as related to word used as part of List B in the Rey Auditory Verbal Learning Test (RAVLT)

 Exploratory Rey Auditory Verbal Learning Test [RAVLT] True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C08504 36-item Short Form Health Survey (SF-36) - Health limited moderate activities score

Score of surveyee-reported limited moderate activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Exploratory 12-Item Short Form Health Survey (SF-12) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54056 D-KEFS Color-Word Interference Test (CWIT) -Condition 2 Scaled Score

Scaled score of word reading, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

 Exploratory Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55993 Regular aerobic exercise days week number

Number of days per typical week that the participant/subject engages in aerobic exercises

 Exploratory Behavioral History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C11065 Gravida maternal value

Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term

 Exploratory Pregnancy and Perinatal History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52127 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Subjective Distress Scale

Scale of subjective distress, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21852 Beck Anxiety Inventory (BAI) - Numbness bother scale

Scale that represents how much the participant has been bothered by numbness as part of the Beck Anxiety Inventory (BAI)

 Exploratory Beck Anxiety Inventory (BAI) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52535 Ethnicity pertinent intracranial aneurysm type

Ethnicity type pertinent to unruptured intracranial aneurysms the participant/subject most closely identifies with

 Exploratory Demographics False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54064 D-KEFS Color-Word Interference Test (CWIT) -Difference Scaled Score

Scaled-score difference, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

 Exploratory Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00206 Family income supported persons count

Count of all people, including the participant/subject, who are supported by the household gross annual income reported

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52138 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Serious Injury Indicator

Indicator of serious injury, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21868 Beck Anxiety Inventory (BAI) - Wobbliness bother scale

Scale that represents how much the participant has been bothered by wobbliness in the legs as part of the Beck Anxiety Inventory (BAI)

 Exploratory Beck Anxiety Inventory (BAI) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07375 PTSD Checklist Civilian (PCL-C) - Memories indicator

Indicator of whether the subject experiences repeated, disturbing memories, thoughts, or images of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C19262 Occupation secondary other status text

The free-text field to capture other status indicating the participant's/subject's current secondary occupational status

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52621 Medical history artificial valve type

The element related to the type of artificial valve

 Exploratory Medical History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52147 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Avoid activities places people frequency

Frequency of avoiding certain activities, places or people that the subject was reminded of, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C07383 PTSD Checklist Civilian (PCL-C) - Loss interest indicator

Indicator of whether the subject experiences loss of interest in activities that you used to enjoy, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1775

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.