CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54754 Specimen collection tube other text

The free-text field related to other tube for specimen collection

Core Biospecimen Collection and Processing Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13885 Imaging vessel angiography arterial result

Indicates vessel imaging angiography arterial findings

Core Vessel Imaging Angiography Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00035 Gender type

Self-reported gender of the participant/subject

Core Demographics Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core Medical History Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54747 Specimen acquisition anatomical site

The anatomical site related to the site of blood, serum or plasma samples

Core Biospecimen Collection and Processing Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54726 Aneurysm height measurement

Measurement of the height of the aneurysm being described

Core Radiological Findings Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55003 Specimen centrifugation revolutions per minute value

The value related to revoluntions per minute in a centrifuge

Core Biospecimen Collection and Processing Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54741 Aneurysm morphology type

Type of morphology exhibited by the aneurysm being documented

Core Radiological Findings Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21826 Beck Anxiety Inventory (BAI) - Feel faint lightheaded bother scale

Scale that represents how much the participant has been bothered by feeling faint/ lightheaded as part of the Beck Anxiety Inventory (BAI)

Exploratory Beck Anxiety Inventory (BAI) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54054 D-KEFS Color-Word Interference Test (CWIT) -Condition 1 Scaled Score

Scaled score of color naming, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Exploratory Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52181 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - PTSD Criterion F Indicator

Indicator of whether or not PTSD criterion F is met (distress/impairment), as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54114 Intracranial atherosclerotic disease history current diagnosis indicator

The indicator related to a history or current diagnosis of intracranial atherosclerotic disease

Exploratory Concomitant Diseases Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21850 Beck Anxiety Inventory (BAI) - Indigestion bother scale

Scale that represents how much the participant has been bothered by indigestion as part of the Beck Anxiety Inventory (BAI)

Exploratory Beck Anxiety Inventory (BAI) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54062 D-KEFS Color-Word Interference Test (CWIT) -Sum of Scaled Scores

Sum of scaled scores of Color Naming and Word Reading, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Exploratory Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00207 Marital or partner status

Status of participant/subject's current domestic relationship, whether marital or partnered

Exploratory Social Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52191 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Intensity C7 Scale

Scale of the intensity of the event C-7, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54122 Hyperlipidemia history current diagnosis indicator

The indicator related to a history or current diagnosis of hyperlipidemia

Exploratory Concomitant Diseases Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21864 Beck Anxiety Inventory (BAI) - Unable relax bother scale

Scale that represents how much the participant has been bothered by unable to relax as part of the Beck Anxiety Inventory (BAI)

Exploratory Beck Anxiety Inventory (BAI) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54070 Delis-Kaplan Executive Function System (DKEFS) - Error total raw score

Total raw score calculated as the sum of raw scores of Sequencing Errors, Set-Loss Errors and Time-Discontinue Errors in Condition 4 (Number-Letter Switching), as part of Delis-Kaplan Executive Function System (DKEFS)

Exploratory Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C19482 Paid work hour week count

The number of hours per week in paid work

Exploratory Social Status Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52203 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Unwanted memories frequency

Frequency of having unwanted memories of the event, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

Exploratory Clinician-Administered PTSD Scale (CAPS) Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54918 Unruptured intracranial aneurysm management compliance indicator

Indicator of whether the subject/participant is complying with advice for the management of his or her unruptured intracranial aneurysm (UIA)

Exploratory Unruptured Intracranial Aneurysm Management Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54442 Aneurysm retreatment type

Type of aneurysm retreatment

Exploratory Aneurysm Retreatment and Re-rupture Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.