CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 1776
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54751 Cerebrospinal fluid collection anatomic site

The anatomic site related to collection of cerebrospinal fluid (CSF)

 Core Biospecimen Collection and Processing False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55007 Biospecimen collection other text

The free-text field related to other type of biospecimen collection

 Core Biospecimen Collection and Processing False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core General Core False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core Demographics False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00710 Tobacco current use indicator

Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time

 Core Risk Factors False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00710 Tobacco current use indicator

Indicator for whether the participant/subject regularly uses tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe) at the present time

 Core Behavioral History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54752 Cerebrospinal fluid collection anatomic site other text

The free-text field related to other anatomic site related to collection of cerebrospinal fluid (CSF)

 Core Biospecimen Collection and Processing False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55008 Biospecimen collection type

The type related to biospecimen collection

 Core Biospecimen Collection and Processing False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core Demographics False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

 Core Risk Factors False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14256 World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale

World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale

 Core Clinical Presentation False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00312 Body system category

Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems

 Core Medical History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core Medical History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

 Core Behavioral History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54743 Specimen biologic source type

The type of biologic specimen collection source

 Core Biospecimen Collection and Processing False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54753 Specimen collection tube type

Type of tube used for specimen collection

 Core Biospecimen Collection and Processing False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55009 Specimen storage temperature value

The temperature value for the specimen being stored

 Core Biospecimen Collection and Processing False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18701 Imaging modality type other text

The free-text field related to 'Imaging modality type', specifying other text. Type of radiologic study performed on the participant

 Core Parenchymal Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C13884 Imaging vessel angiography arterial anatomic site

Indicates vessel imaging angiography arterial findings location

 Core Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core Medical History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54746 Specimen not collected reason

The reason the specimen sample was excluded

 Core Biospecimen Collection and Processing False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54725 Aneurysm diameter maximum measurement

Measurement of the maximum diameter of the aneurysm being described

 Core Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54754 Specimen collection tube other text

The free-text field related to other tube for specimen collection

 Core Biospecimen Collection and Processing False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.