CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C52224 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Desired Number of Hours Sleep/night

Desired number of hours sleep per night, PTSD symptoms, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54091 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Difference scaled score

Scaled score difference, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C58616 Mechanical balloon angioplasty procedural adverse event type

Type of procedural adverse events related to mechanical angioplasty that occurred

 Supplemental Rescue Therapy False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54841 EEG rhythmic periodic pattern general prevalence percent value

Percent value of the electroencephalogram (EEG) record that includes the generalized rhythmic or periodic pattern

 Supplemental Electroencephalography (EEG) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54753 Specimen collection tube type

Type of tube used for specimen collection

 Core Biospecimen Collection and Processing False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52547 Brain aneurysm unruptured measurement

The size (diameter in mm) of the unruptured brain aneurysm(s)

 Supplemental Aneurysm History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54676 Subarachnoid hemorrhage clinical deterioration infarction not related delayed ischemia other text

The free text field to describe the reason the subject has experienced clinical deterioration and/or cerebral infarction due other causes than delayed cerebral ischemia (DCI) after a subarachnoid hemorrhage

 Supplemental Neurological Complications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21823 Beck Anxiety Inventory (BAI) - Breathe difficult bother scale

Scale that represents how much the participant has been bothered by difficulty in breathing as part of the Beck Anxiety Inventory (BAI)

 Exploratory Beck Anxiety Inventory (BAI) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54962 Medication antiplatelet former take age end value

Age in years at which the subject/participant stopped taking the selected former antiplatelet medication

 Supplemental Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54718 Death post subarachnoid hemorrhage neurological cause indicator

Indicator of whether death resulted from a neurological cause following subarachnoid hemorrhage (SAH)

 Supplemental Death False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54051 D-KEFS Color-Word Interference Test (CWIT) -Time To Complete 90 Duration

Duration of total time to complete for condition 1 and 2, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

 Exploratory Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54732 Parent artery proximal aneurysm diameter measurement

Diameter of the parent artery proximal to the aneurysm being described

 Supplemental Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54851 EEG rhythmic periodic pattern lateral prevalence percent value

Percent value of the electroencephalogram (EEG) record that includes the lateralized rhythmic or periodic pattern

 Supplemental Electroencephalography (EEG) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C19259 Occupation primary other status text

The free-text field to capture other status indicating the participant's/subject's current primary occupational status

 Exploratory Social Status False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52178 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Trauma Related Indicator

Indicator of trauma-related events, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55009 Specimen storage temperature value

The temperature value for the specimen being stored

 Core Biospecimen Collection and Processing False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54937 Hypervolemic therapy volume augmentation range

Range of hypervolemic therapy/volume augmentation

 Supplemental ICU Therapies False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C53722 Mass effect aneurysm without subarachnoid hemorrhage sign type

The element related to signs of mass effect due to aneurysm without subarachnoid hemorrhage

 Supplemental Baseline Assessment False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21832 Beck Anxiety Inventory (BAI) - Hands tremble bother scale

Scale that represents how much the participant has been bothered by hands trembling as part of the Beck Anxiety Inventory (BAI)

 Exploratory Beck Anxiety Inventory (BAI) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54451 Dynamic Gait Index (DGI) - Gait head turn horizontal task score

Score for the subject/participant's performance on the Gait with Horizontal Head Turns task, as part of the Dynamic Gait Index (DGI)

 Supplemental Functional Gait Assessment False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C20967 Frontal Systems Behavior Scale (FrSBE) - Action speech embarassment frequency scale

Frequency of doing or saying embarrassing things as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54059 D-KEFS Color-Word Interference Test (CWIT) -Condition 4 Raw Score

Raw score of inhibition/switching, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

 Exploratory Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54859 EEG rhythmic periodic pattern bilateral independent frequency value

Value in cycles per second of the frequency of the bilateral independent rhythmic or periodic pattern observed on the electroencephalogram (EEG)

 Supplemental Electroencephalography (EEG) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52188 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Acute symptoms indicator

Indicator of whether or not duration of symptoms is less than 3 months (acute), as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54945 Ventilation mechanical invasive indicator

Indicator of whether any invasive mechanical ventilation was administered to the subject/particpant

 Supplemental ICU Therapies False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.