CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0328-C02464	C02464	Skull fracture anatomic site	Anatomic site of the skull fracture	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2380-C12897	C12897	Echocardiogram right ventricle end diastolic volume measurement	Measurement of imaged right ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole	Supplemental	Echocardiogram II	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2380-C10727	C10727	Echocardiogram left ventricular internal dimension end diastole measurement	Measurement of left ventricular end - diastolic internal dimension (LVIDd) obtained by echocardiography	Supplemental	Echocardiogram II	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02473	C02473	Subdural hematoma acute anatomic site	Anatomic site of the acute subdural hematoma (SDH)	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2380-C10741	C10741	Echocardiogram aortic valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography	Supplemental	Echocardiogram II	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02481	C02481	Subdural hematoma mixed density or CSF-like collection anatomic site	Anatomic site of the subdural hematoma mixed density subdural or CSF-like collection	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2380-C12913	C12913	Echocardiogram study quality type	Type of quality of the echocardiogram study	Supplemental	Echocardiogram II	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02446	C02446	Intraventricular hemorrhage status	Indicator of acute-appearing blood within the ventricles	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2380-C12870	C12870	Echocardiogram pulmonic valve stenosis degree status	Status of the degree of pulmonic valve stenosis as assessed by echocardiography	Supplemental	Echocardiogram II	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02403	C02403	Brain swelling extent type	Extent of the brain swelling	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1056-C12854	C12854	Cardiac MRI gadolinium contrast use indicator	Indicator of whether gadolinium-based contrast was used for the cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1177-C04505	C04505	ECG left ventricular hypertrophy status	Status of left ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F1177-C04513	C04513	ECG ST segment abnormality status	Status of an abnormal interval between the end of the QRS complex and the beginning of the T wave (ST segment) on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02456	C02456	Midline shift supratentorial displacement type	Side of the midline shift	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02489	C02489	Vascular dissection status	Status of an incomplete disruption of one or more inner layers of an artery, which may be traumatic or spontaneous	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2380-C12890	C12890	Echocardiogram left ventricle function status	Status of left ventricle function on the echocardiogram	Supplemental	Echocardiogram II	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2815-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental-Highly Recommended	Perfusion Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2384-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental-Highly Recommended	Parenchymal Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02465	C02465	Skull fracture morphology findings type	Findings related to morphology of the skull fracture	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2380-C12898	C12898	Echocardiogram left ventricle end diastolic volume index measurement	Measurement calculated from end diastolic volume over body surface area for the left ventricle obtained by echocardiography	Supplemental	Echocardiogram II	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02422	C02422	Brain edema finding type	Further describes the brain edema	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2380-C10728	C10728	Echocardiogram left ventricular internal dimension end systole measurement	Measurement of left ventricular end - systolic internal dimension (LVIDs) obtained by echocardiography	Supplemental	Echocardiogram II	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02474	C02474	Subdural hematoma acute volume measurement	Measured volume in cubic centimeters of the acute subdural hematoma (calculated from length, width, maximal thickness)	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F2380-C12906	C12906	Echocardiogram left ventricle non-compaction status	Status of non-compaction in the left ventricle on the echocardiogram	Supplemental	Echocardiogram II	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
F0328-C02430	C02430	Extraaxial hematoma status	Status of a collection of blood between the brain surface and the skull, but for which the exact site cannot be determined with certainty, and is not already classified as a more specific entity elsewhere in the data set	Supplemental	Imaging	False	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage	Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.