CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1776
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19260 Occupation secondary status

The status indicating the participant's/subject's current secondary occupational status

 Supplemental Return to Work False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C55001 Medication immunosuppressant current former take age start value

Age in years at which the subject/participant began taking the selected former or current immunosuppressant medication

 Exploratory Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21037 Frontal Systems Behavior Scale (FrSBE) - Sexual intimacy interest frequency scale

Frequency of being interested in sex as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54758 Imaging aneurysm irregular indicator

Indicator of whether the aneurysm is irregular as determined with imaging

 Supplemental Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52576 Cerebral perfusion value source type

Type of the source of the cerebral perfusion value

 Supplemental Vital Signs and Acute Physiological Measurements False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52623 Aortic thoracic aneurysm specify text

The free-text field related to the type of aortic or thoracic aneurysm

 Supplemental Medical History False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21117 Subject name

Name of subject/participant

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52126 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - B or D Subtotals Score

Subtotals of B. Re-experiencing symptoms or D. Hyperarousal symptoms, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C17397 Visit number

The numeric value associated with a particular assessment/examination of a participant/subject on a study

 Exploratory 12-Item Short Form Health Survey (SF-12) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54885 Subarachnoid hemorrhage ictus elapsed day count

Count of 24-hour intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention

 Supplemental-Highly Recommended Surgical/Procedural Interventions False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21053 Frontal Systems Behavior Scale (FrSBE) - Age appropriate behavior frequency scale

Frequency of acting appropriately for his/her age as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54766 Imaging aneurysm shear rate mean measurement

Measurement of the mean shear rate of the aneurysm, as computed from imaging

 Exploratory Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18629 Brief Symptom Inventory-18 (BSI18)- Feeling blue scale

The scale for the participant's distress from feeling blue

 Supplemental Brief Symptom Inventory-18 (BSI-18) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54968 Birth control method current former use other text

The free-text field related to 'Birth control method current former use type' specifying other text

 Exploratory Concomitant Medications False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54738 Aneurysm thrombus indicator

Indicator for the presence of evidence of thrombus

 Supplemental Radiological Findings False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C14436 Nystagmus type

Type of involuntary movement of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders

 Supplemental Neurological Exam False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52587 Stroke volume measurement

Measurement of the volume of blood pumped from the left ventricle per heartbeat

 Supplemental Vital Signs and Acute Physiological Measurements False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C58633 Imaging CT slice count

Count representing the total number of single image planes captured during computed tomography (CT) imaging acquisition

 Supplemental Perfusion Imaging False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54086 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A T score

Normalized T score for Trail A, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

 Exploratory Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C52137 Clinician-Administered PTSD Scale for DSM-IV (CAPS) - Delay in Onset More Than 6 Months Indicator

Indicator of whether or not delay in onset of symptoms is more than 6 months, PTSD symptoms, as part of Clinician-Administered PTSD Scale for DSM-IV (CAPS)

 Exploratory Clinician-Administered PTSD Scale (CAPS) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54893 Aneurysm intervention surgical result status

Status or result of surgical intervention to treat aneurysm

 Supplemental Surgical/Procedural Interventions False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C21071 Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale raw score

Raw score for Disinhibition subscale as part of Frontal Systems Behavior Scale (FrSBE)

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C54774 Imaging aneurysm low wall shear stress percent value

Value of the percentage of the aneurysm that is under low wall shear stress (WSS)

 Exploratory Vessel Imaging Angiography False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18637 Brief Symptom Inventory-18 (BSI18)- Weak scale

The scale for the participant's distress from feeling weak in parts of their body

 Supplemental Brief Symptom Inventory-18 (BSI-18) True Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
C18947 Sensory system global assessment other text

The free-text field related to 'Sensory system global assessment result' specifying other text. The condition and ability of sensory system

 Supplemental Neurological Exam False Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1776

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.